Carol’s Song

Tucked into some trees at the edge of a lake is where I found her. Well, first I found her in the yellow pages. Yes, back when there was an actual paper book and there were no maps, photos of facilities, or reviews to help you make your decision. Nope, my hope was simply that I’d find the “right” place when I really didn’t know What I was looking for.

I can still remember following the instructions for parking and the ramp to the side door. Still smell the warm pine trees, hear the skittering of birds in the trees and tiny critters in the leaves and hear my lone footfalls on the wooden ramp. Still remember my nervousness opening the temperamental door (that needed an extra nudge in the summer and sometimes didn’t close all the way in winter) and finding my way to the waiting room. And sitting on the loveseat, filling out paperwork, getting my first glimpse of Carol.

I would later wonder how someone so small in stature would come to be one of the most powerful humans I know. But at that time, I was comforted by my first impressions. Soft spoken with even softer eyes, I was reasonably certain she was someone I could talk to. You know, just long enough to sort out this anxiety that didn’t make sense.

And over the next few years, she would. Help me sort it, that is. She’d gently walk with me through childhood trauma, help me manage hard parental relationships and start changing generations of unhealthy thoughts and behaviors by teaching me how to parent my own littles and love my husband well. And all the while there was a Song in that room. Most of the time it was a consistent undercurrent, radiating from that small, gentle woman in the rocking chair. But every once in awhile it would peak and reverberate off the walls in a more audible question, or an observation.

Have you ever stopped and prayed when you feel overwhelmed like that?

When I’m thinking about the big questions in life, sometimes I find those answers at church. Have you ever been?

I know when I was a young mom, I really needed relationships with other young moms. It can be isolating spending all your time with young children. Sometimes they’ve got mom groups at the local churches. Have you tried one?

And the Song would tug at my heart and my thoughts until I did go to a church and ask the big questions. And got big answers. And I realized, a carol is a song.

And MY Carol is a Song.

Or rather, possesses and reflects, the Song of Christ. That gentle calm that attracted, comforted, enveloped and walked alongside of me? It was the promised Comforter the whole time. And later, that same Song would be positively fierce in protecting me. Fighting for me. And loving me through some of the darkest, most painful moments of my life. Christ in that tiny woman would make her powerful enough to help lift me bodily out of some of the deepest depths of despair.

I remember reading John 14:16 and believing Jesus when He said that the promised Counselor (or in other translations, Comforter) would be better for me; but sometimes still wondering how it was better for me than if He was still with us bodily and not in Spirit. It was much later when I would realize that it would be through that Counselor, in my counselor, that would testify to the same Spirit within me and bring me comfort that would surpass worldly understanding or expectations. And help me know Jesus in a way I couldn’t have had He not been in me, always.

John 14:16

16 And I will ask the Father, and he will give you another Counselor[a] to be with you forever.17 He is the Spirit of truth. The world is unable to receive him because it doesn’t see him or know him. But you do know him, because he remains with you and will be[b] in you.

And now, the Song is familiar, but no less attractive, no less powerful, and definitely no less comforting. And I still hear it in every conversation with my Carol. The in dwelling Spirit that constantly, sweetly, and faithfully points me to Christ.

Ephesians 3:20

20 Now to him who is able to do far more abundantly than all that we ask or think, according to the power at work within us

But here’s the crazy thing. I didn’t ask. I didn’t imagine.

I didn’t even KNOW to ask or imagine. I simply dialed a phone number, found in the antiquated yellow pages.

And God still gave me a carol. Wooed me with a Song. And through that Carol, gave me more than I could have asked for or imagined. He gave me a spiritual mother that has often doubled as a physical mother to not only grow and encourage me and my faith, but helped to grow and nurture the faith of my family. He gave me a safe place to learn to trust, so that I could learn to trust my Father. He gave me someone to laugh with, cry with and always point me to Him. He gave me a treasure I will forever thank Him for. Because through my Carol, His Song, He has not only richly and generously blessed me, but He has fostered a legacy of faith in my family. In Hubby and my not so littles.

I can only pray that one day, I might reflect even a fraction of the Christ I’ve seen in her over the years.

That on occasion, those with me might hear an echo of the Song of Carol. For many years to come.

2 Corinthians 2:15-17

15 For we are the aroma of Christ to God among those who are being saved and among those who are perishing, 16 to one a fragrance from death to death, to the other a fragrance from life to life. Who is sufficient for these things? 17 For we are not, like so many, peddlers of God's word, but as men of sincerity, as commissioned by God, in the sight of God we speak in Christ.

You unravel me, with a melody.

You surround me with a song.

Sugar & Spice

I think there’s something special about being a grandchild. Talk to most parents and they will tell you that grandma and grandpa are not the same people with their grandchildren as they were with them. As a grandchild, I think we (in some ways) get a clearer picture of our grandparents. Or at least, the people they want to be. We have the luxury of only the secondary effects of their sin and the primary effects of their love. In other words, we get to reap what our parents have sewn.

I lost a beloved grandpa last week and it has brought with it not only a myriad of emotions, but a myriad of observations. I do not grieve in the same way my parent is. And the simplest explanation I can come up with is that though we both experienced the same man, I think I got to experience the man he wanted most to be.

Throughout my childhood, my grandpa owned and operated a bakery. What had started as a commercial bakery supplying local stores and restaurants had turned into a local bakery and deli when I was in elementary school. Because my father worked long hours in a factory and was not readily available to pick up sick children from school or take the many days off for school vacations, I got to spend a lot of time amidst the flour and sugar at Sugar & Spice Bakery and Deli. I distinctly recall being picked up from the nurses office to spend a few afternoons curled up on a sack of flour in the office. Which is not nearly as comfortable as one would think. But I’ll also never forget the warm smells of the bakery and the comfort they still bring.

My grandpa was magic. Little girls could sit, mesmerized, as the men poured sweet waterfalls of sugar into giant bowls with giant paddles and hooks, creating giant batches of all things carbs. And as the machines whirred, and the ovens spun, small girls could sometimes crack dozens of eggs with no grown up (visibly) hovering looking for wayward shells. They could watch, in awe, as grandpa, all in white, with asbestos hands and sweaty face, would reach into the oven with a large wooden paddle attached to a long handle and deftly deliver delicious treats to waiting counters. Then, that same strong grandpa would take tiny little tools, spun between thumb and forefinger and create beautiful, delicate roses right before their eyes. And they would sit and wonder as grandpa laughed and chatted while casually assembling giant white wedding cakes. Finally, when little girls could not stop running and had cracked all the eggs and drawn all the pictures and were done watching the creations of other people, grandpa would pull out his magic book.

Hidden somewhere in the bowels of the bakery, covered in flour and bits of dried dough, was a book that turned little girls into little creators. And in the hands of grandpa, they could turn lumps of cold, wet dough into golden, magical, edible turtles and alligators. Complete with raisin eyes, the girls would bring them home and dad would have to stealthily throw them away once they got moldy. Because the creations were too beautiful for little girls to eat. And eventually, those girls would go on to make their own magical, edible creations for their own families. They would find the smell of baking bread, cookies and cakes to be the smell of love and help their own littles become little creators. Maybe not of bready turtles and alligators though, because they don’t have the magic book.

Grandpa had lots of little girls at home too. He was blessed with an abundance of girl grand babies, who would spend hours riding down carpeted staircases (getting covered in rug burns) in his house and doing their very best to drive grandparents crazy. One of those staircases led to a magic room. What was once an old maid’s quarters with its own steep, dark stairway, led to a private bedroom that must have gotten the best light. Because in it was a magic picture. Grandpa didn’t just create with carbs. It turns out he created with paints too and on an easel in the middle of the room stood a picture little girls didn’t then understand. But one would come to find out it was a picture of the most magical thing grandpa ever showed her.

It was a picture of Jesus, complete with crown of thorns. And when this girl was much older I would realize that grandpa really did know all the magical things. He knew the Creator that helped him create. The magic of a Savior that redeems. The Love that overflows like sugar into spicy little girls.

So, my last observation. What if we remembered everyone like grandkids? What if we chose to see their sin as secondary to us and their love as primary? What if, we remembered them like that while they were still here? Today, please take a moment to reevaluate a relationship and put it in the hands of the Redeemer. Reach out and ask them to break bread together. In memory of a lovely baker.

Jesus then said to them, "Truly, truly, I say to you, it is not Moses who has given you the bread out of heaven, but it is My Father who gives you the true bread out of heaven. For the bread of God is that which comes down out of heaven, and gives life to the world."
John 6:32-33
For I will forgive their wickedness and will remember their sins no more.
Hebrews 8:12

NOT an orphan

I have spent the last couple of months processing and praying about how to share this with you all. Because it’s an amazing thing. But in order to truly appreciate the provision, you need to fully appreciate the need. And though much of the need was of a financial nature, the emotional need was just as, if not more, important.

A few months ago, I was invited to participate in a podcast with an organization called Hunter’s Hope, to share how God has been, and continues to be, a very present help and Hope in our family’s lives as we navigate Leukodystrophy. Upon completion of those recordings, they invited all of those that participated to a retreat during which we would have opportunity for fellowship and community with those similarly afflicted and walking with Christ. It was a gift the enemy would try to steal. In several ways.

Shortly after recording, I was approached about an opportunity to speak at a local women’s conference on Romans 5:3-5. Considering the timing of the invitation and the subject matter, I was certain this was something the Lord was asking me to do.

So, I was simultaneously proofing the transcript from the podcast, writing for the conference and writing a mini message for the retreat. I should add that none of these things are within my comfort zone. In fact, if I was to make a list of things I dislike, public speaking would take a top slot. I have a great story about a public speaking class in high school that involves hives and a “D”, by the skin of my teeth, that I would love to share with you sometime.

But I was also struggling with audience and subject matter. You see, whenever I share our family’s story with people I start to feel this “separateness”. Even with fellow Christians, I am usually reminded that our life is not “normal”, it just doesn’t look the same. Even with those that love Christ, there are many that will avoid us because they don’t know how to respond or relate to our family. Leukodystrophy often sets us apart. As I prepared, I knew I needed to prepare for these feelings as well. Yet, I am absolutely convinced of the need to share the incredible ways God has loved and provided for us. How we have had the opportunity to know Him, trust Him and love Him more intimately through trial.

Then there was the retreat. I am a homebody. I don’t like travel. I prefer routine and the familiar. So, I was preparing to step out of my box. Because it was a gift. But as I prepared for that retreat, I knew I had to prepare for another kind of “separateness”. Within the world of Leukodystrophy, Hubby and I often struggle with survivor’s guilt. Because our kids have a treatment and have received that treatment in time to positively impact their quality of life. In those circles we are acutely aware that we are the minority and that the quality of our children’s lives has come at the great cost and contribution of so many beautiful children that came before and paved the way for things to speed diagnosis and treatment. And my heart breaks for those families. I grieve with them and wonder why our children were spared, while theirs were not. Survivor’s guilt.

So, there I was feeling stuck in the middle. Acutely aware of our “separateness”. Simultaneously feeling sorry for us and feeling intense gratitude. When Oldest Son borrowed my car….and it blew up. Okay, now you’re likely picturing a fantastic fiery explosion. But it wasn’t that dramatic. It turned out to be the engine that blew up. Which is much less impressive than one would think. It just quit. And sprayed liquid all over the highway. Done. Kaput. Dead. Or, as the sympathetic mechanic explained, “catastrophic failure”.

Now, this would likely be stressful for almost anyone. But, when your credit was completely destroyed by a diagnostic journey and you had saved and saved to buy that vehicle outright…. For it to barely last a year, it’s a little more than stressful. It’s downright frustrating. And when you have absolutely no savings to replace it and no way to borrow money to replace it, it becomes a bit of a crisis.

So now I’m feeling the “separateness” on a whole different level. Because now I’m aware of another way in which I often feel alone. And this is one part I wasn’t sure how to share. So, in order to honor my mother and father, and to love you well and protect your hearts, I will simply say that due to the fall, we don’t have much family to give us a hand. Or a co-sign. Or a down payment. Or maybe just a hug.

This is when I MAY have indulged in a small(ish) self pity party. In my mind’s eye, I always picture Baby Girl at about two years old, laying on the floor of the kitchen at my feet, face down, with her hands covering her eyes. And that was my inner self. Channeling my inner two year old, still sitting at my Father’s feet, but in silent tantrum mode because I didn’t like what was happening. Although, if I’m honest, it wasn’t completely silent. There may have been a little dialogue along the lines of….

I’m doing all the things! I don’t like to speak, but I’m gonna speak. I don’t like to travel, but I’m gonna travel. I’m going to feel all the feels I don’t wanna feel and step out of my box and I’m gonna shine my light and I’m gonna tell of Your goodness, even if it might kill me (okay, there was a little bit of drama) and we could sure use just a LITTLE bit of protection while we do it! A hedge. Even a speed bump for the enemy to slow him down would be helpful. Heck, could You blow up HIS engine instead??

So I took the gift card from a sister in Christ for travel expenses, packed my bags and stepped out in faith. With no plan but His because we had no way to fix it.

And surprise, surprise, He had a plan. And it was SO much better than I could have asked for or imagined.

It started with a borrowed vehicle and the gift of time so we could try to save enough money for a down payment. Hopefully enough of one to qualify for a loan. We hadn’t used credit in seven years, I was inwardly preparing for the best case scenario of a ridiculous interest rate on another “lemon” from a shady dealership. But we’d have a vehicle, and that was the important part.

Then, it really got good.

We were down to one more week with our borrowed wheels and I’d just put on my list to cancel the next couple of weeks of Baby Girl’s occupational therapy before I started dinner. Mini Hubby was climbing walls and getting on stressed nerves so I sent him to take out the garbage and get the mail while I got making chili.

My kitchen is still holy ground.

I’m chopping onions and garlic and singing Shane and Shane’s Psalm 46 (One of my “fight songs” because it reminds me how big my God is) and my heart is softening with sautéing onions and the stress drains off with the juice of diced tomatoes and the door bangs open with an oblivious boot from an oblivious boy and both boy and blur of puppy race by with a stack of mail and a lot of noise and I laugh because…holy ground. While my chili simmers, I open this.

And it all goes quiet. Even the boy and the puppy. And while the chili burns and my ears ring and my eyes and nose fill, the Lord leans down and grabs my face in His hands and tenderly tells me,

“You are NOT an orphan. Stop acting like one.”

And now I’m laughing and crying and the “separateness” is gone because the Love envelopes me and crowds it all out. And I don’t even care that my holy ground smells suspiciously like scorched dinner and I run into Hubby who can’t quite wrap his head around what I’m holding.

Because that kind of outrageous generosity takes awhile to process. And when you know that the generosity came from an outpouring of love for a little girl lost to Leukodystrophy, it gets even more complex.

I spent the next several days “God Crying”. This happens quite a bit in our house. When the kids have caught me at it, I used to have to reassure them that it was a “good cry”. While texting with someone one day auto correct redeemed itself and changed my “good cry” to “God cry” and I realized it was far more accurate. They’re tears of awe, gratitude, joy and love. I think, a form of worship. And if you’ve ever heard me sing, you know it’s a form of worship that is far more beautiful, even if it’s an ugly cry.

Now I’m gonna feel a little like Billy Mays, because, “That’s not all!”. While we were still processing a week later and narrowing down our car search, we got an envelope. With another $1,100. Which brought the total to almost EXACTLY what we paid, with tax, for the lawn ornament with the blown engine. And this generosity came from the other side we sometimes feel “separate” from.

When that car engine blew up, I could not have imagined a scenario in which we would have our needs filled so completely. But even better, in a way that reminded me of my perfect Father’s love and care for me….through people that so thoroughly removed those feelings of separateness. Through our Leukodystrophy family and our church family. So much more than I could have even thought of or imagined, never mind asked for.

Ephesians 3:20

Now to him who is able to do far more abundantly than all that we ask or think, according to the power at work within us

Identity Lane

I take a trip every fall and it seems every year it is slightly different. Oh, the smells are the same, the colors of the leaves don’t change and the destination is always a welcome one. But, it’s the road to get there that is always changing.

These are my thoughts as we sit in the bus. Hubby and I. As passengers pile on and settle into seats I start to people watch, because that’s what I do. People fascinate me. For example, there’s a young woman opposite the aisle of Hubby and she has wasted no time in pulling out her laptop and ear buds and is checking her Apple Watch; no doubt waiting for her next Zoom meeting to start. As she taps her beautifully frivolous, brand name, high heeled shoe, she radiates anxiousness and I notice the carefully manicured nails that almost hide the chewed corners of her fingers. She glances my direction and I smile what I hope is a warm smile and turn away, acutely aware that I’ve been caught staring. Staring at a younger me. Oh, how I remember the dreams of grandeur of the young IT professional. Fresh into a career, enjoying my first financial freedom and all the temporal possessions that come with it. And realizing that it did not offer an ounce of the security and peace I thought it would bring.

While I reminisce about a thinner, more energetic and selfish me, and our bus finally departs the station, Hubby has started up a conversation with a gentleman in front of us. As is typical of any laborer I’ve ever met, he is telling him about one of the office buildings we just passed. How he worked on it years ago, who he was working for and with and where he used to eat lunch. As his work roughened hand grips the seat in front of him and he laughs at his own dad joke I smile. Not because it was funny, but because I love and appreciate things that stay the same.

I’m distracted by a tapping. Because I’m a mother of three, I instantly know the source to be someone under three, whose feet are conveniently located directly behind my backside. Hence the tapping. On my backside. Thankful for padding, I slowly slide down in my seat, turn towards the back of the bus, and peek my head up enough to see pigtails and a tiny face sticky from the lollipop clutched in her chubby right hand. We commence a game of peek-a-boo and mom appears visibly relieved I’m not annoyed by the tapping. She reminds the little with pigtails to keep her feet off the seat and I ask her where she is from. They’re close and new to the area and I inquire as to whether they have found a church home. Because I am a Director of Children’s Ministry and I very much want to tell pigtails about Jesus. Invitation given and my stomach starting to roll from facing backwards I take deep breaths and turn back around to hear the chiming of my cell phone.

I’ve got mail. Emails to be precise. Regarding the newly formed CTX Alliance. Of which I am now co-president. Did I forget to tell you about that? Very exciting stuff. I quickly scan the emails, because, car sickness. There are details on a video that needs to be made and a couple of upcoming meetings. Oops, and a couple of emails I’ll need to respond to for work. Which reminds me to interrupt Hubby’s conversation about his favorite service opportunity, Ruby’s Pantry, and inquire about when we can coordinate a video recording, drivers Ed, our homeschool field trip up north and the kids’ latest lab testing. Now my stomach is upset and my head starts to hurt and Hubby gathers his stuff to get off. We’ll have to coordinate via FaceTime. Here we part ways for a few days as he heads out of town for work.

And here is where I look over and see the younger me and long for the simplicity. Because selfish me is still very much alive and kicking and right now she is sure that the Lord has made a mistake in all He has called her to be. There is a beautiful weight to wife and mother. I feel a rightness and peace in caring for the day to day, practical, educational, emotional and physical needs of my family. But all these other things? Ministry in the church both to children and their families, Mother to children with rare diseases and all the extras that entails, Advocate for the undiagnosed and diagnosed too late…I am not enough. I do not have enough time, enough energy, enough IQ points, enough patience, enough selflessness to be what He has called me to be. He must have made a mistake. Now I’m frantically looking for a way off of this bus. An escape from the weight. But all I see is a road unknown and I’m sure I’m traveling it alone.

September 5, 2021

Then all at once there is a brightness and a warmth and an inaudible Voice. I am all at once alone, yet the least alone I’ve ever been.

“Here is where I called you first.”

And the Truth of the words rush silent through my head.

1 Peter 2:9-10. But you are a chosen people, a royal priesthood, a holy nation, God’s special possession, that you may declare the praises of him who called you out of darkness into his wonderful light.

I closed my eyes and bowed my head to the overwhelming beauty of Truth and now I can see it. As clearly as if it was right in front of me. How and who He created me to be.

Psalm 139:13-16 For you created my inmost being;
you knit me together in my mother’s womb.
I praise you because I am fearfully and wonderfully made;
your works are wonderful,
I know that full well.
My frame was not hidden from you
when I was made in the secret place,
when I was woven together in the depths of the earth.
Your eyes saw my unformed body;
all the days ordained for me were written in your book
before one of them came to be.

There can be no doubt that I am exactly where He means me to be. No mistakes, not if He has ordained every one of my days. But who has He called me to be FIRST, in all its complex simplicity? A chosen daughter of the One True King specially equipped to declare His praises to all whom He places before me. How do I continually forget?

My destination once again reached, I step off the bus into Identity. As a wife, mother, special needs parent, home schooler, family advocate, and ministry leader. But first, and most importantly, as a Child of God. By His grace….that I can do.

No More I’m Sorry’s

I seem to spend more time reflecting on eternity when I reflect on the passing of time. And I am more aware of the passing of time when I’m approaching a birthday. In this case, mine.

Most people who know me, know that it bothers me when people detest aging and even more when they detest the aged. I spend enough time with people who celebrate their children’s birthdays by the month to think of more time with loved ones as anything but a good thing. Enough time praying my children into adulthood not to appreciate every wrinkle and every grey hair signaling my own. Enough time trying to glean wisdom from the aged to think of their time as anything but a treasure.

Yet, as much as I appreciate and value the moments here and desire to fulfill the responsibilities set before me (especially those responsibilities related to my family), an enormous part of me longs for my true home. At times I feel like this is contradictory and I sympathize with and understand better what the apostle Paul meant when he said, “To live is Christ, but to die is gain.”

To be here, enjoying the good gifts my Father has given me here, and to take seriously the ministry He has set before me is a beautiful thing and not something to desire ending prematurely. But to die, if that is gain, what can that mean?! If it’s to gain, it has to mean that it is better than anything here. That it would, in no way, be a loss. It would mean there is no need for a “bucket list”, no need to do all the things and see all the things before time “runs out”. Because that would somehow imply that the room our Lord prepared for us in our Father’s house is somehow “less than” what we have here. Wouldn’t it?

So, if I war within myself on the subject of death and eternity, how then does one explain it to an eight year old? Mini Hubby, as usual, has had big things going on in his little, developing mind. He knows that we are promised no more pain and no more suffering. But lately, that has not been enough to stop his fear of death and an unknown/unseen place.

No problem, as a director of Children’s Ministry, I’ve totally got this. Hopefully.

We made a list of what we think heaven would not have if there was no more pain and no more suffering. Not necessarily in order of importance.

  • No puke
  • No blood
  • No hunger
  • No thirst
  • No bee stings
  • No mosquito bites
  • No stubbed toes
  • No COVID
  • No rust
  • No hang nails
  • No cancer
  • No car accidents
  • No doctors
  • No lawyers
  • No prisons

(I’ll admit to not thinking about those last three until we were brainstorming. Fascinating.)

But, simply the absence of pain and suffering was still not enough to relieve his fear. So, I suggested we make a list of what we think it might feel like to be there. This time we did it separately. This is mine:

Rainbows! Sunrises and sunsets that can’t be duplicated by man. The smell of freshly mowed grass, baking bread and salty wind off the ocean and into your face. The breath stealing moment of awe at the power in Niagra Falls or the carving of the Grand Canyon. Your hand in grandpa’s. Warm feet digging into cool sand. Sliding into fresh bedding after a hard day. The smell of grandma’s house. Hot chocolate in the cold. That moment when you exchange the rings, hold the baby and cheer for the victory. Reunions. Happy tears. Oh, Lord! That too brief moment of worship in Spirit and truth. When the world melts away, time ceases to exist, and you’re in full communion with the One who made you. For a few seconds. As close as you’ll be this side of eternity. Breathtaking. All of the best things about this world all at once.

Now, Mini Hubby will do most anything to get out of writing. So, his thoughts could be seen as a reflection of his aversion to a pencil, or, they could be further proof of what I’ve experienced with children time and time again…

Child like faith. With less exposure to this world, they seem far less tethered to it than we are. It just seems to make it all less complicated to them.

He wrote simply:

Jesus. No more I’m sorry’s.

And with that, my eight year old grasped heaven with both his sweet little hands. Because heaven includes our sin washing, heart renewing, saint shepherding Jesus, we will not enter with our sin. Nor will anyone else who has trusted in Him. We will no longer hurt others and they will no longer hurt us. And I just can’t imagine a better feeling combination than the presence of our Savior and the absence of our shame. Especially in the hurting, fallen world we currently inhabit.

So, did I help Mini Hubby with his fear of death and the unknown heaven? I’m not sure. Time will tell. But, I know he sure clarified things for me.

And I just can’t imagine a better feeling combination than the presence of our Savior and the absence of our shame.

Or, no more “I’m Sorry” ‘s

“He has adorned you with the gift of grace and adopted you as His child.He has given you His own Word to educate you for heaven; He has opened your eyes so that now you see. By His grace and your cooperation, your soul will gradually develop into a more perfect resemblance to Him. Finally, your heavenly Father calls you home where you will see the angels and saints clothed with the beauty of Christ Himself, standing around His throne and hearing the word that will admit you into their society: Well done, thou good and faithful slave; . . . enter thou into the joy of thy lord (Matthew 25:21).” D.L. Moody, Heaven

For my birthday I’m fundraising for some of those families that celebrate their children’s birthdays by the month. Join me here:

https://www.facebook.com/donate/286126489718958/?fundraiser_source=external_url

Rock of Ages

Maybe it’s because we’ve just experienced the longest stretch of sub zero temperatures in almost a century, or maybe it’s because of all of the Facebook posts of people’s warm climate escapes, but I dreamed of an ocean last night.

Knee deep in calm, blue waters the ebb and flow gave little relief from the glaring sun. At that depth, the water was more like bath water. It was a new to me beach though and I’d spent a considerable amount of time trying to decide if there were any dangers below the surface. Behind me, there were a group of children using drift wood to examine a washed up jelly fish and I was keeping an eye out for any of it’s more fortunate mates. I had no idea where along this coast we were. Could it be shark season here? There were many people, far less cautious than I, that had entered these waters at the same time as I had and were now enjoying their relief from the heat, dipping below the surface and swimming in cooler water further out.

But there I stood, searching for unknown dangers, studying the water and what lay below the surface and looking longingly at the playful couples splashing in the distance. Distracted by all of the noise behind me, I glanced back to see a boardwalk full of people and a beach packed with blankets, umbrellas and countless families. There was volleyball playing, sand castle making, sun bathing and shell hunting. Shops crammed full of souvenirs destined for the landfill were teeming with customers in tiny bikinis and giant jewelry. The smell of fried food from several food booths mixed with the salt in the air and my own sun screen. Every time I looked longingly back out across the ocean, uncomfortable in the heat, my attention was drawn back to the commotion on the shore. So I stood in the in between. Not quite in, and not quite out.

That’s when I heard it. You’ve probably heard it before too. The “Oceans” song. If I closed my eyes I could hear it more clearly…

“You call me out upon the waters
The great unknown where feet may fail
And there I find You in the mystery
In oceans deep my faith will stand”

And there I stood, worried that venturing further, my feet would fail. Certain that my faith would. But drawn none the less. So I stood still and sang along.


“I will call upon Your Name
And keep my eyes above the waves
When oceans rise
My soul will rest in Your embrace
For I am Yours and You are mine”

That’s when it happened. Looking down, I watched as the water pulled back as if Someone had pulled out a giant plug somewhere out in the great unknown. Suddenly, all people and their accompanying sound disappeared with the water and I was left with a foreboding empty silence. The sand beneath my feet had been drawn along with the water and I watched the ground hollow beneath me. My heart raced as my gaze lengthened to the sea bed in front of me. A myriad of things revealed in the stripping of the sea. Some beautiful, some ugly. I stood exposed, alone, in the quiet open. Waiting. And then I heard it. A roar of rushing water. Louder than anything I’d ever heard. I looked up in time to be enveloped by the wall of returning sea. The wave that slammed me into the Rock of Ages.


“Your grace abounds in deepest waters
Your sovereign hand will be my guide
Where feet may fail and fear surrounds me
You’ve never failed and You won’t start now”

And there was incredible fear. Floundering, there was no place for my feet. No up or down, no left or right. No air in my lungs. No solid ground. No foothold.


“Spirit lead me where my trust is without borders
Let me walk upon the waters
Wherever You would call me
Take me deeper than my feet could ever wander
And my faith will be made stronger
In the presence of my Savior”

I vaguely remembered hearing and singing along to the song. If only I’d known what it might look like when I’d asked to be taken deeper! Would I have sung along? Would I have asked for faith without borders?


“I will call upon Your Name
Keep my eyes above the waves
My soul will rest in Your embrace
I am Yours and You are mine”

Then there was a letting go. Not a giving up, but a giving in. I once again closed my eyes and heard You call. But this time, I called back.

Wherever You call me, Lord.

Then I woke up. To the quiet peace around me and in me. Grateful to keep my eyes above the waves, I was reminded of my favorite Charles Spurgeon quote:

“I have learned to kiss the wave that throws me against the Rock of Ages.”

I don’t know that I’ve learned to “kiss” the wave of special needs children. I still pray earnestly for healing. But I’ve certainly learned to be grateful for it, and what it has accomplished. I am far less distracted by the people and the commotion on the shore. Lord knows it has never been more ridiculous and frivolous than it is now. The things of the world still appeal, but don’t pull like they used to. I’ve seen them fade in comparison to the eternal. I am no longer terrified of the unknown. I’ve seen what lies beneath the surface and experienced the grace hidden there. I am no longer standing in the in between and there are others that are “all in” beside me. Now we collectively beckon to those stuck in the in between. We help each other on the long days when the persevering is hard and celebrate all the victories in between. On the hard days I’m content to wade in the deep waters surrounded by these brothers and sisters and on good days… I’m walking upon the water with my Savior and there is no earthly joy that can compare.

Who needs a warm weather destination anyway? This morning, I just spent a little longer snuggled into blankets and basking in the warmth of God’s promises. I will, however, still need a coat today.

Good Gifts

There is something special about being seven that makes my kids believe in magical things. Each one at that age has sprung a last minute Santa list on us that has included the impossible. Mixed in with Oldest son’s requests for a myriad of Pokemon and pasta was a request for his baby sister not to cry. Baby Girl, in the throws of her only girl-like obsession, handed over a one item list on Christmas Eve for Pixie Dust. This year, Mini Hubby asked for a turtle, knowing full well that mom does not allow any critters in the house that don’t have fur. There must be something about being seven that makes one willing to ask for the impossible.

The funny thing is, even though none of my seven year olds got what they wanted, they all loved everything they ended up getting. Watching Mini Hubby open his Lego gifts and spend an entire day putting together several Super Mario courses with a joy only surpassed by his focus made me think about the many things I’ve asked for, and not received. And how good it has been.

I don’t know about you, but somewhere along the way my Heavenly Father not only took my entire list of requests but also much of what I’d thanked Him for, and gave me something drastically different. I handled it with far less resilience than my seven year old children. I had this beautiful picture in my head and heart in which we were a successful, healthy, family of six. You know, comfortable home, sizeable savings account, honor roll students, good life insurance, new cars, weekend sports tournaments, warm destination vacations, promotions, the occasional cold and basically, nothing we couldn’t handle. On our own.

There was the problem, wasn’t it? My Father only gives good gifts. And a good gift does not include one that leaves me unaware of my daily, moment by moment need for Him. So, He mercifully gave me what I needed. Only, at the time, it didn’t feel like mercy. Children with a genetic disorder and the financial devastation that comes with a medical crisis felt more like crushing disappointment and pain than grace. Less like a gift and more like punishment.

A good gift includes something that makes me more into the image of my good Savior and less into the image of what the world defines as good.

So, sitting and watching my family open Christmas gifts this year I was overwhelmed with the good gifts I’ve been given. Some days, I still don’t want them, but by His grace, most days I am at least grateful for them. Grateful for the way Hubby and I are learning to plan for the future, but live in the grace for today. Grateful for the need to wake every day and surrender my family to the One who loves them more than I do. Grateful that He has not only used every one of our hard gifts to show us how loving and faithful and kind He is, but also to show us how everything else we’ve desired in this world pales in comparison to Him.

Today I’m thinking about you all. I’m thinking about how so many of you have gotten hard gifts this year. I’m praying that someday soon you will be able to stop grieving the gift you wanted, but didn’t get. I’m praying that you will be able to see, although dimly, how the gift you have is being used (If you are Christ’s) for your ultimate good and God’s glory. I’m praying for your perseverance in the hard things, but I’m also praying that you will find joy in the gift you didn’t ask for. Though 2020, for many, has been much more like walking on Legos than getting the coveted pet turtle, I’m praying 2021 will find everyone picking up all the sharp pieces and discovering what our Lord intends us to make with them with the same intense focus and joy as a seven year old that believes in the impossible.

Merry Christmas!!

James 1:17 Every good thing given and every perfect gift is from above, coming down from the Father of lights, with whom there is no variation or shifting shadow.

Matthew 7:11

If you then, being evil, know how to give good gifts to your children, how much more will your Father who is in heaven give what is good to those who ask Him!

Seeds On The Ark?

It’s been an interesting couple of weeks as a youth ministry leader. There was a Sunday school teacher meeting after church while my family was at home in their jammies recovering from influenza. It actually felt like my couch was calling my name.

Wednesday night was youth group during which teenage boys overdosed on sugar and caffeine and decided to throw Oreos at each other, teenage girls dissolved into tears over the strain of twenty first century adolescence and all of its cruelty, and a myriad of leaders, including myself, did their best to share the gospel with all who weren’t relentlessly poking each other and giggling or braiding each other’s hair.

The next Sunday I stood outside my first grade room, coffee in hand, when little Johnny breezed past me telling me, “I threw up last night, but I’m good now!” and during the twenty minutes of a somewhat focused lesson, little Jenny leaned close to ask if there were fruit snacks today and promptly sneezed in my eyeball.

Immediately following first service I grabbed my bag full of lesson plans, fruit snacks and stickers and headed to our large group space where I, who cannot hold a note to save my life or operate anything with an apple on it, would endeavor to figure out the world’s smallest Macbook and dredge up every last drop of the caffeine I just drank to lead the next service of kiddos in their worship time. Complete with singing and dancing. Me. Singing and dancing. Like a crazy person. For Jesus.

Next was a leader meeting for youth group after which my heart broke into hundreds of little pieces for our community’s middle school and high school students who are burdened with such big, adult, worldly, things and a couple of hours praying about those big things after my own house was quiet and before I went to bed.

I know, I know, what’s not to love about youth ministry, right?! I mean, it’s really a dream service opportunity.

It made me wonder….

If I knew a few years ago (when that sly youth ministry director told me I’d be great with sixth grade girls) what I know now, would I still have jumped in? A million times, yes. Because it turns out that my God has an incredible sense of humor.

Why? Because me, the serious, sarcastic, practical and efficient one that loves schedules, order, reading and writing and cups of tea with quiet time? The me that dislikes germs, bodily fluids, silliness, messes, wasted time, chaos, noise and… glitter?

That same me has also been given this incredible love for sharing Jesus with young sinners and saints. Incredible joy in walking alongside them as they learn to view the world and themselves through a gospel lens. I love the privilege of rejoicing with them over each of their victories and praying with and for them in their struggles. This me, that Jesus is growing, loves youth ministry. In spite of all of it’s beautiful messiness.

On these harder weeks, I also remember the seeds. Because even on the messiest youth ministry days, there are seeds, right? My Lord just needs to make them grow.

I have also been remembering, as a non believer, dropping Oldest Son off at a new preschool because he had separation issues. That preschool, Noah’s Ark, happened to have smaller class sizes, and was not in a large daycare, but in a quiet Lutheran church. At the time, the Christian curriculum neither drew me, nor repelled me. It just seemed a better fit.

I remember walking in the entrance at pick up time and hearing the piano playing and little voices singing. Some with the appropriate words at the appropriate time and others… not so much. I could relate to the “others”. I remember descending the stairs would always reveal a handful of children sitting on the rug, a helpful helper with at least one cuddly toddler on her lap, a table full of created treasures waiting to go home and be displayed on the refrigerator and sweet grandma-like Mrs. Klopp playing away on that piano. It never failed. There was always one rambunctious kiddo, too restless for the rug, too upset over hurt feelings, or too ready for nap time, pulled up close on that piano bench. And I’ll never, ever, forget hearing that wonderful saint lean down at the completion of a song and whisper close to the wiggling ear, “Jesus loves you, and I do too.”

I don’t know if there were seeds on Noah’s Ark, but I happen to know there were seeds on Bonnie Klopp’s Ark and I thank God that He so loved my children that He placed them on that beloved piano bench and let her plant the seeds their momma didn’t yet know to plant.

Though I often think I’d give anything to have known about the love of my Savior earlier I can’t help but feel so incredibly blessed with the privilege of planting seeds in other young hearts, so they might know Him earlier. And though I may not be anywhere close to our precious, piano playing, craft with glitter making, saint of a seed planter, Mrs. Klopp; I’m so very grateful for her faithfulness in the messiness of youth ministry.

I can almost imagine the harvest from the seeds on the Ark. Can you? Praying that God will help me be faithful in sowing. Even without glitter.

His hands

We were on our way to dinner at a friend’s, traveling carefully down country roads packed with snow and reflecting headlights off ice that wouldn’t melt until May, when the “highs” climb above freezing and the salt on the roads finally does it’s thing. There were kids bickering in the backseat and Christmas music on the radio and somehow in these sixteen years of family car rides, we had successfully learned to ignore both. And as he’d been doing for the last 21 years, he smiled, reached across the console, and laced his fingers with mine. A couple of miles down that winding road he pulled his hand from mine to turn at the barely visible stop sign and as we rounded the corner he gave me a sideways glance while he absently flexed and straightened the fingers on his right hand, then turned his attention back to winter driving.

And I know what he’s thinking, because, well, 21 years. He’s thinking of the ache in those hands and wondering how long they’ll hold out. About the stiffness after a day of using them and the way they just don’t cooperate the way they used to. Or the way that one finger just won’t warm up anymore since injuring it, and it’s circulation, years ago.

In my mind’s eye I can see the frustration when his fingers don’t grasp and hold what he’s reached for, instead seeing it fall to the floor. I can hear his sigh when he retrieves what he’s dropped and tries again. I know he’s counting those vested union hours and praying hard he can make it until then. That things are still working enough to enjoy some semblance of retirement. That these hands will continue to provide and care for a family of five, six with Auntie Amy, and two with special needs.

So I reached across the console and grabbed that hand again. I see it differently, of course. So much bigger than my own, I have come to love every thick callous and scar. I’ve seen those hands wrestle my tires and my toddlers. Move refrigerators and move me to tears holding our new babies. They’ve moved in incredible gentleness and strength and awed me in both. Those tired hands have worked hard to provide pleasure, comfort, safety and income.

And just within the last couple of years, I’ve had the great joy and privilege to see Jesus through those hands. Seen them do things they’d never done before. I’ve seen them scrape up just enough for bills and be satisfied, sit for patient hours with a pencil doing middle school homework, faithfully hold and study his Bible, fold in prayer over food and friends, placed on shoulders in comfort and serve countless brothers and sisters in Christ. I’ve watched as God has somehow made my husband’s hands even more tender, more gentle, and given them greater impact regardless of how well they function. He’s made them spiritually stronger in their physical weakness.

Oh, don’t get me wrong, in the last week alone, they’ve been required to plow, change tires, replace bearings, brakes and turn signals. They’ve worked hard cutting, scraping and lifting at work to come home and shovel out a chicken coop. They’ve brought home the bacon, figuratively and literally. They’re not done yet. I know my Lord has much more work for this servant. I also know He’ll provide the means for him to do it.

During this Christmas season of not enough time, money, patience and health, what greater gift could I ask for than to be able to rest in the loving hands of not just my Lord and Savior, but the God fearing, Jesus following hands of the husband He gave me?

Star Gazing

We live out in rural Wisconsin. It’s kind of easy for me to get caught up in some of the negatives of Midwest living.

Think subzero, hurts to breathe, snot freezes in your nose kind of winters and two week long summers.

But I’m getting better at learning to stop and appreciate the things I overlook in my hypothermia. Like the fact that our view of the night sky is unobstructed and undiluted. Unobstructed because we’re in the middle of fields and undiluted because we’re a fifteen minute drive from a gallon of milk and subsequently any “city” lights.

We’re currently experiencing our two weeks of incredibly gorgeous summer in which we have defrosted enough to turn the air conditioning on and break out the bug spray for our state bird, (the only one that survives the winter) the mosquito. We often stay up and outside as late as possible to enjoy every moment of it.

So yesterday I got to look at that beautiful night sky, not from behind iced and snow blown windows, but from the patio, reeking of “Deep Woods”.

It was magnificent.

How often do I pass a cursory glance over that expanse and only see those scattered few, bright, blessings shining down?

I sat listening to children bouncing on a trampoline, squealing with mock outrage over an overzealous sibling with a hose full of teeth chattering well water. I sat laughing, as our newly acquired (officially egg laying) chickens squawked over the commotion and ran crazy poultry circles around their coop.

And content, I gazed up. Focused in. To those bright, obvious, stars and then past them. As I panned across that sky, a thousand more came to my attention. These blessings aren’t as bright. They seem to get lost in the vastness in which they’ve been scattered, but the sheer volume of them is breathtaking.

Lord! How I overlook your blessings!

Oh, I see those that are closest at hand, that shine the brightest from here. I see the obvious food on the table, clean water from taps and roof over our heads. I see the ones that are measured biggest from my current vantage point.

But what about the others?

The ones that from here, under the heavens, appear so much smaller and less significant.

The gift of less. Is that a star, or a meteor? I can’t quite tell from here…

The gift of trial. Perhaps it’s a passing plane or satellite? Maybe if I squint…

The gift of the broken AC, water heater and car. The disability denial. The breast lump. The endless special forms that come with special needs. Certainly if I had a better vantage point, I’d see them more clearly?

And I think, someday I will. Someday I’ll look down on them from above and I can’t help but think those stars that wink so small from here, will flare brightest in light of eternity. Those blessings so much harder to distinguish living in the world will be clearest in their proximity to the Light of The World.

But some of them He shows me here. When His telescoping Spirit reveals small glimpses of what it must be like to gaze down on the twinkling blanket of blessings He’s laid over me.

Remember that lump of last month? That sure didn’t shine brightly as my biggest blessing when first I glimpsed it.

Then they told me it was precancerous. That these lesions are only found via mammography because they spread outward, instead of up, without forming a palpable lump. That I was two years from my first mammogram and if I hadn’t had that cyst that prompted the imaging, which found the lesion…..

And that cyst? It disappeared a few days after the partial mastectomy that removed all trace of the lesion with clean margins and no further treatment.

Some blessings sure shine brighter than others…. depending on my vantage point.