The Road to Calvary

The road to Calvary is paved with saints. And once every year or two I have the great privilege of traveling on it, with them, at a junction that is somehow, in God’s upside down Kingdom, as beautiful as it is difficult. And when I tell you where it is, you will have a hard time understanding how it could possibly be beautiful. And then I’ll do my best (and fail miserably) to explain via the English language something that defies my natural, earthly, understanding. But first, I think John Piper does a beautiful job explaining the merits of the Calvary road:

What a tragic waste when people turn away from the Calvary road of love and suffering. All the riches of the glory of God in Christ are on that road. All the sweetest fellowship with Jesus is there. All the treasures of assurance. All the ecstasies of joy. All the clearer sightings of eternity. All the noblest camaraderie. All the humblest affections. All the most tender acts of forgiving kindness. All the deepest discoveries of God’s Word. All the most earnest prayers. They are all on the Calvary road where Jesus walks with his people. Take up your cross and follow Jesus. On this road, and this road alone, life is Christ and death is gain. Life on every other road is wasted.


Matthew 16:24
24 Then Jesus told his disciples, “If anyone would come after me, let him deny himself and take up his cross and follow me.

Philippians 1:21
21 For to me to live is Christ, and to die is gain.

We travel on the road to Calvary via Leukodystrophy. A miss arranging of variants on strands of DNA we’ll never see, but daily feel the effects of. The approval of that miss arranging is the stuff of other posts and something I tackle one day and one fear at a time. But here, I’m seeing with eyes of reluctant acceptance through supernatural mercy and grace to the beauty of this broken road to Christ.

We step into the valley just a little afraid. It’s an actual valley in some of God’s most beautiful creation, but it’s the people in this valley (both physical and spiritual), that give me pause every year. We know we’ll see and hear and draw alongside suffering children and grieving parents whose cries echo off the walls of the valley of the shadow of death. We know we need not fear evil there. We know we need not fear death. Yet, the road through the valley is a difficult one and it is somehow more difficult not to fear the difficulty.

There are saints in the deepest depths of despair. There are always the newly diagnosed and my heart aches for them as I hear distant echoes of my own cries of, “Lord, I don’t want to. I can’t.” and, “Why?” and my own selfish heart wants to turn away so that I don’t have to re-remember those feelings but, my Lord says to weep with those who weep. There are always those anticipating grief while simultaneously trying to treasure every fading ability and earthly moment. And then those treading water in the depths of John Bunyan’s river, that last enemy of all Pilgrims, death, unable to follow their children across. And the pain in their eyes will take your breath away and make your eyes so puffy you struggle to see the good things.

But God.

Right in the middle of this valley, at a ski resort in upstate New York, through the gift of another family’s road to Calvary with a little boy named Hunter and the subsequent means of grace, Hunter’s Hope, we also get to see all the riches of the glory of God. And that few days is less like a breath of fresh air and more like breathing real air.

If the road to Calvary is where the sweetest fellowship with Jesus is, it is because it is where we seek Him most. Where we most fully relate to His suffering. And in this valley, there are people living daily in His presence. Out of necessity sometimes and out of gratitude at others; where else would they go? And like Moses returning from the mountain top, you can see it reflected on their faces.

The road to Calvary is where you learn to delight in the treasures of God’s assurances. This valley is full of people clinging to the promises of God’s presence, faithfulness, and provision. Not just for their sustenance here, but for eternity. Their hope is so firmly placed on the cross and the blood soaked sacrifice of Christ, that there is no room to hope in other things. The promise of eternity for the children of God, and their confidence in that promise, has blurred the line between the here and now and the forever and they spend their earthly lives living and loving in light of it. And they speak of it as confidently as the rest of the world speaks of tomorrow. This is the clearer sightings of eternity that Piper refers to. Their gazes are fixed on it.

“And that few days is less like a breath of fresh air and more like breathing real air.”

The camaraderie though is probably the most beautiful and life giving thing in this valley though. And I don’t say that just because I can relate to them. In this gathering of saints on the road to Calvary, gone is the frivolous and foolish. There isn’t a mention of the things of Vanity Fair. Conversations are devoid of small talk and full of big talk. The deepest talk. Words are all filtered through the Truth, and all meant to lift up, encourage, support, and point to the originator of every means of grace. And this results in the humblest of affections and the most tender acts of love and forgiveness.

This year, we saw so much of this culminate in the siblings of affected children. The way they loved and cared for each other’s siblings. The way they served each other, included each other and supported each other was nothing short of Christ likeness. Gone were the trappings of American teenagers. (I mean, as gone as they can be in a bunch of sinners, living in America.) Instead, they pushed wheel chairs, operated machines, assisted littles, spoke to those who couldn’t respond, celebrated each other’s talents and efforts (no matter how small or big they were), included the invisible, and prayed. They lead with humility and true affection and it was a beautiful reflection of what they see their brave parents and siblings do every day, as they too, endeavor to reflect Jesus on the Calvary road.

I can honestly say I’ve learned more of the character of God from these children than from any learned, able bodied adult I’ve ever met. Again, an upside down Kingdom, in our eyes. But it’s true. Some have never uttered a word in their lives, yet speak the Word of God more eloquently and boldly and loudly than anyone I’ve heard with my ears. Because their very lives speak of God’s limitless ability to redeem. To take what seems wholly bad, and use it for His glory and somehow for our good. Their lives reveal His unmatched power. Through them, He moves the mountains of politicians, laws, and hearts of the unsaved without them lifting a finger. And through the self denying care of them, He shows the world what love truly is. And for those with eyes to see, it drives them to dive deeper into His Word to understand something so contrary to the wisdom and foolishness of the world.

Then there are the prayers!! Gone are the prayers for good test scores, a great free throw, a higher paying job, a better boss, or kids that will listen and reveal our superior parenting. Not that our Father doesn’t know we want those things, even when we don’t ask. 😉 But the prayers of saints on the Calvary road are saturated with earnest pleading for more of Jesus. More of His presence. More of His peace. The grace to reflect Him to a watching world. There is a groaning and aching for Him that is other worldly, yet a confidence that they will have Him!

Even in the midst of a valley in which they can’t always see Him.

I think this quote of Spurgeon sums it up nicely.

Now, don’t hear me say that all of these saints do this Calvary road perfectly. None of us do. Like any other place, we say the wrong things. We get angry with God. We get real and with that, real sinful. We fail at hurdles and shy away from the hard things. But there is a uniting focus that drowns out the everyday of the small and unimportant and molds and shapes every thought to the big and eternal.

Calvary.

Hidden Treasure

When I was little, my dad bought a full dining room suite of furniture brand new. Solid oak, I can still remember the smell when it was first delivered to our apartment in Massachusetts. Consisting of a table, chairs, and hutch, I now wonder as an adult how exactly they managed to get it up the stairs! I think we had the table a full week before my little sister stabbed her fork into it in a fit of Italian temper and a cover for the top was ordered that would remain in place the rest of my childhood. But the hutch! That’s where the treasures are, right?

Having fallen out of fashion somewhat, perhaps this will not be as relatable to a younger generation so I’ll elaborate. The hutch, or the china cabinet if you’d like, is where all the THINGS were stored. Newly married, Hubby and I bought our first (and turns out only, because who wants to spend money on furniture?!) dining room set. We have since parted ways with our bulky hutch, but I remember loving to have somewhere to display the beautiful, impractical, matching china and somewhere to hide all of the less aesthetically pleasing, practical, pieces.

Yes, I’m going somewhere beyond memory lane here, hold tight. I also remember having a discussion once about the top shelf things in life; the things we strive for and display for all the world to see. And that conversation came flooding back to me this Sunday as I wrestled with some things. Hubby has a new job, with new days and new hours that are making family time a challenge. So in order to carve out more time, we met him at the Mall of America after work on Saturday. It’s been many years since we’ve dined and shopped at that mall and I truly wasn’t prepared for it to be an emotional experience. It’s a mall.

But as we walked out of the parking ramp and into the walkway, the changes in our life started to manifest in tangible ways. Starting with Baby Girl’s service dog. Who I realized had yet to experience an escalator. This was a fun experiment which started with carrying a thirty pound dog up the escalator and ended with waiting for a lull in foot traffic to give her a chance to examine the frightening contraption in her own time before putting her paws at risk a second time. I think we made it almost to the restaurant before I realized that Baby Girl was struggling. I knew this would be a challenge for her. Most don’t know that she had been unable to leave the house without a panic attack for almost the last two years. The dog has been a gift, and one I didn’t know we needed, until it was the thing that would set her free of home. But this was a lot of lights, a lot of sound, a lot of…. people. And it became evident pretty fast that we had pushed the envelope a little too far. We got through dinner, with the help of some medication, and did what we’ve come to do. Persevere. Make the most. Adapt. Find the good. And when we exited the restaurant, we were inundated with “good”. Have you ever taken a moment to appreciate the sheer vastness of THINGS in a mall? It doesn’t have to be the Mall of America to realize this is where all the top shelf things are. And this is where we used to get our things! I remember bringing the kids when they were little and finding the shoes with the swoosh to adorn our pride and the store with every imaginable accessory to cover and distract from any perceived imperfection, the favorite store with the actual sizes of their tiny clothes in the name to feed my vanity and the kiosks with the latest and greatest of “needed” electronics that would promise to fulfill and distract us for seconds…. all the beautiful, shiny, new, “quality”, top shelf things. And I’d like to say that I no longer found them beautiful. I’d like to say that the desire to obtain them and display them was completely gone. Burned like dross in the fire of affliction and refined to holiness that is no longer attracted to, or deceived by, excess. But alas, my flesh still wanted to reach for a few of the top shelf things.

Baby Girl, now medicated and at least able to walk with us, had no desire to enter a store. With her sensory problems, she had no desire for fun clothes or shoes. The mother/daughter shopping I had once so looked forward to will never happen. And it hurt. Oldest Son, not walking with the Lord, but at least walking with his father, was there too. And Mini Hubby brought up the rear. Literally. Often overlooked in the rest of the drama, my stellar parenting was revealed when he tried on shoes to discover the ones he’d been wearing were two and a half sizes too small. And that hurt too.

The mall closed and we left and I was happy to leave. I’d had enough of out of reach top shelf things.

Sunday was another story. Or perhaps, another shelf.

Because, praise God, our lives do not consist of top shelf things. Or at least they shouldn’t. And that was the reminder it turns out I needed.

Because the bottom shelf things are the useful things. The things hidden behind the cabinet doors are the ones we use and need the most. In our actual hutches, they’re the colanders and small appliances and hand me down kitchen tools or the big puke bowls. The things we don’t display but would miss far more than the matching gravy boat, creamer and butter dish brought out for holidays. The things that make and shape and daily form the ordinary and necessary parts of our lives. The essentials.

Sunday morning found me rummaging in that cabinet. And Pastor Mike shone a light in a back corner. Leukodystrophy is always the elephant in that cabinet of ours. The biggest, bulkiest, ugliest tool. The one we never seem able to put away for long because it’s used the most to do all that refining and shaping and molding us into Christ likeness. But back behind it in the cabinet was fear. It’s not there because it’s used less, but back there because I want it the least. It’s a pain to use. Literally. It’s ugly and heavy and I’d honestly prefer to toss it. In fact, my second greatest desire in heaven (after finally coming face to face with Jesus) is being parted with fear.

But Sunday I sat with Baby Girl’s hand in mine while her little body shook and big, fat, tears ran down both of our faces and Pastor shed light on the fear and we both picked it up and let it do its work. Because, according to him, it’s a useful thing. “Fear is an invitation…to demonstrate who I am and where I am with God. And where my trust really lies.”

And when I pulled that fear out I took a closer look. I’m afraid I’m not enough. Because I know I’m not enough. I can’t make Baby Girl comfortable. I can’t make her independent. I can’t make her life what I wanted it to be. I can’t save Oldest Son. I can’t undo damage done. I can’t even keep track of shoe sizes for the easy one. I fear falling short. I know all of us fall short of the glory of God, but I fear falling short of the finish line. Not running the race well. Not ever hearing those blessed words, “Well done, good and faithful servant”.

So where does the fear demonstrate I am? In utter and total dependence on my God. The kind of dependence that keeps me on my knees, far out of reach of the top shelf things. The kind of dependence that means I need Him not just for my daily bread, my sustenance, but for every breath I breathe. The kind of dependence that means I’m painfully and blessedly aware that I can’t finish well without Him. The kind of dependence that absolutely requires that I think about and praise Him, moment by moment, for the ways He has blessed us in and through the bottom shelf things.

And so I discovered, the hidden treasure, buried in the back on the bottom shelf, is a very useful tool…. this ugly fear.

Then, Baby Girl and I held hands and cried and prayed some more and I looked up…to find a different kind of hidden treasure. And with that, a sweet reminder to put the fear away once it’s done its work, thank God for His countless blessings and sustaining grace…and laugh.

Honestly, hidden treasure is often the last place one would expect…

No More I’m Sorry’s

I seem to spend more time reflecting on eternity when I reflect on the passing of time. And I am more aware of the passing of time when I’m approaching a birthday. In this case, mine.

Most people who know me, know that it bothers me when people detest aging and even more when they detest the aged. I spend enough time with people who celebrate their children’s birthdays by the month to think of more time with loved ones as anything but a good thing. Enough time praying my children into adulthood not to appreciate every wrinkle and every grey hair signaling my own. Enough time trying to glean wisdom from the aged to think of their time as anything but a treasure.

Yet, as much as I appreciate and value the moments here and desire to fulfill the responsibilities set before me (especially those responsibilities related to my family), an enormous part of me longs for my true home. At times I feel like this is contradictory and I sympathize with and understand better what the apostle Paul meant when he said, “To live is Christ, but to die is gain.”

To be here, enjoying the good gifts my Father has given me here, and to take seriously the ministry He has set before me is a beautiful thing and not something to desire ending prematurely. But to die, if that is gain, what can that mean?! If it’s to gain, it has to mean that it is better than anything here. That it would, in no way, be a loss. It would mean there is no need for a “bucket list”, no need to do all the things and see all the things before time “runs out”. Because that would somehow imply that the room our Lord prepared for us in our Father’s house is somehow “less than” what we have here. Wouldn’t it?

So, if I war within myself on the subject of death and eternity, how then does one explain it to an eight year old? Mini Hubby, as usual, has had big things going on in his little, developing mind. He knows that we are promised no more pain and no more suffering. But lately, that has not been enough to stop his fear of death and an unknown/unseen place.

No problem, as a director of Children’s Ministry, I’ve totally got this. Hopefully.

We made a list of what we think heaven would not have if there was no more pain and no more suffering. Not necessarily in order of importance.

  • No puke
  • No blood
  • No hunger
  • No thirst
  • No bee stings
  • No mosquito bites
  • No stubbed toes
  • No COVID
  • No rust
  • No hang nails
  • No cancer
  • No car accidents
  • No doctors
  • No lawyers
  • No prisons

(I’ll admit to not thinking about those last three until we were brainstorming. Fascinating.)

But, simply the absence of pain and suffering was still not enough to relieve his fear. So, I suggested we make a list of what we think it might feel like to be there. This time we did it separately. This is mine:

Rainbows! Sunrises and sunsets that can’t be duplicated by man. The smell of freshly mowed grass, baking bread and salty wind off the ocean and into your face. The breath stealing moment of awe at the power in Niagra Falls or the carving of the Grand Canyon. Your hand in grandpa’s. Warm feet digging into cool sand. Sliding into fresh bedding after a hard day. The smell of grandma’s house. Hot chocolate in the cold. That moment when you exchange the rings, hold the baby and cheer for the victory. Reunions. Happy tears. Oh, Lord! That too brief moment of worship in Spirit and truth. When the world melts away, time ceases to exist, and you’re in full communion with the One who made you. For a few seconds. As close as you’ll be this side of eternity. Breathtaking. All of the best things about this world all at once.

Now, Mini Hubby will do most anything to get out of writing. So, his thoughts could be seen as a reflection of his aversion to a pencil, or, they could be further proof of what I’ve experienced with children time and time again…

Child like faith. With less exposure to this world, they seem far less tethered to it than we are. It just seems to make it all less complicated to them.

He wrote simply:

Jesus. No more I’m sorry’s.

And with that, my eight year old grasped heaven with both his sweet little hands. Because heaven includes our sin washing, heart renewing, saint shepherding Jesus, we will not enter with our sin. Nor will anyone else who has trusted in Him. We will no longer hurt others and they will no longer hurt us. And I just can’t imagine a better feeling combination than the presence of our Savior and the absence of our shame. Especially in the hurting, fallen world we currently inhabit.

So, did I help Mini Hubby with his fear of death and the unknown heaven? I’m not sure. Time will tell. But, I know he sure clarified things for me.

And I just can’t imagine a better feeling combination than the presence of our Savior and the absence of our shame.

Or, no more “I’m Sorry” ‘s

“He has adorned you with the gift of grace and adopted you as His child.He has given you His own Word to educate you for heaven; He has opened your eyes so that now you see. By His grace and your cooperation, your soul will gradually develop into a more perfect resemblance to Him. Finally, your heavenly Father calls you home where you will see the angels and saints clothed with the beauty of Christ Himself, standing around His throne and hearing the word that will admit you into their society: Well done, thou good and faithful slave; . . . enter thou into the joy of thy lord (Matthew 25:21).” D.L. Moody, Heaven

For my birthday I’m fundraising for some of those families that celebrate their children’s birthdays by the month. Join me here:

https://www.facebook.com/donate/286126489718958/?fundraiser_source=external_url

Rock of Ages

Maybe it’s because we’ve just experienced the longest stretch of sub zero temperatures in almost a century, or maybe it’s because of all of the Facebook posts of people’s warm climate escapes, but I dreamed of an ocean last night.

Knee deep in calm, blue waters the ebb and flow gave little relief from the glaring sun. At that depth, the water was more like bath water. It was a new to me beach though and I’d spent a considerable amount of time trying to decide if there were any dangers below the surface. Behind me, there were a group of children using drift wood to examine a washed up jelly fish and I was keeping an eye out for any of it’s more fortunate mates. I had no idea where along this coast we were. Could it be shark season here? There were many people, far less cautious than I, that had entered these waters at the same time as I had and were now enjoying their relief from the heat, dipping below the surface and swimming in cooler water further out.

But there I stood, searching for unknown dangers, studying the water and what lay below the surface and looking longingly at the playful couples splashing in the distance. Distracted by all of the noise behind me, I glanced back to see a boardwalk full of people and a beach packed with blankets, umbrellas and countless families. There was volleyball playing, sand castle making, sun bathing and shell hunting. Shops crammed full of souvenirs destined for the landfill were teeming with customers in tiny bikinis and giant jewelry. The smell of fried food from several food booths mixed with the salt in the air and my own sun screen. Every time I looked longingly back out across the ocean, uncomfortable in the heat, my attention was drawn back to the commotion on the shore. So I stood in the in between. Not quite in, and not quite out.

That’s when I heard it. You’ve probably heard it before too. The “Oceans” song. If I closed my eyes I could hear it more clearly…

“You call me out upon the waters
The great unknown where feet may fail
And there I find You in the mystery
In oceans deep my faith will stand”

And there I stood, worried that venturing further, my feet would fail. Certain that my faith would. But drawn none the less. So I stood still and sang along.


“I will call upon Your Name
And keep my eyes above the waves
When oceans rise
My soul will rest in Your embrace
For I am Yours and You are mine”

That’s when it happened. Looking down, I watched as the water pulled back as if Someone had pulled out a giant plug somewhere out in the great unknown. Suddenly, all people and their accompanying sound disappeared with the water and I was left with a foreboding empty silence. The sand beneath my feet had been drawn along with the water and I watched the ground hollow beneath me. My heart raced as my gaze lengthened to the sea bed in front of me. A myriad of things revealed in the stripping of the sea. Some beautiful, some ugly. I stood exposed, alone, in the quiet open. Waiting. And then I heard it. A roar of rushing water. Louder than anything I’d ever heard. I looked up in time to be enveloped by the wall of returning sea. The wave that slammed me into the Rock of Ages.


“Your grace abounds in deepest waters
Your sovereign hand will be my guide
Where feet may fail and fear surrounds me
You’ve never failed and You won’t start now”

And there was incredible fear. Floundering, there was no place for my feet. No up or down, no left or right. No air in my lungs. No solid ground. No foothold.


“Spirit lead me where my trust is without borders
Let me walk upon the waters
Wherever You would call me
Take me deeper than my feet could ever wander
And my faith will be made stronger
In the presence of my Savior”

I vaguely remembered hearing and singing along to the song. If only I’d known what it might look like when I’d asked to be taken deeper! Would I have sung along? Would I have asked for faith without borders?


“I will call upon Your Name
Keep my eyes above the waves
My soul will rest in Your embrace
I am Yours and You are mine”

Then there was a letting go. Not a giving up, but a giving in. I once again closed my eyes and heard You call. But this time, I called back.

Wherever You call me, Lord.

Then I woke up. To the quiet peace around me and in me. Grateful to keep my eyes above the waves, I was reminded of my favorite Charles Spurgeon quote:

“I have learned to kiss the wave that throws me against the Rock of Ages.”

I don’t know that I’ve learned to “kiss” the wave of special needs children. I still pray earnestly for healing. But I’ve certainly learned to be grateful for it, and what it has accomplished. I am far less distracted by the people and the commotion on the shore. Lord knows it has never been more ridiculous and frivolous than it is now. The things of the world still appeal, but don’t pull like they used to. I’ve seen them fade in comparison to the eternal. I am no longer terrified of the unknown. I’ve seen what lies beneath the surface and experienced the grace hidden there. I am no longer standing in the in between and there are others that are “all in” beside me. Now we collectively beckon to those stuck in the in between. We help each other on the long days when the persevering is hard and celebrate all the victories in between. On the hard days I’m content to wade in the deep waters surrounded by these brothers and sisters and on good days… I’m walking upon the water with my Savior and there is no earthly joy that can compare.

Who needs a warm weather destination anyway? This morning, I just spent a little longer snuggled into blankets and basking in the warmth of God’s promises. I will, however, still need a coat today.

Good Gifts

There is something special about being seven that makes my kids believe in magical things. Each one at that age has sprung a last minute Santa list on us that has included the impossible. Mixed in with Oldest son’s requests for a myriad of Pokemon and pasta was a request for his baby sister not to cry. Baby Girl, in the throws of her only girl-like obsession, handed over a one item list on Christmas Eve for Pixie Dust. This year, Mini Hubby asked for a turtle, knowing full well that mom does not allow any critters in the house that don’t have fur. There must be something about being seven that makes one willing to ask for the impossible.

The funny thing is, even though none of my seven year olds got what they wanted, they all loved everything they ended up getting. Watching Mini Hubby open his Lego gifts and spend an entire day putting together several Super Mario courses with a joy only surpassed by his focus made me think about the many things I’ve asked for, and not received. And how good it has been.

I don’t know about you, but somewhere along the way my Heavenly Father not only took my entire list of requests but also much of what I’d thanked Him for, and gave me something drastically different. I handled it with far less resilience than my seven year old children. I had this beautiful picture in my head and heart in which we were a successful, healthy, family of six. You know, comfortable home, sizeable savings account, honor roll students, good life insurance, new cars, weekend sports tournaments, warm destination vacations, promotions, the occasional cold and basically, nothing we couldn’t handle. On our own.

There was the problem, wasn’t it? My Father only gives good gifts. And a good gift does not include one that leaves me unaware of my daily, moment by moment need for Him. So, He mercifully gave me what I needed. Only, at the time, it didn’t feel like mercy. Children with a genetic disorder and the financial devastation that comes with a medical crisis felt more like crushing disappointment and pain than grace. Less like a gift and more like punishment.

A good gift includes something that makes me more into the image of my good Savior and less into the image of what the world defines as good.

So, sitting and watching my family open Christmas gifts this year I was overwhelmed with the good gifts I’ve been given. Some days, I still don’t want them, but by His grace, most days I am at least grateful for them. Grateful for the way Hubby and I are learning to plan for the future, but live in the grace for today. Grateful for the need to wake every day and surrender my family to the One who loves them more than I do. Grateful that He has not only used every one of our hard gifts to show us how loving and faithful and kind He is, but also to show us how everything else we’ve desired in this world pales in comparison to Him.

Today I’m thinking about you all. I’m thinking about how so many of you have gotten hard gifts this year. I’m praying that someday soon you will be able to stop grieving the gift you wanted, but didn’t get. I’m praying that you will be able to see, although dimly, how the gift you have is being used (If you are Christ’s) for your ultimate good and God’s glory. I’m praying for your perseverance in the hard things, but I’m also praying that you will find joy in the gift you didn’t ask for. Though 2020, for many, has been much more like walking on Legos than getting the coveted pet turtle, I’m praying 2021 will find everyone picking up all the sharp pieces and discovering what our Lord intends us to make with them with the same intense focus and joy as a seven year old that believes in the impossible.

Merry Christmas!!

James 1:17 Every good thing given and every perfect gift is from above, coming down from the Father of lights, with whom there is no variation or shifting shadow.

Matthew 7:11

If you then, being evil, know how to give good gifts to your children, how much more will your Father who is in heaven give what is good to those who ask Him!

The lumpy, bumpy road…

This road we’re on sure has a lot of stones in it. The narrow path can be hard to navigate. Trying not to fall to the left or the right is tough when this road less traveled never seems to stay straight. Instead, we’re full steam ahead on a journey that has more twists and turns than the county fair roller coaster. I heard someone say once that if you’re bored as a Christian, you’re not doing it right. If there is any Truth to that, I have to believe we’re really rocking this following Jesus thing.

But the really cool thing I’m finding about maturity is that my reflexes have greatly improved. Usually, at a new bump or bend at break neck speed, I start with crying out. Right away I know to approach the One Whose stamp of approval has been placed on this detour. I occasionally start with the “Why me”, followed by (a little bit whiney), “What is it about me that requires THIS much correction?” Or maybe “What am I NOT learning?” and sometimes, “How long, Lord?”. This is a much quicker stop than it used to be. Because, well, reflexes. Muscle memory? Practice?

Next, I move on to remembering. Because when I’m nervous or scared or just plain tired, I know that I fail to practice some basic safety measures like looking in the rearview mirrors. Looking at where I’ve been reminds me of how I’ve gotten through, and Who is always traveling WITH me. Over every rough patch, through every close call, I can find strength in remembering that those situations seemed precarious at the time too, so surely there is hope yet for this one.

Then I slow down and remember to check those side mirrors and watch my blind spots. Because, in remembering, I’m reminded that this is when the enemy delights in trying to destroy. Destroy my peace, destroy my calm and destroy my deep breathing exercises. A bit of defensive driving here is absolutely crucial. I grab hold of that manual, that map, that Word of God and speak Truth to myself where lies threaten to sneak up on me.

This last couple of weeks I had some difficulty navigating. We hit a few bumps. The A/C went out in my van. Which isn’t such a big deal unless you have a kiddo that doesn’t regulate their body temperature well. Then, there’s the water heater that suddenly quits. And in the midst of a cold shower, another bump. Or rather, a lump.

In my breast.

And if any of you have experienced this kind of bump in your road, you may know the kind of road I traveled this week. It took a twist at the ultrasound, after the mammogram, when the radiologist ordered the core needle biopsy. Though I’d been in regular prayer over all our bumps lately, I will admit that the big medical words like radial scar and inter ductal carcinoma had me doing more of what would be considered, praying continuously.

I prayed continuously as they prepped for biopsy. I prayed continuously when that room looked more like a crime scene than an exam room. I prayed continuously that I would not lose my lunch, that I would remain conscious, and that they would finish soon. And as it was all over, I prayed for wisdom for the staff that would interpret the results.

Curled up with a couple of ice packs that evening I was still praying. My busy mind in direct contrast to the stillness of my living room, I made a familiar stop at “Why me”. Because I was feeling a bit…. afflicted.

Why us? Why finances? Why always medical problems? Why SO HARD? Why can’t we have “those” problems instead? You know, the ones those other people have? How much longer, Lord? And this whole pity party collided with gratitude for a Father that tolerates the questions of His struggling children.

So I finished my devotional. I finished my daily reading and I prayed for the ability to hand it all over to Him. For a peace that surpasses circumstances. Because I knew He could provide it, I turned off all the lights and crawled into bed.

When Psalm 41 flashed insistent through my head.

I don’t know Psalm 41. Is that in the first book, or the second? I’ll look tomorrow.

I tossed, turned, fluffed and got back up to take some more Motrin. Then tried again.

Lord, I know You already know those biopsy results and You’re already ahead of our every need. Please help me remember that and rest in You.

Psalm 41

1, 2 & 3…

That seemed rather specific so I picked up my phone and looked it up quickly on Blue Letter Bible.

Psalm 41
Blessed are those who have regard for the weak;
the Lord delivers them in times of trouble.
2 The Lord protects and preserves them—
they are counted among the blessed in the land—
he does not give them over to the desire of their foes.
3 The Lord sustains them on their sickbed
and restores them from their bed of illness.

Giggling and crying, because that’s how I roll when the Creator of the universe lowers Himself to not only hear my prayer, but whispers comfort in illuminated text. I shut my phone off and went to bed. And slept.

The air conditioning is still broken, the water heater still needs to be replaced and biopsy confirmed what’s called a radial scar. Benign, it should require no treatment, but will at least need to be removed.

But I have it on good authority that we are being protected and preserved and we will be delivered in our times of trouble. Not to mention being sustained and restored. I’m feeling far more peace about the road we’re on.

Twice Saved

I met her twenty years ago, before either of us had met Jesus. Back then she sat in her recliner opposite the matching one her husband occupied, wearing what I would come to recognize as her typical uniform of worn out flannel and faded sweatpants. Hair cropped short and not a stitch of artificial color on it, or her face, she sported twenty year old glasses and a deep, rough, smokers laugh as she told stories of hunting and “mudding” and cleaning fish with her bare teeth. Okay, I made up the last part about her teeth, but she definitely cleaned her own fish, along with anyone else’s. She was “butch” before being butch was cool. She fascinated and scared me in equal measures…and I was dating her son.

Over the next several years, we’d shop together, eat together, smoke together and laugh together. Turned out she wasn’t as scary as she seemed and neither was her son. I married him and gained her.

She liked to tease that she liked me better than him and that there were no refunds, he was mine for good. But she’d prove over and over again that she loved us both the same. She called me her daughter, and he was still her son. She’ll always be my Mom.

We built our home, and our family, right next door to this lady with the men’s size 10 feet. And those feet would regularly make the trek between the houses for awhile. Three grandkids would soften and delight that rough around the edges lady in ways I hadn’t seen coming. They’d light up her face and dull her colorful vocabulary.

Until those work damaged arms screamed loud for pain meds. And the doctors gave them.

And then gave more.

Until that hard working, hard loving, hard living Mom stayed put in that worn out recliner for years. Barely recognizable, she stopped working, stopped loving and stopped living. Sometimes only awake for a few hours a day.

We thought we lost her for good then. That generous lady that sent diaper coupons to distant nieces and nephews starting their own families, dozens of bottles of baby soap and lotion to the ones that were close, paper plates and napkins for every family get together and cards to everyone for every occasion.

Then, just when we were grieving our own personal tragedy…she met Jesus.

Now, when a person taking enough oxycontin to bring down a horse tells you they’ve been talking to Jesus, you don’t take them too serious like. You start believing that this is about to be another personal tragedy. And you start crying out to your own personal Jesus (the One that tends to speak to you through His Word, in your prayer closet, not in the flesh) for some relief.

That’s when it happened. It turned out her Jesus and our Jesus were the same and He told her to dump out her pain medication, that she didn’t need it anymore. So she did.

Because Jesus can reach you even in a drug induced fog and when He tells you to do something….you do it.

Twenty years of narcotic use fell away like as many chains, gone as quickly as those pills skittered and slid to the bottom of the garbage can. And those doctors that gave them to her? Kept her for three days to witness a miracle by the Great Physician. No withdrawal, no pain. Until they finally said they had no reason to keep her and no medical explanation for what just took place.

Her miracle wasn’t without some consequences though. Twenty years of increased doses did some damage to both brain and body but for the next two years she learned to live and love hard again and we enjoyed every minute of learning to live with, and love her, back.

She played BINGO, returned to competitive shooting, watched middle school orchestra concerts and elementary school programs. She went to movies, the town fair (complete with kiddie rides), filled grandkids full of junk food and ice cream, and even learned how to use a debit card. She laughed, and played, and even though she might not have had the capacity to read and study the Bible, I absolutely believe she knew and trusted Jesus as her Lord and Savior.

In fact, she’d tell you He saved her twice.

Today, my greedy, selfish, heart is a little disappointed it doesn’t appear that He’s going to save her a third.

I’m grieving the pending loss of our Mom and Grammy from this world while trying to remember to be grateful for the gift she was. Trying to thank Him for giving her back to us once, long enough to soak up her silly personality and sweet generosity at a time we desperately needed both.

Praising a loving Savior powerful enough to save us from both the grave, and the chains that bind us here.

Rejoicing in the knowledge that no matter what, we will meet again, in heaven.

Hand In Hand

Twenty years ago our paths intersected somewhere the other side of Early Adulthood and there was something attractive in the easy, confident, way you walked. Even if I left a safe, observable distance between us for a bit. Eventually though, your persistence closed the gap and we stepped out together hand in hand for the first time. Hearts and fingers tentatively entwined and overlapping. Questioning, sideways glances through lowered lashes revealed a contrast of broad, safe shoulders, thick, strong forearms, but genuine, kind blue eyes and gentle smile. Always smiling. How does a girl resist a combination like that? A girl whose road up until that point had been a little dangerous and lonely?

We continued into a new territory, Together, me and you. Though I’ll admit my focus was most often on you, I was quite amazed at all the new things I could see. With you beside me. Shadows weren’t so long or menacing and you taught me to jump over puddles and sidestep hazards, smiling all the way. Before I knew it, I had almost stopped looking back over my shoulder and was learning to live facing forward.

This next leg of our journey, though, brought us into Commitment and required a quick jump over a broom. Youth shiny new and dressed in finery we glowed and holding hands, made the leap and the promise to stay the course together, forever.

Then, holding our forever hands with new joy and confidence we continued on. The whole world seemed to open up, spacious, in front of us. Oh, how beautiful those days were! The way the sun shone on Possibility in the distance and all sorts of lovely trails appeared as we checked the map. We spent hours wandering along the way, discussing and deciding which one to choose. There were a couple of rough patches (much easier to navigate together) in the beginning then, but nothing that slowed our progress.

Feeling like we could conquer, together, any path we chose, we went for what appeared the most challenging. We took a deep breath and passed the sign welcoming us to Parenthood. Things sure speed up a lot then. Sometimes I wondered why there wasn’t a better description on the map, or more warning signs at the entrance, for it sometimes felt like we’d picked the diamond run as amateurs. But for the most part, we navigated all of the obstacles “Dirty Diaper Ditch”, “Pacifier Pass”, “Sleepless Slide” and several “Trust Falls” together. The going was tough, but the rewards were great and we emerged on the other end with three precious people we’d been entrusted with for the rest of our journey. They’re loud, expensive and exhausting but we found they definitely make the trip more beautiful.

Checking our map again, we realized our choice to visit Parenthood limited our next steps briefly and the terrain looked slightly more winding and definitely slower going (as we’d come out with more baggage than we’d thought). Given our three extra hands to hold, we decided to stay awhile next to Family Forge and focused on raising up and providing for our pack of five. We settled in and made plans for “after”. For when they finished school, chose paths of their own and found someone to travel with. We worked, saved, spent, planned and enjoyed the time and things we amassed here.

Looking out across the hills one day we watched storms gather menacing in the distance. We’d been relatively protected from extreme conditions in that forge but as soon as I saw that horizon turn purple, the little hairs on my arms stood up and I glanced at you scared, waiting.

Giving my hand a quick squeeze, you didn’t smile, but turned away and set to work. This time though, the broad shoulders and work rough hands were no match for the approaching storm. We sold what we could, searched high and low for shelter, to no avail. As the forge flooded and filled we held on to each other for dear life and even though we still had each other, we were tossed so violently to and fro we could barely keep our heads above water. Terrified, my foot brushed up soft against an Anchor. I’d picked it up a few years before, had moved it into our home and had been studying it when time allowed as it seemed to lend a constant, quiet comfort. That moment though, it seemed to come alive and hold me fast. The storm didn’t cease it’s battering, but held firm by the Anchor I was able to once again grab your hand and those of the children.

The waters receded, we caught our breath, but we’d be forever changed. You kept on moving, working, fixing, taking on anything you could to restore what we’d had, to forget about the change of the landscape as if by sheer force of will you could move the mountains that had shifted directly onto our path. We often held hands in the quiet, without words. You with the weight of us on your shoulders and me with my gaze on those mountains. Exhausted, we had no idea what to do or which way to go next. Gone seemed our confidence and definitely our joy.

But during the clean up. Sifting through the debris, I kept resting on the Anchor. The workload for the days seemed unchanged, the mountains remained immovable, the horizon still tinged grey, but there was always the promises of the Anchor to hold me fast. In those promises I found the joy I thought carried away. And it remained, regardless of circumstances.

I’ll never forget the day you tripped on that Anchor. The way you wrestled with it for days.

You didn’t need the Anchor.

It was enough that it was in our house…right?

But that load you were carrying left you too worn out to fight it for any longer. Led to the Word to study the Anchor of our souls, the Creator of our mountains immovable and the love of our Savior, you invited Him in. Into your heart, into our home and into our marriage.

We’re working our way now, hand in hand, following Christ, around our mountains. Sometimes hand in hand is through tears. Sometimes it’s through laughter. But still together. Always thankful. Because now we both know our final destination (even if we don’t know what will happen in between), that we’re never alone, and our God is bigger than any mountain we come up against.

A couple weeks ago you insisted we jump over that broom hand in hand again. Renewing former promises and making a few more that are meant to last the rest of our journey together and acknowledging the source of the love that has, and will continue, to sustain us along the way.

Blessed to make this journey hand in hand, with you, Hubby.

The Other Mothers

This mother’s day is a bit different than the past four. In a good way. Or a mostly good way. It started a few days ago when Oldest Son and Baby Girl had their latest appointment in neurology.

Neurology hasn’t been my favorite. This place of MRI’s, EEG’s, spinal taps, bloodwork and few answers but more questions makes my heart race nervous in the parking ramp. That day though, kids touched noses, hopped on one foot and images stayed the SAME. This momma breathed deep, exhaled grateful and smiled to her eyes for holding steady. Steady hands, steady legs and steady labs. This momma stayed up late overflowing grateful. And guilty. Heart rejoicing and heart weeping. Oh, she sang praises on the floor of her closet, wrapped warm in undeserved grace. Then prayed hard for the other mothers.

All of this mothering is hard. SO hard. But there is some mothering that hurts more than others.

The kind of mothering that happens when you lose a child to mother. I saw that this week. Prayed for that momma and hurt for that momma as she stood in front of a school she no longer had a child at. What does one do when you have a lifetime of love for that child and the lifetime is far too short?

The kind of mothering that happens when a child goes their own dangerous way. Prayed for one of those beautiful mommas this week too as she watches and prays and waits. Waits for that child’s saving, fully aware that she can’t be the one to do it.

The kind of mothering that happens when one does all the things to be a mother, but hasn’t been given the gift of the child. I prayed for one of these precious ladies too. For she has helped mother my own babies. Will continue to pray that she understands the beauty of mothering whatever children God gives you, no matter what that looks like.

And finally, the kind of mothering that happens with a special needs child. These other mothers weighed heavy on my heart this week. Because not all of them get to hear good, steady, news.

These other mothers stare fiercely brave into the hardest things. Things they won’t tell you. But I will. So you can pray for them too.

Their sleepless nights last far longer than those infant years. These warrior mothers navigate hospital halls, insurance denials, government paperwork and medical equipment. Always advocating, always fighting. They have grieved a diagnosis, mourned a prognosis. And if it’s a degenerative condition, they’ll grieve the loss of each ability, one by one, over and over again. And at the end of their hard days, their want to give up days, they might break a little knowing the only break they’ll get is when their heart breaks.

Or, they don’t have a diagnosis at all. Oh, I’m hurting for these other mothers too this week. You see, our diagnosis is CTX. And after years of research, I know about all the mommas before me that knew something was wrong. That did all the things to find the answers. And lost their babies before they found out what they were. I also know that there are likely hundreds of mommas out there right now, praying for this diagnosis and might not get it in time.

You see, I know I’m the momma that’s had a few hard years. But I’m also the one that gets the diagnosis, the treatment, the good doctors and the steady news.

So this Mother’s Day, I’m rejoicing and grateful for good news. And I’m praying for all the other mothers. That they know The Good News. That they find their rest in the only One who can give it to them. And that they know that there are mommas praying for the comfort and strength they need to persevere.

Light Glorious Light

Maybe it’s being immersed in a frigid Midwest winter. Or maybe it’s being a couple of weeks into our current series, Life Giving Light, at church in which we’re walking through the book of John. But as the snow piles up in subzero weather outside, I’m spending a great deal of time inside, thinking of light. The physical need for it, the Creator of it, artificial sources of it, the absence of it, and the reflection of it.

It’s a mix of sleet and snow which will undoubtedly wreak havoc on morning commutes, weigh heavy on power lines, and lay sheet-like on windshields. Scattered, wet, remnants of snowman construction and snow angel creation are littered in the entry and no matter how many times I try to get them to remove their boots before they hit my hard wood floors, dry socks will meet cold puddles at least a couple of times tonight. Rosy cheeks and running noses are now bundled into jammies and watching a movie snuggled on the couch. The overworked, tired, “builder special” dishwasher struggles loudly through another cycle and I can hear the jet engine spinning of the last load of laundry for the day. I, myself, am on the laptop checking things off of a never ending Mom list. As I pay the electric bill I glance up at the wildly blinking, multi colored Christmas tree, the several other strands of lights throughout the kitchen, and the crazy “light show” projection light the kids were sure our house needed. I wonder if they’d notice if I unplugged a couple?

The lights flicker, hum low, and go out. The TV shuts off and all of the noise comes to a sudden halt. And, because my laptop is almost as old as the dishwasher and needs to be plugged in, it shuts off as well. Plunged into quiet darkness, my pulse quickens as I reassure the kids it’s okay. To sit still while I find a candle. Eyes unaccustomed to total darkness, the room seems distorted and things much further away or closer than I thought. My stocking foot finds a wet puddle and I know I must be getting close to the table. I fumble to light the decorative Christmas candle. christmas-candle2

It sputters, spits and flickers bright, mellowing to a soft glow that reaches every corner of the room. Relieved faces smile back at me. And we start a puzzle.

I’ve written a lot about my experiences in the dark, and God’s incredible love and grace that shone through the haze of suffering to literally pull me free of it. There is truly nothing more beautiful than His saving light. Sometimes I mourn the years I didn’t see it. How many things did I miss? Opportunities to see His glory? Sitting in the dark, illuminated by a single light and distracted by no others, I realized.

What if I couldn’t see The Light, for the light? Bear with me here. I spent thirty years blinded by artificial light. Think about it. We live in a place of distraction and we’re attracted to bright, shiny, pretty, fun, things.

I can give you a list of mine. Family, money, career, house, cars, vacations, nail salons, restaurants, clothes with tags, shoes with boxes, shopping carts, “perfect” family photos, etc. Things that, plastered all over billboards and websites, shone bright, flashed joy, and fizzled out soon after. Now, don’t get me wrong, I still like pretty things. I am about as “girly” as a girl can get. I have not given away my marbles in exchange for new sight, I will joyfully accept a pedicure any day of the week. What I’m saying though is, these things kept me from seeing that One source of light that would truly bring me joy. The down to my pedicured toes kind. The eternal kind.

Now, here’s the hard part. For me, I did not fully embrace His light until it was the only one left. Until, enveloped in cloying, hopeless darkness, there was nothing I could do to bring myself joy. I couldn’t buy any, I couldn’t eat any, I couldn’t see any.

matches-lightThen there was that beautiful, merciful light….It sputtered, spit and flickered bright, mellowed to a soft glow and reached every part of my heart. Since then, I’ve noticed three things. How incredibly void of true light this world is. How incredibly beautiful that makes every small reflection of God’s glory shining through. And just how desperately I need that grace and joy filled light to live.

Every act of kindness, every gift of generosity, every reconciled relationship, every laying down of self. Whenever I catch a glimpse of His light my heart warms, my eyes spill, and I know a familiar joy. Whenever I am blessed by that joy, I want to reflect that light. What a beautiful design.

What if we were such a bright reflection of God’s glory everyone could see it? Even past all of the artificial light we are bombarded with?