For this child I have prayed

As a young child I longed to know that there was someone in control. My little heart cried out for comfort, security and protection.

When I got a little older I heard mention of God. Surely He would set right a world that didn’t make sense? Small hands asked for big things. That didn’t happen.

With the certainty and independence of adolescence I had decided that God must not exist after all. Convinced my circumstances proved me right, I stopped praying, crying, or hoping for change. I was on my own and it would be up to me to obtain what I so longed for.

It would be years before I cried again. Still longer for me to hope in someone other than myself. And a marriage, a toddler, and another pregnancy before I would pray again.

Twelve weeks into the pregnancy of our daughter I finally waded out of nausea and exhaustion to lunch with a friend. Pale, weary, and chasing a toddler, I was excited for some adult conversation and food that would stay, hopefully, down. Timidly finishing my lunch I scrambled to get our toddler son to the bathroom in time. After our third round of hand drying with the very entertaining blow dryer, I stood up and knew something was wrong. A quick check confirmed my fear. I was bleeding. Too much.

Heart sinking, hands shaking, I ushered our oldest back to the table and tried to bravely tell my friend I needed to get to the doctor. Thankfully, she took charge. All calm, reassuring and full of reason she told me to go right there, she’d meet me. Call Hubby and she’d watch the oldest until he got there. On auto pilot, I followed directions and shortly thereafter found myself in an exam room hearing the doctor echo my thoughts. Too much blood.

Sent to the hospital for an ultrasound I waited barely breathing to see the life still breathing inside of me. There it was! The tiny flutter of a bravely beating heart. Exhaling, my own started to beat again. Tears streaming down my face, I watched her bounce around oblivious to the turmoil she was causing outside. The technician did a thorough check and I was told “the pregnancy is still viable”. What she meant to say was, my baby was still alive. I needed to go home and rest and return the next day to check again. To call if anything changed.

As I laid in bed I prayed.

God, please don’t take her from me! I already love her!

For I knew she was a girl from the first.

Then I begged.

God, I don’t care if there’s something wrong, I don’t care if I need to spend the next six months in bed. Please let me hold her in my arms!

Finally, I bargained.

God, I know I’ve complained of the discomforts of early pregnancy but I will never do it again! She is worth every lost meal and I will be so much more grateful for the gift of her! Truly, every little flutter and bump of her exploring has been pure joy! Even when I’m laying on the bathroom floor. Please don’t take her away….

The next several weeks I rejoiced as the bleeding stopped, blood work came back fine and every ultrasound showed her contentedly growing, nestled in my womb. I thanked God, praising Him for His kindness and mercy.

Then, when given the gift of holding her in my arms, my heart overflowed with gratitude. This perfect tiny girl with the delicately arched eyebrows, pouty lips, and beautiful blue searching eyes was my miracle. My answer to prayer.

Several years later, I was still praying. Growing in my relationship with Christ when I found out that little miracle wasn’t perfect after all. How could He give me a healthy child, let me believe all these years that He answered my desperate prayers, and then just pull the rug out from under me? Betrayed and heartbroken, instead of turning away again I would fire off these questions, waiting for His answer.

And it came. Gentle like a whisper at the hairs on my forehead.

This IS the child for which you prayed.

Soft as a caress on the side of my damp cheek.

I formed her in your womb.download-5

Slowly, so that I’d understand.

I know every hair on her precious head. images-33

This child is still my answer to prayer. The same one He placed in my womb, the one I prayed to hold, the one He gave me.images-34

Through this child He’s answered so many prayers I thought had gone unanswered. For through her, He called me to Him. And through my journey with her, has taught me comfort, safety and security can only be found in Him.

So, for this child, my perfect answer to prayer, I will continue to pray.

When I see beyond me

I was barely five years old and I can still clearly see her standing in that old farm house kitchen. My Mom was all sharp angles and over processed 80’s bleach blonde hair. She was turned towards the wall where the worn out rotary phone hung. One hand with glossy red fingertips worrying the cord stretched and kinked from years of users trying to gain privacy and the other clutching the receiver and the ever present Misty. Even before she glanced over her shoulder with the miserable, apologetic eyes saturated in tears I knew something was wrong. I was already in the process of trying to hustle my four year old sister into the other room. Maybe it was the still clear memories of the past year or so, or maybe it was a carefully honed survival skill but I could usually sense trouble with just enough time to make a swift exit.

Over thirty years ago and I can hear the tinkle of the bell on the door of the local Ben Franklin the next day. In case you didn’t know, Ben Franklins were the Midwest’s small town one stop shop back then. We passed the register, aisles of fabric and yarn, and racks of clothes to the very back of the store. Down a slight incline and past the reaches of sunlight streaming from the front windows, it smelled of musty old carpeting and even older building. But, it housed tall shelves lighted by flickering fluorescent lights and full of toys! Instead of being excited, this made me suspicious. My five year old senses were ben-franklinscreaming that something was wrong. We did not go to a store and buy toys. In fact, I don’t remember even knowing this area, in the bowels of the store, even existed. And not only was my very quiet mother showing us the treasures back here, but she was telling us we could each pick out one thing. My sister immediately latched onto a My Little Pony play set. I already knew I didn’t want anything of what was going on. Whatever it was. But, Mom insisted. So, I gave in to the lure of the Cabbage Patch stuffed horse. I was relatively certain a stuffed animal would prove more useful than a My Little Pony carry along play set for what was coming and I tried to convince my little sister to do the same with no luck. My stomach dropped a little further as Mom pulled the necessary money, which she couldn’t spare, out of her black fringed leather purse.

I was right. My five year old brain struggled to understand what she was saying but I knew I was right. I didn’t want any part of this. We’d be going to live half across the country with our Dad. Just for a little while. While Mom got “better”.

In the main terminal of the airport in Minneapolis there was a large clock and a large plane. Well, at least they seemed enormous to my five year old memory. Clutching my airplane-in-airportstuffed horse, I was trying to figure out the plane inside the terminal, while I caught bits and pieces of the conversation at the ticket counter. Mom grabbed our tickets and we headed to the gate. In my child’s brain, I can hear the echo of her high heels to what seems the ticking of the second hand on that large clock.airport-clock As we approached it, this is when my little sister started to catch on and start to cry. A sympathetic stewardess with bright red lip stick met us. “Unaccompanied minors”. She’d be responsible for seeing us safely from one parent to the other half across the country. A half hour later, in our seats across from the airplane’s galley so they could keep an eye on us, my sister was still hiccupping and trying to catch her breath. I’d given her my stuffed horse and the stewardesses had done their best to distract us. Including telling us they had a couple of extra first class breakfasts they’d get to us as soon as we took off, and would we like to meet the pilot and see the front of the plane? And look here, we’ve even got some pins just like pilots wear! Throughout the flight they gave us the promised breakfast, blankets, pillows, and headphones that plugged into the armrest. Then, took turns trying to entertain the two scared, heart broken, confused little girls holding hands.

I’ve flown out of that same airport, same terminal, a couple dozen times since then. And every. time. I fight panic attacks and nausea. Just the thought of flying out of there would cause me anxiety for weeks beforehand. As soon as I’d come through the doors, I’d fight to see past the blur the crowds of people would become. To hear more than just the clicking of high heels, my head spinning to try to focus on their source. Is it high heels or that dreaded clock? I’d make my way sweating, through security and to the plane where I’d focus on chewing my gum and disappearing into a book.

This last week I had the opportunity to fly to Chicago to attend a Patient Advisory Board meeting with the pharmaceutical company and an organization called Global Genes which provides support and advocacy for rare diseases. As soon as I got my flight information I heaved a sigh. Terminal 1. By the night before I was to fly out I wanted badly to stay in and hide in my blankets for the night. Instead, I decided talking with my sixth grade girls in my youth group about Jesus was preferable to self pity. Instead, I spent the night worshiping and learning alongside young disciples.

The morning of my flight I was packed and ready to go an hour early. I listened to my favorite worship songs on Youtube and went over my flight information, hotel reservation, and meeting times a couple dozen times. Hubby, my mother in law, and Mini Hubby dropped me off. I cried for missing my babies already and made my way through the double doors. I was at the gate before I realized….nothing happened. No panic attack. No nausea. No flashback. No blurring of vision and weird hearing. Instead, my check in kiosk was at the far end of the terminal, right next to security and far away from the dreaded clock. While in line in security, I was entertaining an adorable two year old protesting her confinement to a stroller and listening to a couple dozen students excitedly anticipating their first flight behind me. A beautiful old woman in a wheelchair was wheeled in front of me at the TSA agent and I was wondering if she would have to take off the couple dozens of bracelets, giant earrings, and matching necklace she wore. I wonder if she’s headed to see family. Her bright pink lips and smile says she’s going to see someone special.

So I’m sitting at the gate, in awe of my calm, and pull out my “Show Them Jesus” book I’m committed to finishing while I’m away. I pull out my earbuds and pull up Youtube to the next song on my “suggested” list.

I can’t even make this stuff up! Thank you, Jesus!

 

 

D-Day

This week marks the anniversary of what I think of as my personal D-Day, or diagnosis day for our daughter. The day our world seemed to turn upside down and no longer made any sense. The repercussions causing me to land in the dark, and the next year learning how to rest in God, over and over again.

Reflecting on the last year, it has been on my heart to share some things with those of you who have, or are, experiencing your own trauma and suffering. Who may still be in that dark place. This letter is for you.


Dear Friend,

I see you. Always a compassionate person, I can now feel you in a way I never could before. The pain you emanate is palpable. I see the blank look in your eyes in a crowded room, not really taking in anything around you because the darkness you’re caught in has swallowed up the people and conversations around you. Your shoulders are hunched forward, curled around the pain and grief trapped in that place with you. Your smile a mere up turning of your lips. You’ve turned completely inward in the upside down. I don’t know if you’ll hear me, but I want to gather you in my arms and whisper past the shadows under and in your eyes. You’re not alone in there. Keep looking for the light and call out to Him.images (4)

Be careful. There may be bright sparks of anger, resentment and blame. Don’t follow them.They may lead you out, give you fuel to keep going, but they’ll only lead you to a life trapped in a place similar to where you are. Void of hope and truth and love.

Wait for His light. Maybe just soft at first, teaching you truth on your way to the surface, or for some people an all enveloping ride full of grace and love.downloadimages (13).jpg

Whatever that looks like for you, you’re bound to run into the hard but necessary truths. How utterly fragile, helpless and weak we are on our own. Don’t make the mistake of thinking this means you are unloved, or worthless. Just the opposite. You are so precious and loved Jesus will be with you through all of this. There’s no need to do it alone. When you look to the Lord for your strength, lay all your fears and pain at His feet, you can do all things through Him. Even THIS.images (8)

There may be friends and family that, unable or unwilling to absorb the shock, will distance themselves from it. But He will take that anger and resentment you may be tempted to and instead lead you to your knees in prayer for them and thanksgiving for those He’s placed in your life for this instead.

I assure you, His perfect sovereignty has the power to reach down and save you from this dark here and carry you all the way home. When you’re ready, He’ll be waiting. His love so powerful, perfect and faithful, He’ll take it all. And His yoke is infinitely lighter than yours.

There, in that place, you’ll find indescribable joy. The joy that comes solely from Him and has nothing to do with your current circumstances.

Dear one. I don’t know what your personal D-Day is. I don’t know if it’s a child’s diagnosis, your own, loss of a child or loved one, a life changing phone call at 2 a.m. I don’t know why God has allowed this in your life, but I know that He does. That regardless of how this feels now, His plans are to prosper you and give you hope and a future. Even if you can’t see any possible way for that to be true.

Look for, embrace and give thanks for every gift of grace. Big or small.images (7)

Hold onto Him, as He is always holding onto you. Remember His promises written on your heart and commit them to your mind.

Love and Blessings,

Bobbiimages (14)


I wish I could say that this particular anniversary came and went without any unwanted or uninvited memories for me. It didn’t. I woke to fresh memories of that day a year ago. Fear and pain springing up in place of my hope and faith. Sure that despite the blessings rained down on me over this last year I still didn’t have enough faith.

But in the remembering, I realized just how far from the dark He’s brought me, and how much joy I’ve found in His light.

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WE Are The Church

Below is an open letter to our church family along with pictures of the gift that accompanied it.

July 6, 2016

 

Dear Faith Community Church,

Six years ago I brought my family to Faith Community Church for the first time for a Christmas Eve service. At the time, this was going to be my third, and final, attempt to see if God was what was missing from my life. The Holy Spirit revealed The Gospel to me that day through a creative portrayal of life before the coming of our Savior and the sharing of The Gospel throughout the message.

By nature and experience I am a cautious person and had zero knowledge of the Bible. So, for the next several years Jesus met me here, as I was, where I was, and FCC became my classroom. I learned the importance of obedience and through small (yet significant for me) acts of obedience I made enough connections to become comfortable here. Eventually taking a Bible 101 class that made me more comfortable digging into His Word on my own, my classroom extended into my everyday life. An invitation by a beloved sister in Christ to coffee led to my first Bible Study. In September 2014, we made a large step of obedience in dedicating our children, Jordan, Joelle & Jace to the Lord and acknowledging that they truly belong to Him. An entire sanctuary of you committed to help raise them in Christ, as part of this church family. I wonder now, if you realized what you might be called to do, and that you would follow through so beautifully?

When we received Joelle’s first diagnosis, you wept with us, you prayed with and for us, you paid for and encouraged me to attend a women’s retreat during which I was able to surrender to God’s will and start our family’s healing process through His peace and comfort.

When we received a second diagnosis, this time for both Joelle and Jordan, you continued to lift us up in prayer, lead us to His word, and remind us of His great love and plans for these children.

Then, when financial stress in the form of years of expensive medical testing and astronomical prescription costs overwhelmed us, you opened the doors to FCC and your hearts. You gave incredibly generously of your time, giftings, and resources for two fundraisers that have helped us to more fully rest in God’s grace and provision for our family. You showed us, and many others, the beauty of Christ’s bride; that through a building of broken sinners, God’s glory can shine.

FCC was the building I brought my family to years ago. But, you the church, through your love and obedience to Christ, have been our teachers, brothers and sisters in Christ, and become our church family.

Words can’t express our gratitude for the blessings given to us through you and your willingness to walk this journey beside us, helping us to walk with Jesus.

This glass was originally installed in a church sanctuary in Minnesota in 1922. The original panels were salvaged, re-cut, and reset by Tim, for you. We do not have the means to invest in the

ministry here in a substantial financial way right now. But, we pray that this gift to FCC, and the history behind it, would remind you and all of those that come in the doors in the future, not just of the aesthetic beauty of the glass, but the beauty of Christ’s bride, the people of the church. The hundreds that once sat beneath this glass in the past, those here at FCC now, and those that will come in the future.

 

Blessings,

Bobbi, Tim, Jordan, Joelle, & Jace

The response of our church family over the last year, and our gratitude for God’s grace and provision, through them, was as beautiful as it was humbling and more than a little overwhelming.

God has been so good to me in gifting me with words on paper to express my heart that I fear would overflow at times with gratitude if I didn’t have a way to get it out. Hubby had no such outlet or way to express this. The stained glass panels had been sitting in storage in a pole shed for several years. At the time, Hubby appreciated their history and beauty and knew I would love it too. He planned to have something made for me for my birthday or Christmas but over the years was unable to find someone that could work with the old, fragile, glass and lead.

His timing and grace never cease to move me. Hubby, with no prior experience and more than a few cuts and broken shards of glass, was able to make these panels. Blessed with a way to express his gratitude, both to the church family, and God, this was as much a gift to the church as it was to Hubby.

 

Alibaster Jar

For six weeks I had struggled out of The Dark. Mercifully, I had emerged, battered, exhausted, on the shores of grief. Though waves of despair still licked at my feet, I was no longer immersed in the cold, dark, pain of my loss. My mind, body, and heart, bore the effects of the experience but I had started to sleep, keep food down, and my brain had started to function past survival, past my next breath.

While in The Dark, I had experienced whispers of thoughts that had drug me back under. But, my fatigued, desperate, mind could only focus on my next breath. Now that I had a little breathing room, literally, occasionally these whispers became thoughts and I became aware of a new battle. One being waged within my soul.

I was after putting the kids to bed. Still struggling somewhat with focus and getting to a new “normal”, I was standing once again in the kitchen. When, in a panic, I couldn’t remember if I’d given our daughter her new medication more than once! I knew this meant I would be sleeping once again on the trundle bed in her room awake and worrying all night. I was overwhelmed. This is what it’s going to be like. Medications, appointments, specialists, and worry. I backed up to the refrigerator and slid to the ground. Down to the beautiful hard wood floors Hubby had reclaimed off of an old job site, hauled home, installed, sanded and refinished for me. I sat there in a daze, looking at all of the perfect imperfections in that floor, and I saw it. My heart, shattered into a million, razor sharp pieces scattered throughout my kitchen. The same heart He had so gently and faithfully removed the barriers to, until it was soft, trusting, pliable, and vulnerable. And then He broke it! Silently sobbing on that floor, feeling betrayed, alone, and bone soul weary, I felt as if there should be crime scene tape and maybe a chalk outline of where my heart had been.

image7.jpeg
Why?!

He doesn’t love you.

No, He has been with me through it all, helping me through! I’ve seen Him in this! He died for me!

He’s punishing you. For those sins. Punishing her for your sins. It’s your fault.

No! I have been redeemed! He set me free!

You don’t look like you’ve been set free. You look broken. And your daughter looks sick.

He doesn’t love you.

I grabbed my cell phone to take comfort from my “light” photos. I had quite a collection by now. And I had an event reminder. Come, Abide, Beloved.

Months prior I had been blessed with the opportunity to attend a Retreat through the Women’s Ministry at our church. At the time, worn down in both body and mind, I rejoiced at the thought of time to remove myself from the distractions of home and focus wholly on His word. However, at just six weeks “post diagnosis” I was literally surviving my days moment by moment, hour by hour. And at this particular moment I was sure I couldn’t manage to go. That I just didn’t have it in me. I was so incredibly raw and now keenly aware that I had some major things to work through.

And then He met me where I was. With encouraging texts from friends privy to my private struggle. With a ride from another sister in Christ. With a Hubby that reminded me that they would all be okay without me. And I put one foot in front of the other and decided to go as I was, where I was. I slept fitfully that night after scattered prayers for guidance and energy and courage to do something that even at my best was so very out of my comfort zone.

He met me in the car on the way up, with the generosity of the beautiful woman who came bearing coffee and a necklace inscribed with the word “courage”. I can’t even make this up!

He met me in the conference center with one of my favorite fragrances in the diffuser. Where these women had worked tirelessly to create an atmosphere so womb like and comforting that I couldn’t even be upset that they made me do 30 minutes of “speed dating” to meet the other attendees.

He met me with the most amazing cabin mates who filled my night with genuine laughter (some of my first in a while) until I forgot my discomfort with all the new faces and names, with an unfamiliar bed, with worries about home, medications and the struggle deep inside.

So I rested. In fact, I slept all night. One of only a handful of nights I’d gotten more than a four hour stretch. And I know He was preparing me for the day ahead. The cold sun rise brought with it the glaring clarity that light often brings. And when I stepped into the conference center again and started to worship I knew there was work to be done here today.

My mind was clearer, but my emotions were no less raw, no further from the surface. I cried through beautiful songs of praise and worship, speaking of God’s love for me and His pursuit of my heart. And as our gifted speaker spoke of Luke 7:37-38,
image23she painted a picture with words of a desperate woman, living a sinful life, risking rejection, glares and PAIN, to get to Jesus, and break her most prized possession, an alabaster jar of expensive perfume to anoint Jesus’s feet. She wept openly, wetting his feet with her tears and wiping them with her hair. She came as she was, where she was, with her brokenness and her sin, and weeping, left them at His merciful feet. I could almost see her desperation and pain! But she let nothing stop her. What was stopping me?

With desperation and pain my soul cried out to Him for Truth! Slowly over the last year He had stretched me and helped me to trust. Not just Hubby and the kids, the ones that initially broke the barriers on my heart, but over time a whole community of believers that had helped bring His truth and love and light into my life. And with each layer removed, each anxious step, He had made it good. I trusted Him! But how was I supposed to start all over again and trust Him again? Because this hurt too much. And the temptation to listen to those evil whispers, to return to the “safety” of a hardened heart was at times, at my weakest moments, so very strong! I felt everything but strong.

We broke for our personal devotion time and I went into the crisp autumn air thankful for the cold. Hoping it would numb some of the torment. And I opened my packet and started to work through it. Years of counseling and a remarkable therapist had helped me gain insight into my sins, the motivation behind them, and the detrimental effect they’d had on my life. I had confessed these sins, wept over them for the pain they’d caused me and others, and the barrier they’d placed between me and Christ. So, I fairly flew through half my packet when I was blindsided by number 16.

16. What do you desire more than Christ?

My earthly family. Whole, healthy, and happy. My daughter not sick.

They are my alabaster jar!

We were instructed to take our pieces of alabaster and write on them what we had been holding onto as more precious than Christ, image24then bring them to the cross and lay them at the feet of Jesus.

Could I do it? Could I trust Him with my family? With my heart? To be perfectly honest, I faltered. I sat holding that stone, hot in my hands, mind and heart racing and realized….I was still praying! I was desperate, broken, and looked for Him in everything, every person I came across, every piece of scripture He gave me. And I knew. I knew that I would walk to that house of the Pharisees, past ridicule and shame, and bring Him my most prized possession, my alibaster jar and all of my brokenness. Every sharp, painful, ugly shard. And I did.

Oh, there was so much pain in the offering!!! But as I laid my piece of alibaster at His feet and cried desperate, broken tears, I saw Him pick up those awful broken pieces and knew image11He made them new. That I was nowhere near complete, but He would make it good. I went to the safety of the prayer tent but instead of ridicule and shame was met again with His grace and love through another sister in Christ who once again gave me the words to pray when all I had left were tears.

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The Retreat was part of His plan, His perfect timing. And though I left exhausted, I left with renewed faith and trust in Him. I left strengthened in Him to battle the doubts and fears that still sometimes work their way into my head. Though they surface in my weakness, His strength lights my way and they no longer pull me down, broken, onto my kitchen floor.

I keep a piece of that alibaster jar amidst the chaos of my purse, my life, to continually remind me who I’d given it to.

DSC_0166~3.jpgMy alibaster jar

 

 

From the other side of the podium, the same side of the cross, please visit:

Invisible Love, Sisterhood