Plans, Preparation, Predictability… and Purpose.

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I just made an appointment for our sixth surgery in eight months. “Our” meaning our family.  More specifically, there have been two for oldest son and this will be the fourth for baby girl.  I’m not really digging it. Once again, this wasn’t part of my plan.

I really like plans.

Things like predictability and preparation are some of my favorite things.  No joke. I really enjoy schedules,  lists, calendars, highlighters, etc. I get super excited when I get to use my label maker. I know,  some of you are totally cringing right now.  You are likely those people that do crazy things like ride in hot air balloons, jump out of FLYING planes or off of perfectly good bridges with rubber bands on your ankles.  It’s okay, I don’t understand you either.

Yup, you can take your mud runs and your “spontaneity” and I’ll be perfectly comfortable with a nice boring day,  free of chaos, reading a great book.  If this life thing were up to me, that would be my plan.

But it’s not.

So my flesh (every extra fluffy pound) often sits in waiting rooms or on route to appointments re-rearranging my mental schedule for the hundredth time and crying out for just a little bit of boredom. A little less crisis.  My flesh wants to be the Mom that’s at home instead doing the laundry, putting together a nice healthy dinner,  looking up birthday party ideas on Pinterest,  volunteering for ALL THE THINGS, welcoming everyone home to a nice, relaxed, stress free house and never dropping any of the balls. (I am constantly dropping balls. Very frustrating.)

I feel like it’s a good plan. I also often feel like I could really do some amazing things with God with this plan. Just think of how big my mission field could be! I could do the mission trips and serve in all sorts of ways I just can’t right now. I could be that child of God that is running around with the Good News in far away places instead of running around chasing my tail, struggling to serve just the few in my reach. I’ve tried to convince God of the brilliance of my plan but either this sounds a lot like bargaining and whining to Him or He is just pretty confident that His plan is still better.

So my faith will keep reminding me that I may have plans,  but God has a purpose.  On days like today when my flesh just really, really, wants a little boredom, I will instead cry out in prayer and ask my merciful Father to show me just a molecule of His purpose in all of this. To help me re-remember that His plans are for my good and His glory.

Because my best laid plan has nothing on His purpose.

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I need to stop bailing water…

I’m sitting in my favorite place. My feet and hands buried into the soft, warm sand. My head tilted up to absorb sun filtered through wispy clouds, my hair brushed back by gentle winds. I can hear the rhythmic rolling of waves and the distant begging of seagulls somewhere further down the ribbon of beach. The air is rich with the smell of heat radiating off of warm sand and beached seaweed below. This week has been two years since I washed up on these same shores and I’m amazed at the difference those two years make.

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As I’m reminiscing there’s a commotion behind me. A flurry of excitement and a vaguely familiar voice draw my attention to a group of men making their way to a fishing boat not far from shore. I hadn’t planned on going out on the water today but as He looked back I found I couldn’t resist the invitation to join them. I was not the only one. As I gathered Hubby and the kids and scrambled to find a boat of our own, there was a small fleet of vessels preparing to follow those men out to sea. Out on the water, a quick glance observed many from the beach wondering at the procession. Staring at us from behind big sunglasses and under bright umbrellas, holding fruity drinks in fake coconuts they quickly decide to return to their conversations.

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The day progresses and the shore shrinks on the horizon when a storm whips up, seemingly out of nowhere. Two years ago I weathered a similar storm and it pulled me under, depositing me on the distant shore. Today, I am not as worried about the storm as I am the water the boat is taking on. I’m furiously bailing water, trying to keep up. Our storm is one of special needs and each scoop of the bucket is another need.

Surgery, scoop.
Social Security appeal, scoop.
Medicaid, scoop.
Attorney, scoop.
MRI appointment, scoop.
EEG appointment, scoop.
Neuropsych appointment, scoop.
Leukodystrophy Foundation conference, scoop.
Newborn Screening advocacy, scoop.
Prescriptions, scoop.

Even the “normal” needs add to the rising water in the boat.

School supplies, scoop.
School shoes, scoop.
Soccer registration, scoop.
Breakfast, lunch, dinner, laundry, scoop, scoop, scoop, scoop….

I know there are many people safely on shore that think there is something different about us in the boats. Still others that believe somehow we have been uniquely prepared for our storm. Even a few that believe we have done something to deserve it.  Or maybe that we have a superhuman ability to withstand this storm on our own.

We don’t.

I don’t.

This becomes crystal clear as the water level increases in the boat until my heart is racing and I’m absolutely exhausted from the fight. I find myself examining my sinking ship. All of the ways I’ve failed. I’m not fast enough, strong enough, skilled enough to keep us afloat, to save these precious souls in the boat.

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So I sit in the rising water, paralyzed with fear, turned so far inward that I almost don’t hear Him. That familiar voice in the middle of the storm. Reminding me that I’m not supposed to be able to do it alone. That I don’t have to. Why do I keep trying to? And despite the storm around me, the storm within me quiets. I stop looking at my own boat and trust the One that calms not only the winds, but the waves as well. I look up and when I see Him I’m reminded why I’m here. I followed Him. No matter what the seas look like, no matter how distant the shore, I need not fear the journey because I know the destination.

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That’s when I see it. I’m reminded of the other boats in the raging sea. Some are much further out into the waters. Some have been tossed ruthlessly and it’s a wonder that they’re still in one piece. I can vaguely make out a much smaller vessel starboard, slightly foreign in its design, it’s battered and falling apart. The screams of the occupants are swallowed by the sounds of the sea as they hold tight to anything close to them that hasn’t been loosened by the ruthless waves.

But it’s their eyes, not their voices, that call out to me. Because I can see it. Beyond the fear, beyond the despair, is the hopelessness. And it hits me harder than any of the waves. They haven’t seen Him! They have yet to hear that still, small voice that calls out to them in the middle of the storm! Suddenly, I’m frantic to get to them. Oh, not because I can save them (no more than I can save Hubby and the kids next to me), but to tell them about the One that can. About the One that can not only make you brave, but fill you with a hope and peace that defies circumstances.

I’ve been doing a lot of bailing water lately. Even though I know where my strength comes from, that I can do all things through Christ, I still occasionally fall victim to lies from the pit. More often than I’d like. It isn’t until my anxiety returns, that I’m in tears and on my knees that I realize I’m trying to do this life alone again. The whispered lies that I’m useless, a failure, not smart enough, efficient enough, organized enough,

not enough,

have me convinced I need to appear more than I am. If everything is okay on the outside, I will be okay on the inside. And the enemy has me just where he wants me. Paralyzed, focused on myself.

Then, God reaches down, lifts up my face, and reminds me that I’m His. And because I’m His, it’s my joy to follow Him out upon the waters, no matter what they look like. And it’s amazing what, and who,  I see when I’m not focused on me.

This last week I had the privilege to hear an update and a sermon (which inspired this blog) from some beautiful people from an amazing organization called Tutapona. They provide trauma rehabilitation to refugees from war torn countries in Uganda and Iraq. Widows and orphans. The least of these. These refugees have suffered unspeakable trauma, the most unimaginable storms. They’re left with wounds far deeper than a surgeon can reach. They have reached refugee camps where they’re provided with their most basic needs. Which is amazing. But they’re left with fear, shame and hopelessness that is crippling. Please take a moment to watch the mini documentary below and consider supporting people who are weathering some of the most violent storms. We all need to be tossed that lifeline of hope.

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Light Glorious Light

Maybe it’s being immersed in a frigid Midwest winter. Or maybe it’s being a couple of weeks into our current series, Life Giving Light, at church in which we’re walking through the book of John. But as the snow piles up in subzero weather outside, I’m spending a great deal of time inside, thinking of light. The physical need for it, the Creator of it, artificial sources of it, the absence of it, and the reflection of it.

It’s a mix of sleet and snow which will undoubtedly wreak havoc on morning commutes, weigh heavy on power lines, and lay sheet-like on windshields. Scattered, wet, remnants of snowman construction and snow angel creation are littered in the entry and no matter how many times I try to get them to remove their boots before they hit my hard wood floors, dry socks will meet cold puddles at least a couple of times tonight. Rosy cheeks and running noses are now bundled into jammies and watching a movie snuggled on the couch. The overworked, tired, “builder special” dishwasher struggles loudly through another cycle and I can hear the jet engine spinning of the last load of laundry for the day. I, myself, am on the laptop checking things off of a never ending Mom list. As I pay the electric bill I glance up at the wildly blinking, multi colored Christmas tree, the several other strands of lights throughout the kitchen, and the crazy “light show” projection light the kids were sure our house needed. I wonder if they’d notice if I unplugged a couple?

The lights flicker, hum low, and go out. The TV shuts off and all of the noise comes to a sudden halt. And, because my laptop is almost as old as the dishwasher and needs to be plugged in, it shuts off as well. Plunged into quiet darkness, my pulse quickens as I reassure the kids it’s okay. To sit still while I find a candle. Eyes unaccustomed to total darkness, the room seems distorted and things much further away or closer than I thought. My stocking foot finds a wet puddle and I know I must be getting close to the table. I fumble to light the decorative Christmas candle. christmas-candle2

It sputters, spits and flickers bright, mellowing to a soft glow that reaches every corner of the room. Relieved faces smile back at me. And we start a puzzle.

I’ve written a lot about my experiences in the dark, and God’s incredible love and grace that shone through the haze of suffering to literally pull me free of it. There is truly nothing more beautiful than His saving light. Sometimes I mourn the years I didn’t see it. How many things did I miss? Opportunities to see His glory? Sitting in the dark, illuminated by a single light and distracted by no others, I realized.

What if I couldn’t see The Light, for the light? Bear with me here. I spent thirty years blinded by artificial light. Think about it. We live in a place of distraction and we’re attracted to bright, shiny, pretty, fun, things.

I can give you a list of mine. Family, money, career, house, cars, vacations, nail salons, restaurants, clothes with tags, shoes with boxes, shopping carts, “perfect” family photos, etc. Things that, plastered all over billboards and websites, shone bright, flashed joy, and fizzled out soon after. Now, don’t get me wrong, I still like pretty things. I am about as “girly” as a girl can get. I have not given away my marbles in exchange for new sight, I will joyfully accept a pedicure any day of the week. What I’m saying though is, these things kept me from seeing that One source of light that would truly bring me joy. The down to my pedicured toes kind. The eternal kind.

Now, here’s the hard part. For me, I did not fully embrace His light until it was the only one left. Until, enveloped in cloying, hopeless darkness, there was nothing I could do to bring myself joy. I couldn’t buy any, I couldn’t eat any, I couldn’t see any.

matches-lightThen there was that beautiful, merciful light….It sputtered, spit and flickered bright, mellowed to a soft glow and reached every part of my heart. Since then, I’ve noticed three things. How incredibly void of true light this world is. How incredibly beautiful that makes every small reflection of God’s glory shining through. And just how desperately I need that grace and joy filled light to live.

Every act of kindness, every gift of generosity, every reconciled relationship, every laying down of self. Whenever I catch a glimpse of His light my heart warms, my eyes spill, and I know a familiar joy. Whenever I am blessed by that joy, I want to reflect that light. What a beautiful design.

What if we were such a bright reflection of God’s glory everyone could see it? Even past all of the artificial light we are bombarded with?

For this child I have prayed

As a young child I longed to know that there was someone in control. My little heart cried out for comfort, security and protection.

When I got a little older I heard mention of God. Surely He would set right a world that didn’t make sense? Small hands asked for big things. That didn’t happen.

With the certainty and independence of adolescence I had decided that God must not exist after all. Convinced my circumstances proved me right, I stopped praying, crying, or hoping for change. I was on my own and it would be up to me to obtain what I so longed for.

It would be years before I cried again. Still longer for me to hope in someone other than myself. And a marriage, a toddler, and another pregnancy before I would pray again.

Twelve weeks into the pregnancy of our daughter I finally waded out of nausea and exhaustion to lunch with a friend. Pale, weary, and chasing a toddler, I was excited for some adult conversation and food that would stay, hopefully, down. Timidly finishing my lunch I scrambled to get our toddler son to the bathroom in time. After our third round of hand drying with the very entertaining blow dryer, I stood up and knew something was wrong. A quick check confirmed my fear. I was bleeding. Too much.

Heart sinking, hands shaking, I ushered our oldest back to the table and tried to bravely tell my friend I needed to get to the doctor. Thankfully, she took charge. All calm, reassuring and full of reason she told me to go right there, she’d meet me. Call Hubby and she’d watch the oldest until he got there. On auto pilot, I followed directions and shortly thereafter found myself in an exam room hearing the doctor echo my thoughts. Too much blood.

Sent to the hospital for an ultrasound I waited barely breathing to see the life still breathing inside of me. There it was! The tiny flutter of a bravely beating heart. Exhaling, my own started to beat again. Tears streaming down my face, I watched her bounce around oblivious to the turmoil she was causing outside. The technician did a thorough check and I was told “the pregnancy is still viable”. What she meant to say was, my baby was still alive. I needed to go home and rest and return the next day to check again. To call if anything changed.

As I laid in bed I prayed.

God, please don’t take her from me! I already love her!

For I knew she was a girl from the first.

Then I begged.

God, I don’t care if there’s something wrong, I don’t care if I need to spend the next six months in bed. Please let me hold her in my arms!

Finally, I bargained.

God, I know I’ve complained of the discomforts of early pregnancy but I will never do it again! She is worth every lost meal and I will be so much more grateful for the gift of her! Truly, every little flutter and bump of her exploring has been pure joy! Even when I’m laying on the bathroom floor. Please don’t take her away….

The next several weeks I rejoiced as the bleeding stopped, blood work came back fine and every ultrasound showed her contentedly growing, nestled in my womb. I thanked God, praising Him for His kindness and mercy.

Then, when given the gift of holding her in my arms, my heart overflowed with gratitude. This perfect tiny girl with the delicately arched eyebrows, pouty lips, and beautiful blue searching eyes was my miracle. My answer to prayer.

Several years later, I was still praying. Growing in my relationship with Christ when I found out that little miracle wasn’t perfect after all. How could He give me a healthy child, let me believe all these years that He answered my desperate prayers, and then just pull the rug out from under me? Betrayed and heartbroken, instead of turning away again I would fire off these questions, waiting for His answer.

And it came. Gentle like a whisper at the hairs on my forehead.

This IS the child for which you prayed.

Soft as a caress on the side of my damp cheek.

I formed her in your womb.download-5

Slowly, so that I’d understand.

I know every hair on her precious head. images-33

This child is still my answer to prayer. The same one He placed in my womb, the one I prayed to hold, the one He gave me.images-34

Through this child He’s answered so many prayers I thought had gone unanswered. For through her, He called me to Him. And through my journey with her, has taught me comfort, safety and security can only be found in Him.

So, for this child, my perfect answer to prayer, I will continue to pray.

What I Told My Kids Today

As headlines, graphic images and special reports flooded the airwaves today my kids couldn’t help but catch wind of tragedy. Of pain. Of loss. Of hate and anger.images (4).jpg

“Mom, why are so many bad things happening?”

Ugh! How to explain a fallen world to innocent, soft confused hearts?

“I don’t know baby. God tells us we live in a fallen world where bad things sometimes happen.”

“What do we do?” Anxious words from a tiny heart that wants to help. To DO something. Don’t we all?

“We pray. We can pray for protection and pray for all the people who are sad and angry and hurting.”

“What do we do if something bad happens here?” Oh, to wrap them in bubble wrap and bolt our doors. But no.

“We look for God. ”

“But we can’t see him. What if we’re still scared?”

“He’s promised to always be with us. We look for Him in the people we see. Look for the helpers He’s sent. Whenever there’s something bad, look for the people helping. Sometimes they’re a police officer or fireman, sometimes they’re a man in a suit, a man covered in tattoos, or a teenager with baggy pants. Sometimes they’re black, white, brown or yellow. They help people out of fires, pull people out of car accidents, help fix their injuries, carry babies to safety, hold people that are crying, pray with people who are scared. But they’re there.”

“Does God send helpers everywhere?!”

“Oh yes!! He sent us too! Remember? We’re strong and brave because God is with us and loves us! And we love everyone as much as we love ourselves so we will help if we need to!”mms_20160709_001718

“I’m a helper?! God’s helper?!”

“Yes! We are! And there are lots of us. Just remember to look for them, and be one!”images (1).jpg

“Because we can do all things with Christ who gives us strength….right?”

“Right baby.”


2 Corinthians 13:11

11 Finally, brothers and sisters, rejoice! Strive for full restoration, encourage one another, be of one mind, live in peace. And the God of love and peacewill be with you.


Psalm 23:4

Even though I walk
    through the darkest valley,[a]
I will fear no evil,
    for you are with me;
your rod and your staff,
    they comfort me.


Deuteronomy 31:6

Be strong and courageous. Do not be afraid or terrified because of them, for the Lord your God goes with you; he will never leave you nor forsake you.”