Lost things…

I do this thing sometimes.

I lose my Joy.

One minute it’s there, and somehow, in the demands and disappointments of life, I misplace it.

So I start patting my proverbial pockets. I know it couldn’t have gone far. It was here but a minute ago….

Bereft at it’s loss, the first place I check is prayer. Rummaging through that pocket it’s plump full of confession, repentance, and petitions. Because as is often the case when I misplace Joy, I have a deep awareness and grief over my shortcomings and an excessive focus on my, as yet unmet, needs. There is a lot of stuff in here. But not Joy.

I dig next into the Word. This pocket is usually full of treasures. I scan text after text that normally shines bright with Joy and find it dulled. Experience tells me it’s likely not the text that has dulled, but me. The words, instead of Joy, bring with them an aching memory of it. Like the nostalgia of fried clams on a boardwalk mixed with sand, the sounds and smell of the ocean and burning of bare feet, it brings forth a Joy remembered and a desire to return, but the Joy itself… elusive and the more I return to it, the more keenly I feel it’s loss.

And this is where God does this thing.

One last pocket to check.

Maybe it should have been my first, as this is often what God uses to direct me back to this lost thing.

I sit and listen to a message given by a brother in Christ in which the spoken words ring loud enough to hear through the noise of our daily life.

1 Peter 5:7

Cast all your anxiety on him because he cares for you.

He cares for you.

Then a stop at the church office yields an envelope full of incredible generosity in answer to secret anxiety and one of the many prayers in that other pocket. A need only known to our Father.

He cares for you.

Immediately follows new test results that give some hope and a direction to this gnawing fatigue, infections and insomnia.

He cares for you.

Our pastor’s passionate message on the one lost sheep and His relentless pursuit of … lost things. Lost people.

Luke 15:4

4 “Suppose one of you has a hundred sheep and loses one of them. Doesn’t he leave the ninety-nine in the open country and go after the lost sheep until he finds it?

Because He cares for you.

And then as I sit in worry about these kids and the pocket full of prayers seemingly unmet and unanswered I get a slow trickle of response. Texts from a small group, sweet brothers and sisters who join in our petitioning. Emails from specialists who care and teachers and staff from school that are eager to help. Oh, not an answer to all the questions, but a sweet reminder that God goes before all of this too. Whether I can see it yet or not.

Because He cares through them.

And with each reminder from community, from fellowship in the Body of Christ, there is a spark of that which I search for. That I’d thought lost. Each spark illuminating the way back to Joy. I hold each one to my heart and pray for that spark to ignite a flame. Joy unsurpassed and uninhibited by circumstance because it is Joy in the One who cares for me.

The One who breathes stars, pursues and cares for me and though I may misplace knowledge, I will never, myself, be lost again.

Surgery and Procedures: A Guide For Caregivers

There are oodles of articles, brochures and pamphlets on how to prepare a child for surgery or procedures. I know, I’ve had the pleasure of reading many of them. They’re extremely helpful. What I’ve found over the last few years though, is that they’re not extremely helpful in preparing the adult that is accompanying and caring for the child. So, as we’re headed in for a procedure today, I thought I’d provide my own list of things I’ve found the most useful to know as the caregiver accompanying a small person for what can be a very stressful time.

What To Bring

The hospital should have what’s called a “Child Life Specialist”, or something similar to keep your child entertained during the endless waiting and to lessen their anxiety with activities and electronics. You’ll likely have your hands full doing the same. But, once they’re wheeled in, you will find yourself with plenty of time on your worrying hands.

First, bring your people. Family, friends that are family, church family, whatever. Bring a person that can run for food if you need it, grab some tissue if you need it, enable you to run outside for some fresh air and most importantly, distract you when the hands on the clock don’t seem to move. These people should also ideally be positive, easy going and good at waiting. This goes for a hospital stay if you have one afterwards too! If you’re looking at an extended stay, come up with a schedule ahead of time. I’d really recommend this if you have a large number of people so that both you and your child are well supported, but not overwhelmed.

Bring easy brain activities. I wouldn’t recommend any difficult novels, studying, or important work you can’t make mistakes on. I’ve often wished I knew how to knit. I think that would be a perfect waiting room activity. My personal recommendations are adult coloring books, your Bible, and conversation.

I’d highly recommend dressing in comfy layers. Temperature often varies drastically by the room you’re in and no matter the procedure or surgery you’re waiting on, it’s going to be a long day.

Bring a cell phone charger and let family and friends know ahead of time you may not be able to update at regular intervals. Depending on where you are in the hospital will depend on what kind of cell phone service you have.

On Your Way

On your way to the hospital, allow extra time to stop for your favorite coffee/ tea/ beverage and several snacks. For you. Since your little one likely can’t eat anything, you’ll feel bad consuming a large breakfast in front of them.

Or, if you’re like my husband, maybe you won’t.

But, either way, there are usually few decent food options in the waiting room, if any, and you may not want to make a run for food for fear of missing an update. Also, a muffin from the grocery store is far cheaper than the $5 dry and tasteless muffin wrapped in cellophane you’ll likely get at the hospital.

While You Wait

Once they’ve been wheeled away from you and you’ve said your very brave goodbye, you will get to experience the phenomenon of “hospital time”. The clock that, at times, flies by or stands completely still.

Now is when you want to take any opportunity to eat, drink, and use the restroom. I would advise against too much of the waiting room coffee, however. I still don’t understand why they provide every poor quality diuretic known to man. Not only does the caffeine not help anxiety, but about ten minutes into waiting I’m already too worried about missing an update to use the bathroom. And the only thing worse than anxiously waiting to hear how things are going, is anxiously waiting while simultaneously holding a full bladder.

This is the point I’m currently at. Doing my “busy” stuff, having a snack and trying not to watch the clock. Whatever you do, sit somewhere you can’t see a clock.

Sometimes, depending on the hospital, you’re back in the waiting room and sometimes you’re waiting in the pre-op room. I actually prefer the waiting room, if you have an option.

Here’s why. Look around you. Nothing helps distract you like connecting with other families in a similar situation. One of my best waiting room experiences was an all day affair during which two of my children were having surgery at the same time. Why? Because while I was waiting I was able to talk to another brave, waiting momma. This sweet lady was several states from home, by herself, with a medically complex kiddo while Dad was at home caring for their other young child. She’d been staying at a hotel for a week to have access to specialists, testing and surgery not available where they live. Things practically in my backyard that this particular anxious momma can forget to be grateful for.

Finally, try not to panic about time frames. You are literally at the mercy of the schedules of dozens of medical personnel. It rarely goes according to the schedule you’re given. If you’re worried, never be afraid to ask someone. They’re used to soothing worried parents, especially in a children’s hospital.

Do you have any helpful advice you’d add for caregivers? Please comment with it below!

Know a caregiver concerned about an upcoming procedure or surgery? Feel free to share!

Do you have a procedure or surgery coming up for a loved one that you’d like prayer for? I’d be happy to pray for you.

Seasons

I stepped outside last week and smelled it. That “fall is coming” smell. Even though it was 80° and humid I could still make out the crisp, wet, smell of decay in the slight breeze. This makes some people excited. They start posting on Facebook about sweatshirts and bonfires and pumpkin flavored everything. Usually paired with pictures of pretty leaves. Other people, like Hubby and Mini Hubby look forward to the first frost with eager anticipation to put an end to their allergy induced misery. I am not either of these people.

I hate fall. I know, some of you probably just cringed and gripped your pumpkin latte a little tighter. Bear with me. I’ve really tried to like fall. I have! I’ve tried to embrace the changing leaves but in the Midwest, this is a VERY short window. I’ve baked a gazillion apple pies. I even tried buying some mums. But alas, to me, fall is simply change.

You may remember that I am not a fan of change. Nope. Predictability, sameness and boring. That’s me. So, I do not look forward to daylight that ends at 4 in the afternoon. I don’t look forward to adding twenty minutes to my morning bundling children, heating up the van and looking for the dreaded missing glove. I don’t enjoy the look of bare trees and dead plants. I want sunshine and color.

I like summer. No bulky coats and flip flops every day. I like long days outside in the fresh air, fresh fruits and veggies at every roadside stand, late mornings and later nights. With my kids.

Ahhh… here is part of my hang up this year. I am especially distraught this fall because my last baby is leaving the house for kindergarten. Mini Hubby has been looking forward to it for months. His backpack has been packed, hanging on it’s hook, for a month. His lunch box has been put on the counter at least once a week in preparation. He’s very excited to be heading to school like the big kids. His momma is not.

Seasons.

It’s been fifteen years for me. I have thoroughly enjoyed this season. And, like summer, I don’t want it to end. I don’t want fall. I don’t want my babies to go to school. What I want, is for them to be little forever. I love snuggling babies, sitting in a rocking chair all day and folding tiny socks. I love chasing toddlers with chubby feet, sticky hands and belly laughs. I love playdates and coffee dates. I love baking and cooking family favorites and volunteering in classrooms and on field trips. I love being able to serve my family and my church family in as many ways as my schedule allows. I also kind of like yoga pants and ponytails and worshipping barefoot in my kitchen.

But I’m done with these things. You see, I’ve got a job. Now, don’t freak out, my stay at home mommas, I am certainly not implying you don’t have a job. Remember, I think it’s the best job. But, I’m starting an actual paying job. And it’s a good one, I think. I will be working in the special education department of our High School. So, really, I’ll be even closer to Oldest Son and right across the street from Mini Hubby. Technically, closer to them than I’d be if I was at home. This job has many good things about it. The type of work (really, I’m so excited to meet these kids!), the same schedule as my babies, and maybe the added bonus of keeping close to them during some really tough years. Not to mention a second paycheck for when a car breaks down. It’s going to be good.

Really.

As soon as I get past this grieving over ending seasons.

There are a few things I need to work out. Like, how does one serve God faithfully in a secular position?

I’ve kind of enjoyed singing and dancing and reading and praying through my hard days. How do I do that now? I feel like that might turn some heads at the High School.

Why is it that the first child out the door clings to your leg in tears and the last one practically runs out on his own?

How do I serve my family well when so much of my time will be poured into other people?

How can I possibly love this next season as much as I’ve loved this last one? Will I ever?

This is the part that has had me crying at the drop of a hat this last week. Well, that and probably some hormones and a decided lack of chocolate due to this elimination diet I’ve been on over a month. But those are different blogs altogether.

So many questions, so many unknowns, so many feelings. This last week I have almost constantly reminded myself that God Is faithful, He knows exactly where I’m supposed to be, and He’s got me during this season, just as the last. But, if you’ve made a similar transition, if you’ve struggled through a changing season yourself, feel free to leave me some encouraging comments and/or reminders of Truth! I’d appreciate it!

UPDATED: Approximately four hours after publishing this post, I was curled up in my closet. You know, trying to work through some of these questions. I was listening to YouTube when this song came on immediately after praying for peace with our changing seasons. I’ve never even heard this song before. I can’t even make this stuff up if I tried. Listen!

Blessed by Less

This 4th of July morning bloomed sticky hot in the Midwest. One thing I’ve learned in the 20 plus years of living here is that when the humidity hovers anywhere near summertime Fahrenheit in these parts, folks run for water, ice cream and air conditioning. You see, that long, hard, winter freeze gets right into our blood while we’re hibernating up here and thickens it right up. As a result, our inner thermostats consistently read approximately 20 degrees above the rest of the country. You laugh, but wait till you see us in shorts and flip flops in 50°. (How else will they get a full month’s use?)

So, this morning everyone is running to family cabins, lakes, boats, and barbeques. We’ll celebrate our Independence Day with loads of red, white and blue, fireworks and food. If we have a veteran, we’ll bring him or her an extra hot dog and thank them for their service. Later, at a more reasonable temperature, we’ll break out the Smores and probably some apple pie and sparklers. Off and on today I’ll think about the privilege of living in the land of the free. And because of God’s grace, I’ll also think of the responsibility that implies.

Just a few years ago I bought the kids their “Fourth of July Outfits” that they’d never wear again. Hubby spent a ridiculous amount of money on things that would literally go up in smoke and we had just gotten back from a rather expensive, but fun filled week long family vacation. Things were good. I called myself blessed. I was thankful. I’m even more so now. But a lot has changed since then. The things I considered myself blessed with are quite different. These last few years we’ve been richly blessed with LESS.

I realize this is a very anti American sentiment on a very American holiday, but let me explain. I have this thing about comfort. Sometimes it gets all confused in my head with security and love. And it wasn’t until God removed many of my comforts that I realized the depth of this confusion of mine. If you’d asked me if I believed in a prosperity gospel I’d have told you, “No!”. But, I did on some level, believe that if God loved me he would provide for me the way I wanted. Turns out, since He loves me very much, he allowed me to learn that my security and love comes from Him alone, and not my circumstances. Since I’m a rather slow learner, and I really do desire comfort far more than I should, this is a process that will likely continue until He calls me home.

Here’s the crazy thing. Our lives will never look the same as they did a few years ago. Our bank accounts will never be so full, our credit will likely never recover and all those future plans we had will look completely different. Yet, I feel so richly blessed by less.

Today, I can say “no” to my children and know that it’s okay. That just because I CAN give them something, doesn’t mean I should. I know that even without a penny to my name I’ll still know my Father loves me because I’ve felt that love when I didn’t even have that penny. I’ll watch the town fireworks somewhere and be unafraid. Seriously, this is a big deal for those of you that know me. (Whoever thought explosives were FUN and decided to incorporate them into a celebration for a country that earned it’s freedom through deadly explosions…. well, you see the irony, don’t you??) And I’ll celebrate more than just my freedom of speech, right to assemble and bear arms. I’ll celebrate my freedom from a few idols and fears that held me captive for a long time. A little rain might adjust my plans for the day, but not by any means ruin it. There are far worse things than getting wet.

Yup, I’ll be celebrating my anemic checking account with a day at home, sparklers (hazardous sticks of flaming metal I’ll let Mini Hubby hold) and hopefully a good barbeque and quality family time. Thank you, Lord, for functioning air conditioning and a roof that doesn’t yet leak!

Multiplied

basket-bread-rolls-fish-750x330.jpgI unloaded the kids’ school paraphernalia out of the back of the van to make room for the two black construction size bags filled with clothes that needed to be dropped off at our local clothing center. I was already fighting a panic attack before I’d even left the driveway.

Before you ask, no, I don’t always panic at the thought of being separated from the clothes I’ve dug out of the bowels of my children’s closets. Nope, you see, the donation was a well timed front for my true destination. Which was giving me all the early symptoms of a panic attack.

I pulled into the parking lot at dusk, wishing it was just a bit darker. Shutting off the van I took a deep breath and opened the driver’s side door, right next to a sweet girl I went to high school with. Because that’s what happens when you don’t want to be seen in a small town. All one has to do is not shower, have a bad hair day, or forget to put deodorant on, and you’re guaranteed to run into someone you haven’t seen in awhile. Every. Time.

Except this time I was showered, my hair was presentable and though I was sweating, I was still okay in the odor department. This time, I had something bigger to hide than poor hygiene. No worries! I have my two bags of donations, they’ll never know what I’m up to. It’ll be fine! Until she kindly offers the services of her husband to carry said bags for me. Still okay! I will just drop the bags and they’ll be on their way. As we walked through the parking lot catching up a bit she tells me they’re headed into the building too, for a community education dance class for the adorable toddler holding her hand. My nervous brain finally processes the pink leotard and leg warmers. My too bright smile masking the new panic as I realize they’re headed in the same direction I am.

I drop off the bags, say my goodbyes, and head back to the safety of my van. That’s it. I’m not doing it. I even start the van again before I realize I don’t have a choice. The refrigerator is as empty as our bank account and pay day isn’t for three more days. This is when I start to think I’m suffocating. That someone has snuck up and sucked all the air out of my van and caused this crazy fear to grip my throat. I jump back out of the van, sucking in deep breaths of air. You know the kind. In through the nose, out through the mouth. I stuff all that fear back down to wreak havoc on my stomach instead and jog to the entrance of the food shelf before I can change my mind… again.

That’s right. My super secret, anxiety provoking mission is this tiny little grocery store replica tucked into our community center. I step quickly inside and take a seat with my back to the front door. I fill out the required paperwork and wait for my number to be called. The worst part seems to be over, as far as anxiety goes, but now I’m battling a new fun thing. Shame. I can’t even meet the eyes of the sweet ladies helping me. What I really want to do is curl up and cry. Then, I want to explain why I’m here. Then I start a running dialog with God on why I’m there.

How did this happen?

I did all the right things!

(Whine. Whine. More whining.)

Just as the tears start to win, a lady from the desk comes and stands next to me. It takes me a minute to figure out what she’s saying. And when I do, I’m a little confused. She’s asking about my purse. I think she likes it? I struggle for a minute to remember that I had inherited it from my mother’s closet. I told her I’d considered it a step up from the diaper bag I’d been carrying for what seemed the last 12 years. She laughed. I laughed. And I finally looked into her eyes. Where there was no condemnation, no pity, just kindness. Once she had my attention she started showing me the “ropes”. That it’s just like grocery shopping, only there’s limits listed on the signs. When you’re done, you bring your shopping cart to be weighed to “check out”. And then there’s a very sweet gentleman that will help you carry your things to the car, or you can pull up if there’s room.

As we’re loading my bags, in full cover of darkness now, I still take a few glances around hoping I haven’t been spotted. I thank the volunteer for his help and make a quick exit.

It occurs to me on the drive home that there is something probably wrong with my reaction. That though we’d routinely supported the local food shelf in the past ourselves, I had quite obviously had a few misconceptions not only about the “kind of people” that used it, but the way it was run. As the days and weeks passed, I became more and more convicted of my pride and self righteousness.

As the months wore on it became more and more clear that my faithful, thorough, relentless and loving God was totally committed to purging me of some of these blemishes of my character. Trust me, by the time we’d sold anything with value, come perilously close to losing our house, borrowed from our parents to get our daughter to the latest specialist and still had to dig through the change in the van to pay for the hospital parking fees… all semblance of pride in our circumstances had pretty much evaporated. Everything I have is a gift.

Now, this has been a couple of years ago now and God is continually chipping away at some of these ugly parts of me (which can be depressing) but sometimes I have to look back to see how far He’s brought me.

This week I was reminded of this day when I was feeling enormous guilt. Why? Because we bought new appliances. Like, brand new and delivered. There was a time I wouldn’t have truly appreciated them. A time I would have been the most excited about the way they looked and telling everyone about them (And now, as I’m typing, I realize I’m telling everyone about them. 😅 But in a totally grateful, praise be to God for His provision kind of way, right?).

I wouldn’t have blinked an eye at the invoice or agonized over what this money could do for someone else; where it might be better spent. I wouldn’t have thought long and hard on if I truly NEEDED them or not. I certainly wouldn’t have waited until only one burner on the stove worked and the dishwasher was continuously leaking before trying to replace them. And that crack in the sink? That wouldn’t have lasted a week, never mind three years!

Now, I’m not saying I don’t still roll in the mud of pride and self righteousness. That I don’t still care far too much about how my life “looks”. That I don’t regularly hourly need to be washed clean by the blood of Christ. But, every once in awhile I’m reminded that I’m a work in progress. The key word there being… progress!! I may not be who I want to be, but I’m not who I once was! Praise God!!

ef671dea865e9b7c31e033f5d1df6a7b.jpgIn celebration of the gift of another year of sanctification, 😉 I’m asking anyone that might be considering a card or gift for me to instead support our local food shelf. They were not only there when we needed them, but they showed more kindness than I’d imagined. Let’s help Five Loaves continue to multiply.

5 Loaves Food and Clothing

 

On Healing, Laughter and Joy

I wonder when August 19th will pass without me noticing.  Some of you can probably relate to an anniversary of something you don’t celebrate.  Two years ago, after searching over a year for a diagnosis for our daughter, we received a phone call with her test results that turned our life upside down.  Honestly, some days I still feel rather out of sorts.  But, for any of you that might be going through some rug pulling out from under you stuff right now, I want to share something with you on our anniversary.

You will laugh again. And if you continue to trust God through this, you’ll find joy in Him again too.

Oh, two years ago I was certain I would never laugh again without it being saturated in sadness.  That it would never quite reach my heart again.

I was also very unsure that I would ever find joy in my relationship with Christ again. For sure, there was a long period where I sought Him solely for comfort and peace I could find nowhere else. But would I ever rejoice in His presence again? Ever bask in His love for me? I just couldn’t see it.

In case you can’t see it either, here’s a story of healing, laughter and joy.

Last fall I traveled out of state for a meeting with the pharmaceutical company that makes the medication for two of our children.  Because of my past, I had a thing about flying.  Lots of things actually,  but mostly panic attacks and a whole lot of anxiety.  It wasn’t until I had made it to the gate on this trip that I realized I had made it sans attack.  There’s a blog post somewhere about it.  So, naturally, I was praising a healing God and feeling pretty good about this whole trip by the time wheels were up.

By the time wheels were down though, I had already forgotten Who I was traveling with and that I could totally do this thing. I looked at the time on my phone and was already calculating how much time I had to make it through the terminal, to baggage claim, procure a cab, check into the hotel and make it to the first meeting in time.

As I was exiting the plane, I happened to hear the flight crew talking about a certain president, major pop star and local baseball game all in this city over the next couple days. I became less and less sure about my timeframe.

Why did this airline decide they needed MY particular carry on to be checked at the gate?! Nevermind.  I’ll hustle.  Keeping in mind I’m only five feet tall,  my “hustle” isn’t as fast as I’d like.  By the time I make it to the baggage claim I’m sweating and out of breath and that’s only partially because I’m terribly out of shape.  Anxiety has returned.

No worries! My bag is one of the first on the carousel.  Hallelujah! Now, to find a cab. I happen to see a sign as I’m frantically reorganizing my paperwork that says something about this airport only permitting licensed taxis in designated areas for our safety,  blah, blah, blah as I head for the closest exit. I look left, then right, not a taxi in sight. Darn.  Where is this “designated area”? I head back in and down the line of baggage claims further, looking for a sign. I see nothing.

Okay,  I’ll try the next door and then I’ll just ask someone. As soon as I step out the doors a suspiciously well groomed man asks me if I’m looking for a cab.  All of a sudden, I feel like I should not tell him that is exactly what I’m doing.  It must be written on my face though because he then tells me he happens to have a cab,  just there across the loading area,  in that nice creepy parking ramp and if I’d just follow him he’s got great rates. Hmmm… what was that sign about my safety??

After politely and quickly refusing I actually do hustle back inside this time. I am dangerously close to a panic attack when I finally see a sign for the taxi pick up line. I make a dash for the line and put as much distance between me and the potential serial killer as I can. Although once in line, I see he has (suspiciously) disappeared.

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I am safely deposited into a “licensed” cab, give the gentlemen that isn’t so keen on hygiene the hotel name and try to take deep, calming breaths. I say “try” because I am suddenly being whipped around by a cab driver that must be practicing for the Indy 500. Every time he comes to a sudden, neck breaking, stop, I need to brace my foot against the seat in front of me and every time he goes, my empty stomach gets splattered all over my backbone. I am anxious and sweaty and now turning shades of green.  He must be color blind because in an effort to avoid traffic he starts cutting off the exits,  looping around and coming back on the freeway.  The fourth time,  my water bottle breaks free of my death grip and is being slammed all over the minivan and my purse takes a nose dive. I catch most of the contents mid air. I don’t dare close my eyes, but this is when I start praying. That I don’t throw up.  That I can start to breathe normally again. That I would survive to the hotel….

And the driver stops the cab.  In the middle of the freeway,  in rush hour traffic and reaches back and throws open the back door. I am absolutely stunned and my poor brain can’t figure out what in the world he’s doing except maybe throwing me out?

Then he points.  And asks me if I want to take a picture.FB_IMG_1503174027370

Of the brilliant rainbow.

Fumbling for my camera on the floor,  crying and belly laughing like a lunatic I squeal, “Yes!”. And I remember that I serve a God that brings healing.  Who also has an amazing sense of humor that has me belly laughing and rejoicing in His presence again.

Oh, and I made it on time, breathing, without throwing up.

 

 

I need to stop bailing water…

I’m sitting in my favorite place. My feet and hands buried into the soft, warm sand. My head tilted up to absorb sun filtered through wispy clouds, my hair brushed back by gentle winds. I can hear the rhythmic rolling of waves and the distant begging of seagulls somewhere further down the ribbon of beach. The air is rich with the smell of heat radiating off of warm sand and beached seaweed below. This week has been two years since I washed up on these same shores and I’m amazed at the difference those two years make.

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As I’m reminiscing there’s a commotion behind me. A flurry of excitement and a vaguely familiar voice draw my attention to a group of men making their way to a fishing boat not far from shore. I hadn’t planned on going out on the water today but as He looked back I found I couldn’t resist the invitation to join them. I was not the only one. As I gathered Hubby and the kids and scrambled to find a boat of our own, there was a small fleet of vessels preparing to follow those men out to sea. Out on the water, a quick glance observed many from the beach wondering at the procession. Staring at us from behind big sunglasses and under bright umbrellas, holding fruity drinks in fake coconuts they quickly decide to return to their conversations.

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The day progresses and the shore shrinks on the horizon when a storm whips up, seemingly out of nowhere. Two years ago I weathered a similar storm and it pulled me under, depositing me on the distant shore. Today, I am not as worried about the storm as I am the water the boat is taking on. I’m furiously bailing water, trying to keep up. Our storm is one of special needs and each scoop of the bucket is another need.

Surgery, scoop.
Social Security appeal, scoop.
Medicaid, scoop.
Attorney, scoop.
MRI appointment, scoop.
EEG appointment, scoop.
Neuropsych appointment, scoop.
Leukodystrophy Foundation conference, scoop.
Newborn Screening advocacy, scoop.
Prescriptions, scoop.

Even the “normal” needs add to the rising water in the boat.

School supplies, scoop.
School shoes, scoop.
Soccer registration, scoop.
Breakfast, lunch, dinner, laundry, scoop, scoop, scoop, scoop….

I know there are many people safely on shore that think there is something different about us in the boats. Still others that believe somehow we have been uniquely prepared for our storm. Even a few that believe we have done something to deserve it.  Or maybe that we have a superhuman ability to withstand this storm on our own.

We don’t.

I don’t.

This becomes crystal clear as the water level increases in the boat until my heart is racing and I’m absolutely exhausted from the fight. I find myself examining my sinking ship. All of the ways I’ve failed. I’m not fast enough, strong enough, skilled enough to keep us afloat, to save these precious souls in the boat.

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So I sit in the rising water, paralyzed with fear, turned so far inward that I almost don’t hear Him. That familiar voice in the middle of the storm. Reminding me that I’m not supposed to be able to do it alone. That I don’t have to. Why do I keep trying to? And despite the storm around me, the storm within me quiets. I stop looking at my own boat and trust the One that calms not only the winds, but the waves as well. I look up and when I see Him I’m reminded why I’m here. I followed Him. No matter what the seas look like, no matter how distant the shore, I need not fear the journey because I know the destination.

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That’s when I see it. I’m reminded of the other boats in the raging sea. Some are much further out into the waters. Some have been tossed ruthlessly and it’s a wonder that they’re still in one piece. I can vaguely make out a much smaller vessel starboard, slightly foreign in its design, it’s battered and falling apart. The screams of the occupants are swallowed by the sounds of the sea as they hold tight to anything close to them that hasn’t been loosened by the ruthless waves.

But it’s their eyes, not their voices, that call out to me. Because I can see it. Beyond the fear, beyond the despair, is the hopelessness. And it hits me harder than any of the waves. They haven’t seen Him! They have yet to hear that still, small voice that calls out to them in the middle of the storm! Suddenly, I’m frantic to get to them. Oh, not because I can save them (no more than I can save Hubby and the kids next to me), but to tell them about the One that can. About the One that can not only make you brave, but fill you with a hope and peace that defies circumstances.

I’ve been doing a lot of bailing water lately. Even though I know where my strength comes from, that I can do all things through Christ, I still occasionally fall victim to lies from the pit. More often than I’d like. It isn’t until my anxiety returns, that I’m in tears and on my knees that I realize I’m trying to do this life alone again. The whispered lies that I’m useless, a failure, not smart enough, efficient enough, organized enough,

not enough,

have me convinced I need to appear more than I am. If everything is okay on the outside, I will be okay on the inside. And the enemy has me just where he wants me. Paralyzed, focused on myself.

Then, God reaches down, lifts up my face, and reminds me that I’m His. And because I’m His, it’s my joy to follow Him out upon the waters, no matter what they look like. And it’s amazing what, and who,  I see when I’m not focused on me.

This last week I had the privilege to hear an update and a sermon (which inspired this blog) from some beautiful people from an amazing organization called Tutapona. They provide trauma rehabilitation to refugees from war torn countries in Uganda and Iraq. Widows and orphans. The least of these. These refugees have suffered unspeakable trauma, the most unimaginable storms. They’re left with wounds far deeper than a surgeon can reach. They have reached refugee camps where they’re provided with their most basic needs. Which is amazing. But they’re left with fear, shame and hopelessness that is crippling. Please take a moment to watch the mini documentary below and consider supporting people who are weathering some of the most violent storms. We all need to be tossed that lifeline of hope.

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When you feel a little stuck

A couple weeks ago I was really discouraged.  One of those weeks when I was finding it difficult to see any growth or heart changes.  When it seemed every evening guilt and shame streaked down my face and parted worn out make up on my face over critical, impatient words that rushed past lips that should have remained closed or selfishness and my own desire for comfort that kept me annoyed and inconvenienced over the needs of a family of five.  Or how about that fear that still pops up? That unbelief after being shown hundreds of times that I’m never alone? So there I’d find myself feeling stuck.  With this frustrating pattern of sin daily confessed, repented, forgiven. To repeat.

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How much longer, Lord? How much longer before I’m complete? Before I don’t have the daily struggle with self?

Because I’m pretty tired of me. And in this world of instant gratification I’d really like to be fixed now. I mean, I was born again, right? I know I have a whole lot to fix but couldn’t the process go a little faster?

Or am I the only one?

If I’m not, keep reading because this gets really good!

Just when I’m almost sure I’m a hopeless case, that I will forever hold onto these chains, He reaches down and… moves me.

Literally.  And shows me that sometimes you don’t realize chains have been broken until you move and don’t feel the weight of them anymore.

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sometimes you don’t realize chains have been broken until you move and don’t feel the weight of them anymore.

Somehow, in my regular, every day life I had become unaware of the sometimes slow healing. The gentle touch of His hand in those unsettled places.

So in His infinite kindness and answer to my prayers, He showed me.  He plucked me out of my everyday Midwest routine and put me on a whirlwind of a Make A Wish trip for our daughter. I was incredibly grateful for the gift to her,  but had no idea what an amazing gift He had in store for me.

I’ve always been a worrier.  Anyone who knows me well knows this. I contemplated officially changing my middle name to “careful” when I changed my last name. What some might not know is that my careful was born of fear. Of just about everything. Oh, some of it was common.  Bridges, roller coasters,  car accidents, etc. But whenever I was out of my comfort zone fears took flight to crazy town. I could actually see horrible, very unlikely,  things happen.  Shoelaces in escalators, falling overboard, TV’s or fans falling off walls, fires in public places and not able to find an exit….I could go on and on to convince you of my incredible imagination but I think you get the picture.

I was crouched down behind Mini Hubby at the bow of a glass bottom boat in The Keys when I noticed it. Cruising along through mangrove trees dotted with birds I’d never seen, laughing in utter joy over the dolphins that came to escort us out, I had never felt so LIGHT. I assure you I’m not talking numbers on the scale.  Turns out vacation calories do, in fact, count. Just ask my jeans. Nope, it wasn’t until I’d moved out of my normal, out of my comfort zone, that I realized the weight of the chains was gone. There were no random,  crazy fears to steal my joy.  To take my eyes off of the beauty around me.  For the first time on a vacation I soaked every beautiful gift in without it being tainted or dulled by fear.  Never has the ocean smelled so amazing. Never has the sun felt so warm and enveloping.  And never has my children’s laughter sounded sweeter. I was free to shed thankful tears of joy for the ability to truly appreciate the beauty of creation. Because I now know the Creator.

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So I stayed crouched behind my four year old, our heads side by side, unafraid, the sea spray mixing with my own grateful joy filled tears and laughed over hair whipped crazy and looked into a bright blue sky and beyond to the One who breaks every chain.  In His own time. Which just happens to be totally perfect. I can wait for that. 

Perfect Storm

God has called us to waters so deep that they are rarely calm. I still often long for the sight of crystal clear, calm seas but am learning that sometimes He calms the storm for me and sometimes He instead, calms me. Just when I think I’m gaining my “sea legs”, learning to trust in His plans, accept His will for us, the wind picks up and I need to learn how to navigate these waters again.

I’m standing on the decks and feel them start to pitch and rock. The skies darken out of nowhere and I can no longer tell which direction the winds are even coming from. Assailed from every direction, the winds are ferocious and relentless; whipping my hair and my heart, covering my eyes. I struggle to see clearly but am buffeted by the salty spray of my own self pitying tears. In an attempt to find shelter I try to move on planks now wet and slippery. Unable to discern which direction to go, my arms reach out, grasping for something to break my fall. My mind so scattered, my heart so weary, I’m unable to even cry out to the One that holds me.

But I’ve been through storms before. This time, I reach for the many hands and feet of Christ that have helped steady me in similar waters. And as my pulse slows and I catch my breath, I can finally hear it. Trying to absorb the frantic rocking beneath my feet, I remember the anchor. The harder the winds pull, the further it’s embedded into the shifting sands below.

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We have this hope as an anchor for the soul, firm and secure. It enters the inner sanctuary behind the curtain.

Hebrews 6:19

As I feel the tug of the anchor my heart grips back and I forget the listing deck and the churning waters. When my gaze is focused on the horizon it becomes easier to maintain my balance. I start to see the beauty of white caps, of the magnificent power that drives the sea, and the light breaking through the solid mass of angry clouds. Though the storms still rage, I’m no longer driven by fear. I stand in the eye of this storm and praise the One who will bring me through.

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Now, this is the pretty, poetic picture gifted to me in the last few weeks but I assure you it came with the perspective of time. It actually looked like this…

Over the course of two weeks Hubby was laid off, our daughter had surgery for cataracts due to her genetic disorder and we received our son’s neuropsychological evaluation. As we were reeling from results that revealed far more than we were prepared for, our oven broke and we had two birthday parties for the boys. Hit from what seemed like every direction I made my way home from the appointment with the neuropsychologist in a daze. Overwhelmed and struggling to take it all in, I found myself in a familiar but not particularly welcome place.

I managed to get the kids fed, escaping to the bathroom to mop up tears as necessary. My mind and stomach would not stop churning and I struggled to even focus on menial tasks such as bath time and pajamas. Anxiously waiting for bed time I was hoping if I could just let loose these emotions, I would be able to pray and find calm.

Instead, I found myself sobbing on the floor of my prayer closet. Once again, I had no words. For an hour I laid there, surrounded by Kleenex, waiting for the words to come. A year ago, I would have given up and given in. To the anxiety and heartache. I would have let it push me to sleepless nights and tormented days. This time I waited. This time I remembered.

In the same way, the Spirit helps us in our weakness. We do not know what we ought to pray for, but the Spirit himself intercedes for us through wordless groans.

Romans 8:26

So I lay in His presence, comforted by the truth that the Spirit would intercede. That God would meet me where I had no words. Then I reached out to my beloved sisters in Christ. Brought to light my inability to pray. And they prayed for me. Sent me scripture and songs of worship. Encouraged me to pray through Psalms until the words became my own. And as I cried and sang, prayed through the scripture and read through Hebrews 6:19, gradually my tears slowed and the words did become my own. In just a year He faithfully taught me to ask, seek, and knock until my heartbeat and breath slowed and He calmed the storm inside of me.

Several years ago if you’d have told me I’d weather a storm laying on the floor of my closet for hours I would not have believed you. In fact, if you’d have shown me a picture of myself that night I would have jokingly asked who made me drink the Kool-Aid. Thank God for the work He has done in my heart. For never leaving me alone and for the anchor for my soul.

****UPDATE****

And sometimes He calms the storm raging within me, then calms the storm around me.

Within fifteen minutes of sharing our need for a stove, we were offered three different ranges for free and picked one up two days later. Hubby was called back for a couple of weeks worth of work and it appears that more work is coming in every day. Last night I attended parent/teacher conferences with no small amount of trepidation only to receive some much needed encouragement on our oldest son.

As I was driving home, lifting up praises, I was reminded of what I’d read just a few night before.

Beloved…you cost your Lord too much for Him to lose you. He bought you at too great a price and values you too much to see you broken to pieces on the rocks. Therefore, He has provided a glorious safeguard for you so that when Satan’s temptations, your own sinful nature, and the trials of the world attack you, hope may be the anchor of your soul, both secure and steadfast.

Charles Spurgeon

And for today…..

Here you are today, accompanied by grace, provisioned by mercy, steered by heavenly wisdom, and propelled by the Spirit’s power. Thanks to the anchor, or rather to the God who gave it to you, no storm has overwhelmed you. Your ship is under way for the port of glory.

Charles Spurgeon

Can I get an Amen?!

Let this cup pass…

I know that as followers of Christ we are to expect trial and suffering. But I find that expecting it and being prepared for it are two different things for me. Part of me conveniently forgets this truth until I’m staring at it, blinking in shock because it’s happening again.

A dear friend of mine, who has walked through no small amount of trial and suffering herself, recently was hit with more. Her walk through trial has so greatly encouraged my own and her wisdom, support, and encouragement have been such a huge blessing to me. My heart literally hurt to hear she was facing more. Yet through her pain, I was blessed yet again. This time through a conversation we had about cups (Yes, cups) and the resulting picture I was given.

I’m in a large upscale banquet room filled with tables covered in crisp white linen. Rows upon rows of us are seated. Expectantly waiting. Suddenly, there’s a shifting and murmuring as hands start passing along cups. From left to right and around to the other side, each table passes them one by one. Intrigued, I examine them as they pass through my hands.

Some are fine china, light and delicate with gorgeous, hand painted designs and gold rims. The handles so fragile I hold them on the bottom to pass them along. Others are of sparkling crystal creating orbs of prisms as they move along catching and throwing the light from the overhead lights. Still others are ornate goblets with designs that tell stories and inlaid with precious stones the size of robin’s eggs. I’m in awe of the differences, the uniqueness of each one, as I pass it to my right. Eventually I’m holding an earthen cup, more of a vessel. It’s edges are crude and it’s surface so rough and porous I’m sure that it can’t possibly hold anything.images-31 It’s ugly and it weighs far more than I think it should. In no small hurry, I look to my right to pass it along. Only to find their hands are still full. Looking around, I realize that everyone now has a cup. They aren’t moving anymore. Uneasy now, I glance to my left, hoping to pass it back the way it came. They actually lean away, protectively holding the cup they have. Increasingly alarmed, I look for sympathetic eyes, someone who might be willing to trade. I see pity and judgement in eyes averted. Overwhelmed, unable to bear holding it any longer, I place it on the table. My own eyes overflowing, I think if this is my cup, I don’t want one at all.

Head bowed, I rub my hands on my legs to try to rid myself of any remnants of that cup and I feel a hand on my shoulder. A gentle pressure. I look up through blurred lashes and make out an arm reaching in front of me and taking my cup. Startled, I look up into merciful, kind eyes looking straight into mine. “I don’t want it.” I whisper in explanation.

“I know.”

And His understanding kindness undoes me and I weep anew.

“It’s okay. Follow me.”

And because there is hope there, I do. Past curious glances I follow Him through the maze of tables and people and cups and I realize, they don’t even see Him. Puzzled and out of sorts, I follow Him through a doorway, into another room. The light is somehow softer here, but no less bright. There are people here too, but the tables are not covered in linen and they’re seated close together on benches. These eyes look right at me, and shift to my cup. But they’re not afraid. Instead, they shift to make room. Uncertain, I hover behind Him until He holds out a hand, calloused, yet soft, with remnants of clay under His nails. I take it, and my place at this table.

The people here, they lean in close while He dries the tears from my eyes. Through the open doorway I can hear music and too loud laughter. There’s clinking of dinnerware piled high with food and beautiful cups filled with drink. I can smell the abundance and see the chandeliers hanging high and glinting in florescent light. There’s a woman standing in the doorway with one foot in each room, her eyes distracted and pulled to the merriment next door. And I see Him get up, and hold out the same hand to her. Uncertainty and longing flashes quick in her eyes but she remains still.

“When you’re ready, follow me.”

The warmth here is greater than that next door and has little to do with the fire blazing in the hearth. There are no plates piled high with food or waiting in silver warmers. Instead, the fare is simple bread and wine and fills more than my stomach. I watch these people at the table with me as they share what they have and what they know. You see, it’s a work table and they’re looking up instructions in the books at their sides, helping each other. And their cups?

They’re being transformed by a master potter. Expertly washed and painted, they’re made new. Rough lines and crude material are made into the most beautiful of creations. And the fire?images-45 I’m now kneeling with a friend next to it, holding her hand. While He is reminding us that though it burns destructive hot to the wood within it, it’s bringing out incredibly unique colors and patterns. And when our cups emerge they will be more beautiful for the process and hold far more than they did before.

In the waiting, we’ll grow together and closer to Him. And maybe someday, when complete, we will no longer want to pass on these cups?

John 18:11

Jesus commands Peter, “Put your sword away, shall I not drink the cup the Father has given me?”