The Other Mothers

This mother’s day is a bit different than the past four. In a good way. Or a mostly good way. It started a few days ago when Oldest Son and Baby Girl had their latest appointment in neurology.

Neurology hasn’t been my favorite. This place of MRI’s, EEG’s, spinal taps, bloodwork and few answers but more questions makes my heart race nervous in the parking ramp. That day though, kids touched noses, hopped on one foot and images stayed the SAME. This momma breathed deep, exhaled grateful and smiled to her eyes for holding steady. Steady hands, steady legs and steady labs. This momma stayed up late overflowing grateful. And guilty. Heart rejoicing and heart weeping. Oh, she sang praises on the floor of her closet, wrapped warm in undeserved grace. Then prayed hard for the other mothers.

All of this mothering is hard. SO hard. But there is some mothering that hurts more than others.

The kind of mothering that happens when you lose a child to mother. I saw that this week. Prayed for that momma and hurt for that momma as she stood in front of a school she no longer had a child at. What does one do when you have a lifetime of love for that child and the lifetime is far too short?

The kind of mothering that happens when a child goes their own dangerous way. Prayed for one of those beautiful mommas this week too as she watches and prays and waits. Waits for that child’s saving, fully aware that she can’t be the one to do it.

The kind of mothering that happens when one does all the things to be a mother, but hasn’t been given the gift of the child. I prayed for one of these precious ladies too. For she has helped mother my own babies. Will continue to pray that she understands the beauty of mothering whatever children God gives you, no matter what that looks like.

And finally, the kind of mothering that happens with a special needs child. These other mothers weighed heavy on my heart this week. Because not all of them get to hear good, steady, news.

These other mothers stare fiercely brave into the hardest things. Things they won’t tell you. But I will. So you can pray for them too.

Their sleepless nights last far longer than those infant years. These warrior mothers navigate hospital halls, insurance denials, government paperwork and medical equipment. Always advocating, always fighting. They have grieved a diagnosis, mourned a prognosis. And if it’s a degenerative condition, they’ll grieve the loss of each ability, one by one, over and over again. And at the end of their hard days, their want to give up days, they might break a little knowing the only break they’ll get is when their heart breaks.

Or, they don’t have a diagnosis at all. Oh, I’m hurting for these other mothers too this week. You see, our diagnosis is CTX. And after years of research, I know about all the mommas before me that knew something was wrong. That did all the things to find the answers. And lost their babies before they found out what they were. I also know that there are likely hundreds of mommas out there right now, praying for this diagnosis and might not get it in time.

You see, I know I’m the momma that’s had a few hard years. But I’m also the one that gets the diagnosis, the treatment, the good doctors and the steady news.

So this Mother’s Day, I’m rejoicing and grateful for good news. And I’m praying for all the other mothers. That they know The Good News. That they find their rest in the only One who can give it to them. And that they know that there are mommas praying for the comfort and strength they need to persevere.

You, with those walls….

You, with those walls…I see you.  Fear has kept you behind them but I hope love will draw you out.

I hear the exhaustion in your voice from a lifetime of battling alone. I see the anger burn bright in your eyes and fuel the strength for another day. To wake up again and build and maintain all of the walls of defense that tower so high they block out not just the perpetrators of pain, but any light and joy as well.

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I see the protective prison you’ve locked yourself in and I see the hurt hidden deep within the fortress, nearly hidden by all of the anger, resentment and bitterness blowing outside the walls.

All of this fire, brimstone, bluster and force to protect a heart broken, of course.

I know where you are because I’ve been there too. You and me, more alike than you knew. Have you felt it before? That there’s something wrong with this world and you don’t quite belong? That you were made for more than betrayal, pain and suffering? That it’s all just a bit too much and no one seems to be in charge? So we create our own little kingdom of safety, block out the bad and try to control everything within.

Constantly striving to create that one place where everything goes as planned, in the proper order, in its proper place. No surprises, no disappointments, no pain. No light, no joy, no freedom.

But now I’m outside the gates and my heart breaks seeing you still fighting to stay within them. Because I love you, I’m willing to weather the possible storm and share something with you.

You want to know what happens when the walls are built, the gate is closed? You’re trapped inside. It’s lonely and it’s dark. You exhaust yourself maintaining your defenses; going over battle plans. You have yet to realize that safety is not synonymous with happiness. In fact, those wounds unhealed fester and bleed new because you’re all alone with them, picking at them, making them raw and not letting them heal. I know you’re worn out and I pray every day that you are tired enough to stop fighting alone; that you would realize that what you’re doing isn’t working.

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I long for the day that you will realize that all of your seeking, struggling, wrestling and striving to find happiness has led you to a prison of your own making. That you would see your defenses have kept you from not only giving, but receiving love. Worse, in your need to protect yourself from hurt, you’ve inflicted hurt on the very people you love most. How I hope you would learn that safety, rest and happiness are not found in a climate, a location, a bank account, the condition of your house, but a Person!!

That you would know that the way to healing is straight through the pain with the only One with the power to heal it!

There is freedom outside those walls of yours! A life free of anger, resentment, bitterness and pain. True joy in life! Freedom to remember the hurt inflicted by others but not let it rule your life and keep you from your own peace; to live the life you’re meant to. A life where forgiveness and grace abound. I pray that God would tear down your walls more formidable than Jericho’s. That He would soften the tender heart you’ve worked so hard to shield. I pray that you would see past those walls to the abundant blessings you’ve been given and know that God has been with you all along. That every step of your journey, every heartache, every hardship, every mountaintop and valley has been used to bring you closer to the Father that loves you.

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So, now I pray that the Spirit would reveal to you the God who longs to walk with you through healing and true living. The God who can remove your heart of stone and give you a heart of flesh.

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Oh! If you only knew the abundant blessings within your reach should you just forfeit your kingdom for His.

**Names of the guilty have been omitted, except myself, which has been one of the greatest offenders of all.

Light Glorious Light

Maybe it’s being immersed in a frigid Midwest winter. Or maybe it’s being a couple of weeks into our current series, Life Giving Light, at church in which we’re walking through the book of John. But as the snow piles up in subzero weather outside, I’m spending a great deal of time inside, thinking of light. The physical need for it, the Creator of it, artificial sources of it, the absence of it, and the reflection of it.

It’s a mix of sleet and snow which will undoubtedly wreak havoc on morning commutes, weigh heavy on power lines, and lay sheet-like on windshields. Scattered, wet, remnants of snowman construction and snow angel creation are littered in the entry and no matter how many times I try to get them to remove their boots before they hit my hard wood floors, dry socks will meet cold puddles at least a couple of times tonight. Rosy cheeks and running noses are now bundled into jammies and watching a movie snuggled on the couch. The overworked, tired, “builder special” dishwasher struggles loudly through another cycle and I can hear the jet engine spinning of the last load of laundry for the day. I, myself, am on the laptop checking things off of a never ending Mom list. As I pay the electric bill I glance up at the wildly blinking, multi colored Christmas tree, the several other strands of lights throughout the kitchen, and the crazy “light show” projection light the kids were sure our house needed. I wonder if they’d notice if I unplugged a couple?

The lights flicker, hum low, and go out. The TV shuts off and all of the noise comes to a sudden halt. And, because my laptop is almost as old as the dishwasher and needs to be plugged in, it shuts off as well. Plunged into quiet darkness, my pulse quickens as I reassure the kids it’s okay. To sit still while I find a candle. Eyes unaccustomed to total darkness, the room seems distorted and things much further away or closer than I thought. My stocking foot finds a wet puddle and I know I must be getting close to the table. I fumble to light the decorative Christmas candle. christmas-candle2

It sputters, spits and flickers bright, mellowing to a soft glow that reaches every corner of the room. Relieved faces smile back at me. And we start a puzzle.

I’ve written a lot about my experiences in the dark, and God’s incredible love and grace that shone through the haze of suffering to literally pull me free of it. There is truly nothing more beautiful than His saving light. Sometimes I mourn the years I didn’t see it. How many things did I miss? Opportunities to see His glory? Sitting in the dark, illuminated by a single light and distracted by no others, I realized.

What if I couldn’t see The Light, for the light? Bear with me here. I spent thirty years blinded by artificial light. Think about it. We live in a place of distraction and we’re attracted to bright, shiny, pretty, fun, things.

I can give you a list of mine. Family, money, career, house, cars, vacations, nail salons, restaurants, clothes with tags, shoes with boxes, shopping carts, “perfect” family photos, etc. Things that, plastered all over billboards and websites, shone bright, flashed joy, and fizzled out soon after. Now, don’t get me wrong, I still like pretty things. I am about as “girly” as a girl can get. I have not given away my marbles in exchange for new sight, I will joyfully accept a pedicure any day of the week. What I’m saying though is, these things kept me from seeing that One source of light that would truly bring me joy. The down to my pedicured toes kind. The eternal kind.

Now, here’s the hard part. For me, I did not fully embrace His light until it was the only one left. Until, enveloped in cloying, hopeless darkness, there was nothing I could do to bring myself joy. I couldn’t buy any, I couldn’t eat any, I couldn’t see any.

matches-lightThen there was that beautiful, merciful light….It sputtered, spit and flickered bright, mellowed to a soft glow and reached every part of my heart. Since then, I’ve noticed three things. How incredibly void of true light this world is. How incredibly beautiful that makes every small reflection of God’s glory shining through. And just how desperately I need that grace and joy filled light to live.

Every act of kindness, every gift of generosity, every reconciled relationship, every laying down of self. Whenever I catch a glimpse of His light my heart warms, my eyes spill, and I know a familiar joy. Whenever I am blessed by that joy, I want to reflect that light. What a beautiful design.

What if we were such a bright reflection of God’s glory everyone could see it? Even past all of the artificial light we are bombarded with?

For this child I have prayed

As a young child I longed to know that there was someone in control. My little heart cried out for comfort, security and protection.

When I got a little older I heard mention of God. Surely He would set right a world that didn’t make sense? Small hands asked for big things. That didn’t happen.

With the certainty and independence of adolescence I had decided that God must not exist after all. Convinced my circumstances proved me right, I stopped praying, crying, or hoping for change. I was on my own and it would be up to me to obtain what I so longed for.

It would be years before I cried again. Still longer for me to hope in someone other than myself. And a marriage, a toddler, and another pregnancy before I would pray again.

Twelve weeks into the pregnancy of our daughter I finally waded out of nausea and exhaustion to lunch with a friend. Pale, weary, and chasing a toddler, I was excited for some adult conversation and food that would stay, hopefully, down. Timidly finishing my lunch I scrambled to get our toddler son to the bathroom in time. After our third round of hand drying with the very entertaining blow dryer, I stood up and knew something was wrong. A quick check confirmed my fear. I was bleeding. Too much.

Heart sinking, hands shaking, I ushered our oldest back to the table and tried to bravely tell my friend I needed to get to the doctor. Thankfully, she took charge. All calm, reassuring and full of reason she told me to go right there, she’d meet me. Call Hubby and she’d watch the oldest until he got there. On auto pilot, I followed directions and shortly thereafter found myself in an exam room hearing the doctor echo my thoughts. Too much blood.

Sent to the hospital for an ultrasound I waited barely breathing to see the life still breathing inside of me. There it was! The tiny flutter of a bravely beating heart. Exhaling, my own started to beat again. Tears streaming down my face, I watched her bounce around oblivious to the turmoil she was causing outside. The technician did a thorough check and I was told “the pregnancy is still viable”. What she meant to say was, my baby was still alive. I needed to go home and rest and return the next day to check again. To call if anything changed.

As I laid in bed I prayed.

God, please don’t take her from me! I already love her!

For I knew she was a girl from the first.

Then I begged.

God, I don’t care if there’s something wrong, I don’t care if I need to spend the next six months in bed. Please let me hold her in my arms!

Finally, I bargained.

God, I know I’ve complained of the discomforts of early pregnancy but I will never do it again! She is worth every lost meal and I will be so much more grateful for the gift of her! Truly, every little flutter and bump of her exploring has been pure joy! Even when I’m laying on the bathroom floor. Please don’t take her away….

The next several weeks I rejoiced as the bleeding stopped, blood work came back fine and every ultrasound showed her contentedly growing, nestled in my womb. I thanked God, praising Him for His kindness and mercy.

Then, when given the gift of holding her in my arms, my heart overflowed with gratitude. This perfect tiny girl with the delicately arched eyebrows, pouty lips, and beautiful blue searching eyes was my miracle. My answer to prayer.

Several years later, I was still praying. Growing in my relationship with Christ when I found out that little miracle wasn’t perfect after all. How could He give me a healthy child, let me believe all these years that He answered my desperate prayers, and then just pull the rug out from under me? Betrayed and heartbroken, instead of turning away again I would fire off these questions, waiting for His answer.

And it came. Gentle like a whisper at the hairs on my forehead.

This IS the child for which you prayed.

Soft as a caress on the side of my damp cheek.

I formed her in your womb.download-5

Slowly, so that I’d understand.

I know every hair on her precious head. images-33

This child is still my answer to prayer. The same one He placed in my womb, the one I prayed to hold, the one He gave me.images-34

Through this child He’s answered so many prayers I thought had gone unanswered. For through her, He called me to Him. And through my journey with her, has taught me comfort, safety and security can only be found in Him.

So, for this child, my perfect answer to prayer, I will continue to pray.

When I see beyond me

I was barely five years old and I can still clearly see her standing in that old farm house kitchen. My Mom was all sharp angles and over processed 80’s bleach blonde hair. She was turned towards the wall where the worn out rotary phone hung. One hand with glossy red fingertips worrying the cord stretched and kinked from years of users trying to gain privacy and the other clutching the receiver and the ever present Misty. Even before she glanced over her shoulder with the miserable, apologetic eyes saturated in tears I knew something was wrong. I was already in the process of trying to hustle my four year old sister into the other room. Maybe it was the still clear memories of the past year or so, or maybe it was a carefully honed survival skill but I could usually sense trouble with just enough time to make a swift exit.

Over thirty years ago and I can hear the tinkle of the bell on the door of the local Ben Franklin the next day. In case you didn’t know, Ben Franklins were the Midwest’s small town one stop shop back then. We passed the register, aisles of fabric and yarn, and racks of clothes to the very back of the store. Down a slight incline and past the reaches of sunlight streaming from the front windows, it smelled of musty old carpeting and even older building. But, it housed tall shelves lighted by flickering fluorescent lights and full of toys! Instead of being excited, this made me suspicious. My five year old senses were ben-franklinscreaming that something was wrong. We did not go to a store and buy toys. In fact, I don’t remember even knowing this area, in the bowels of the store, even existed. And not only was my very quiet mother showing us the treasures back here, but she was telling us we could each pick out one thing. My sister immediately latched onto a My Little Pony play set. I already knew I didn’t want anything of what was going on. Whatever it was. But, Mom insisted. So, I gave in to the lure of the Cabbage Patch stuffed horse. I was relatively certain a stuffed animal would prove more useful than a My Little Pony carry along play set for what was coming and I tried to convince my little sister to do the same with no luck. My stomach dropped a little further as Mom pulled the necessary money, which she couldn’t spare, out of her black fringed leather purse.

I was right. My five year old brain struggled to understand what she was saying but I knew I was right. I didn’t want any part of this. We’d be going to live half across the country with our Dad. Just for a little while. While Mom got “better”.

In the main terminal of the airport in Minneapolis there was a large clock and a large plane. Well, at least they seemed enormous to my five year old memory. Clutching my airplane-in-airportstuffed horse, I was trying to figure out the plane inside the terminal, while I caught bits and pieces of the conversation at the ticket counter. Mom grabbed our tickets and we headed to the gate. In my child’s brain, I can hear the echo of her high heels to what seems the ticking of the second hand on that large clock.airport-clock As we approached it, this is when my little sister started to catch on and start to cry. A sympathetic stewardess with bright red lip stick met us. “Unaccompanied minors”. She’d be responsible for seeing us safely from one parent to the other half across the country. A half hour later, in our seats across from the airplane’s galley so they could keep an eye on us, my sister was still hiccupping and trying to catch her breath. I’d given her my stuffed horse and the stewardesses had done their best to distract us. Including telling us they had a couple of extra first class breakfasts they’d get to us as soon as we took off, and would we like to meet the pilot and see the front of the plane? And look here, we’ve even got some pins just like pilots wear! Throughout the flight they gave us the promised breakfast, blankets, pillows, and headphones that plugged into the armrest. Then, took turns trying to entertain the two scared, heart broken, confused little girls holding hands.

I’ve flown out of that same airport, same terminal, a couple dozen times since then. And every. time. I fight panic attacks and nausea. Just the thought of flying out of there would cause me anxiety for weeks beforehand. As soon as I’d come through the doors, I’d fight to see past the blur the crowds of people would become. To hear more than just the clicking of high heels, my head spinning to try to focus on their source. Is it high heels or that dreaded clock? I’d make my way sweating, through security and to the plane where I’d focus on chewing my gum and disappearing into a book.

This last week I had the opportunity to fly to Chicago to attend a Patient Advisory Board meeting with the pharmaceutical company and an organization called Global Genes which provides support and advocacy for rare diseases. As soon as I got my flight information I heaved a sigh. Terminal 1. By the night before I was to fly out I wanted badly to stay in and hide in my blankets for the night. Instead, I decided talking with my sixth grade girls in my youth group about Jesus was preferable to self pity. Instead, I spent the night worshiping and learning alongside young disciples.

The morning of my flight I was packed and ready to go an hour early. I listened to my favorite worship songs on Youtube and went over my flight information, hotel reservation, and meeting times a couple dozen times. Hubby, my mother in law, and Mini Hubby dropped me off. I cried for missing my babies already and made my way through the double doors. I was at the gate before I realized….nothing happened. No panic attack. No nausea. No flashback. No blurring of vision and weird hearing. Instead, my check in kiosk was at the far end of the terminal, right next to security and far away from the dreaded clock. While in line in security, I was entertaining an adorable two year old protesting her confinement to a stroller and listening to a couple dozen students excitedly anticipating their first flight behind me. A beautiful old woman in a wheelchair was wheeled in front of me at the TSA agent and I was wondering if she would have to take off the couple dozens of bracelets, giant earrings, and matching necklace she wore. I wonder if she’s headed to see family. Her bright pink lips and smile says she’s going to see someone special.

So I’m sitting at the gate, in awe of my calm, and pull out my “Show Them Jesus” book I’m committed to finishing while I’m away. I pull out my earbuds and pull up Youtube to the next song on my “suggested” list.

I can’t even make this stuff up! Thank you, Jesus!

 

 

D-Day

This week marks the anniversary of what I think of as my personal D-Day, or diagnosis day for our daughter. The day our world seemed to turn upside down and no longer made any sense. The repercussions causing me to land in the dark, and the next year learning how to rest in God, over and over again.

Reflecting on the last year, it has been on my heart to share some things with those of you who have, or are, experiencing your own trauma and suffering. Who may still be in that dark place. This letter is for you.


Dear Friend,

I see you. Always a compassionate person, I can now feel you in a way I never could before. The pain you emanate is palpable. I see the blank look in your eyes in a crowded room, not really taking in anything around you because the darkness you’re caught in has swallowed up the people and conversations around you. Your shoulders are hunched forward, curled around the pain and grief trapped in that place with you. Your smile a mere up turning of your lips. You’ve turned completely inward in the upside down. I don’t know if you’ll hear me, but I want to gather you in my arms and whisper past the shadows under and in your eyes. You’re not alone in there. Keep looking for the light and call out to Him.images (4)

Be careful. There may be bright sparks of anger, resentment and blame. Don’t follow them.They may lead you out, give you fuel to keep going, but they’ll only lead you to a life trapped in a place similar to where you are. Void of hope and truth and love.

Wait for His light. Maybe just soft at first, teaching you truth on your way to the surface, or for some people an all enveloping ride full of grace and love.downloadimages (13).jpg

Whatever that looks like for you, you’re bound to run into the hard but necessary truths. How utterly fragile, helpless and weak we are on our own. Don’t make the mistake of thinking this means you are unloved, or worthless. Just the opposite. You are so precious and loved Jesus will be with you through all of this. There’s no need to do it alone. When you look to the Lord for your strength, lay all your fears and pain at His feet, you can do all things through Him. Even THIS.images (8)

There may be friends and family that, unable or unwilling to absorb the shock, will distance themselves from it. But He will take that anger and resentment you may be tempted to and instead lead you to your knees in prayer for them and thanksgiving for those He’s placed in your life for this instead.

I assure you, His perfect sovereignty has the power to reach down and save you from this dark here and carry you all the way home. When you’re ready, He’ll be waiting. His love so powerful, perfect and faithful, He’ll take it all. And His yoke is infinitely lighter than yours.

There, in that place, you’ll find indescribable joy. The joy that comes solely from Him and has nothing to do with your current circumstances.

Dear one. I don’t know what your personal D-Day is. I don’t know if it’s a child’s diagnosis, your own, loss of a child or loved one, a life changing phone call at 2 a.m. I don’t know why God has allowed this in your life, but I know that He does. That regardless of how this feels now, His plans are to prosper you and give you hope and a future. Even if you can’t see any possible way for that to be true.

Look for, embrace and give thanks for every gift of grace. Big or small.images (7)

Hold onto Him, as He is always holding onto you. Remember His promises written on your heart and commit them to your mind.

Love and Blessings,

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I wish I could say that this particular anniversary came and went without any unwanted or uninvited memories for me. It didn’t. I woke to fresh memories of that day a year ago. Fear and pain springing up in place of my hope and faith. Sure that despite the blessings rained down on me over this last year I still didn’t have enough faith.

But in the remembering, I realized just how far from the dark He’s brought me, and how much joy I’ve found in His light.

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Freedom

In the United States we celebrate the anniversary of our freedom from British rule on July 4th. This celebration typically includes things like cookouts, barbecues, potato salad, pie and fireworks.

In the upper Midwest, participating in the requisite fireworks usually requires a bath in deet or running the risk of being carried away by hummingbird sized mosquitos. Having two kiddos with neurological issues, we try to avoid the deet bath. Instead, we have been taking the kids to our local dirt race track for their “Fireworks Spectacular” event. Where, either the noise, diesel fumes, or dirt, deters the pesky bugs and the kids also get to watch the races. fireworks5

We load the van with blankets, clear protective glasses, sweatshirts, sunscreen, ear protection for five, and more money than I want to part with. Once everyone has used the bathroom one last time we make it out the driveway with only three trips back in for forgotten items. As usual, we arrive about an hour before the races start which is not early enough to avoid sitting just downwind of turn four, but just early enough to stuff some food into the kids before the race starts and it’s filled with dirt. This year, the toddler complies with the ear protection requirement, which means all five of us are able to watch the races and make it to the fireworks portion for the first time since Mini Hubby was born.

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Well past Mini Hubby’s bedtime, he’s curled up on my lap, waiting for the promised fireworks. My chin resting on the top of his little blonde head I can smell the unique “Speedway Smell” of diesel fumes, exhaust, dirt and burnt rubber with the underlying earthy smell of toddler, i.e. sweat, sunscreen, more dirt, popcorn, pickles and something sticky which I’m bound to be covered in as well. Preteen has let his “I’m too old to be excited” mask slip and is trying in vain to find popcorn at the bottom of the bag that isn’t too gritty to eat. Baby Girl has moved past tired into overdrive, squirming on the unrelenting (even with blankets for padding) aluminum bench, and grinning from ear to ear and has only asked “How much longer” approximately eight times in the last fifteen minutes.

As the first firework is lit, shoots out of it’s tube and covers the sky in bright, loud, red, white and blue, three expectant faces follow it’s trajectory and smile. Eyes bright, mirrors of the cascading light. I smile. Watching joy spread across their faces and fill my heart. In between the repercussions and the patriotic music being piped tin through speakers, I hear it.

Soft and sweet.

Do you feel it? No fear.


Isaiah 41:10
So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand.


Lamentations 3:57
You came near when I called you, and you said, “Do not fear.”


Just joy.

There had been no fear all night. No stray fears about crashes and random parts flying into the crowd to sneak in and steal the joy of watching my family pick their “winning cars” for the next race.

No stray fears about someone stealing one of the kids to sneak in and steal the joy of watching Mini Hubby play in the dirt by the fence five feet away between races.

And now, no stray fears about tipped over fireworks or big explosions to sneak in and steal the joy of watching precious upturned, dirt filled, excited faces.

I’ve lived a life afraid. Afraid of bridges, wall mounted speakers in movie theaters, car accidents, kidnappings, wrong decisions, mistakes, and fireworks. Over the last few years I’m slowly learning to live a life of hope, in Jesus. To be brave and courageous. To walk this journey with perseverance and endurance. With Him. Until this blindingly beautiful gift of a moment I don’t think I’d really realized just how much work He’s done in my heart. I can get caught up in the mess of who I am, the frustration of fighting the desires of my flesh, and just how far from complete I am and forget that I am a work in progress. And that He’s been working all along. feartofreedom

I look up into crackling flashes across the sky, slightly blurred from grateful tears and celebrate true freedom. Freedom from fear. Freedom in Christ.


2 Corinthians 3:16-18

16 But whenever anyone turns to the Lord, the veil is taken away. 17 Now the Lord is the Spirit, and where the Spirit of the Lord is, there is freedom. 18 And we all, who with unveiled faces contemplate[a] the Lord’s glory, are being transformed into his image with ever-increasing glory, which comes from the Lord, who is the Spirit.


 

Hope

I have spent the last three days in a place too closely resembling the dark. I’m sure the details of which will come pouring out in a later blog, but for now, I thought I’d take advantage of the insomnia and a brief moment of clarity while treading water to share a small, yet significant, light bulb moment.

I have discovered, unfortunately, that there is something about pain and loss that makes me incredibly near sighted. Not the kind of near sighted I had fixed by a gifted ophthalmologist a few years ago, but the kind of near sighted that makes it virtually impossible for me to see past my own haze of pain and loss, to the world around me and the kingdom above me. Let me see if I can string enough words together to explain.

There is the kind of pain that explodes into your life with such force that you can’t believe that people within a two mile radius didn’t feel the reverberations. That makes you surprised that everywhere you look, people are just continuing on about life as if the world hasn’t actually slowed to a near stand still. They are going to work, buying groceries, and watching TV as if the searing hot white blast that is still causing your ears to ring and the breath to leave your lungs never happened.

There is the kind of loss that creates such a Huge void in your life that it sucks down with it things like laughter, days of the week, people’s names, prior commitments, and the ability to multi task. You stand at the edge of this vortex desperately trying to keep hold of your sanity with a white knuckled grip on HOPE. And sometimes that pain, it’s sucked down with the loss for awhile too. I believe it’s called “shock”.

But that HOPE I’m gripping? It’s not truly in my hands. It’s in the hands of my Savior. Or rather, at the foot of His cross.

This past Sunday, our message was titled, “Christ Centered Hope”. And I was blessed with the reminder of this message today. I’d like to say that my brain was functioning well enough that I remembered it myself. But alas, this information was in the fuzzy area obscured by pain and lost somewhere in the void. No, when I frantically searched for a piece of paper to write down our latest diagnosis and testing appointments, this conversation guide was closest at hand. Thank you God!

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Colossians 3:1-2New International Version (NIV)

Since, then, you have been raised with Christ, set your hearts on things above, where Christ is, seated at the right hand of God. Set your minds on things above, not on earthly things.


So, where is my HOPE? Is it centered on the transient things of this world like finances, relationships, and health? Or is it focused on the HOPE in Christ?

Today, I am struggling to remind myself where I need to place my hope. I am struggling to see further than the pain and loss. Today, I am incredibly near sighted. But I’m also incredibly grateful that He is meeting me where I am and occasionally breaking through that haze to remind me that this is not my home, and my hope is not in my hands, but seated at the right hand of God. And He is with me.

For anyone reading who is struggling through the near sightedness of pain and loss, to see further than the grief:


Psalm 119:114  New International Version (NIV)

114 You are my refuge and my shield;
    I have put my hope in your word.

Isaiah 40:31  New International Version (NIV)

31 but those who hope in the Lord
    will renew their strength.
They will soar on wings like eagles;
    they will run and not grow weary,
    they will walk and not be faint.