Love

Blessed

/ bobbiblanchard / 5 Comments

I ran into an old friend this morning in the line at Caribou. And because I hadn’t seen her in years, I was unshowered, devoid of a stitch of makeup, and wearing whatever was in reach as I rushed to get the kids out the door for school. If I hadn’t been plagued by a kidney stone all night I might have made a quick exit before she noticed me, but I had, and I was just desperate enough for caffeine to forgo vanity in exchange for it.

“How ARE you?! I was so sorry to see your last update.”

She had seen my Caring Bridge update the day before. The one in which I shared that our oldest son had also now been diagnosed with cerebrotendinous xanthomatosis. But, low on sleep, I thought she was referring to my Facebook post about the current battle being waged somewhere between my kidney and my bladder.

Self consciously zipping my coat up higher over my rumpled clothes, “I still haven’t passed the darn stone. Which is why I look like I just rolled out of bed. I did manage to brush my teeth though…you’re welcome!”.

“You have a kidney stone on top of everything else?! You guys just can’t catch a break, can you? I can’t believe everything you’re going through. I’m impressed you’re even out of bed!”

“Oh, it’s been a very long year and a half, for sure. But we’ve been so blessed too!”

Looking at me now like I’ve sprouted a fancy new pair of horns out of my unbrushed hair, “What?”.

“Well, I can tell you that I really can’t think of another thing that would have literally brought me to my knees as swiftly and completely as something happening to my kids.”

Confused stare.

Trying to clarify, “Well, my salvation is a pretty big blessing.”

“Oh. Sure.” She was clearly looking for a blessing a little more short sighted.

“I can assure you, if He hadn’t given me the grace to see all the good in this, I am positive I really would be in bed. Curled into the fetal position, drowning in all of the ‘What if’s’ and ‘Why me’s’!”

As understanding passed across her face, the line moved and she grabbed her coffee. “Well, I hope you feel better soon! It was nice to see you. I’ll be thinking of you guys!”.

“Thank you! Nice to see you too!”.

I was thinking about this conversation after I got home and was a little more awake. She’s not the first person that has commented on my mostly positive outlook. It occurs to me that though I update the Caring Bridge site regularly I’ve tried to keep it strictly about the facts and about the kids. So, I haven’t shared on there WHY I am hopeful and the details on how I know we’ve been blessed. I feel like I could write a book on all the ways He has demonstrated His sovereignty, grace and love to me in the past year and a half.

Let me count the ways He has loved us …

1. My salvation. This is pretty self explanatory. Though He’d revealed the Gospel to me some years before this, and had been working in my life for some time, the surrender of the things I held most dear and my dependence on Him had been slow in coming. Nothing makes a person realize their own limitations like illness!

2. Hope. My hope in eternal life.The knowledge that even if this life under the sun was crazy hard, even if He chose not to heal our daughter, even if one of our other children were effected,  EVEN IF His plan was different than mine, I could hope in my forever home.

 

James 1:12

12 Blessed is the one who perseveres under trial because, having stood the test, that person will receive the crown of life that the Lord has promised to those who love him.

My hope that no matter what the tests, specialists, and research says, our God is bigger than all of that. That the One who made the heavens and Earth had made these children as well and loved them more than a whole flock of sparrows.

3. Knowledge. Now, I’m not claiming any great IQ or anything, but He did bless me with enough intelligence to wade through hundreds of websites touting words and statistics that would make your head spin. I have a system of printing out research and case studies, highlighting the medical jargon, and translating it into layman’s terms in the margins to be able to go through and read it. I have found, with very rare disorders, that arming myself with information and verifying it with specialists has been highly beneficial.

4. Wisdom. Also, I don’t claim to any great wisdom of my own. He has not only led me to important people and information, but given me the discernment to know what I need to, when I need to know it in order to get the right care at the right time for the kids.

5. Truth. Time and time again He has poured Truth into my life. Through messages at church that seemed directly poured from His lips, to my ears. Through faith filled fellow Believers that have encouraged me and repeatedly pointed me to His word. Life giving bits of love and hope everywhere I looked! Even in the middle of the night, when pain and worry plagued me, He led me to my Bible and my knees.

6. Anxiety. Yes, the anxiety I diligently prayed relief from. So often I confessed to this anxiety, asked for forgiveness for not trusting Him, and begged that He would fill me with faith and peace. But even this, I know He made good. That anxiety fueled many sleepless nights of research, pressed me to dig deeper, look further, and to be diligent and persistent in finding medical answers. I truly believe He left this with me for our good, and His glory. Further evidence? He took it away. We’re not even close to done with hurdles and specialists, and testing, but I was on my way to our last appointment and it was gone. Now, I’m a mom, I still have a Master’s in worry. But not the anxiety that daily threatened panic attacks, headache and nausea and kept me up all night. Just gone. Because it’s no longer for our good, and His glory.

7. His Timing. The blessing of seeing His intricate weaving play out over the past year and a half has been absolutely awe inspiring!! He is The Master Weaver! Some things, of course, were not apparent at the time. But He was always working, whether I saw it or not. Let me share the basics…

Master Weaver

When I noticed our daughter’s tremor, I brought her to her pediatrician. He immediately referred us to a neurologist. To my dismay, they were booked out three months! The pediatrician agreed this was too long to wait, and referred us to Children’s Hospital. They fit her in in two weeks and did testing to look for life threatening causes. When those tests came back okay, the neurologist said he knew of a neurologist that specialized in movement disorders and referred us to him. This neurologist was great and immediately started extensive testing. As each new symptom developed, more tests. No answers. When he had exhausted all modern medical testing he referred us to a geneticist at the University.

We received her first diagnosis six months ago. That geneticist sent us back to her neurologist .After extensive research, I questioned the amount of symptoms not explained by this disorder and much of the information was from research done by a doctor who was currently at Stanford. When we saw her neurologist he said he had actually worked with this doctor previously and would contact him for his opinion.

The doctor told her neurologist to have us contact the genetic counselor involved with his research, who happened to still be at the University! I ran into a road block trying to contact her via the labyrinth of menu options on their phone system and no one was calling me back. Explaining this to a friend, she said her daughter actually had that same geneticist and genetic counselor when she was diagnosed years ago…and got me her direct phone number. She called me back the next day and after hearing of our daughter’s symptoms, diagnosis, and age, recommended that we continue with the full genetic panel.

We were warned, that patients that had undergone the amount of testing as our daughter rarely got answers from this testing, but it would be a good idea to just make sure that we weren’t missing something treatable, as many of the patients with her diagnosis had multiple disorders. She did. When the results came back, this genetic counselor consulted with a neurologist that had, amazingly, seen two other patients at another facility with this disorder. Since it is extremely rare, 1 in 200,000, and maybe only around a hundred current cases in the United States, we were elated. Until we found out our oldest son had it too. But, this neurologist already knows where to find the medication, that it needs to have special approval by the FDA, and is looking into how to get it to us.

I was led to research that proved to me that the kids diagnosis at 8 and 12 is nearly unheard of. That  because of our daughter’s atypical presentation, our vigilance and persistence, they may be the youngest in the country receiving treatment. They literally don’t yet have a pediatric dose! Average age of diagnosis is 37, when they are disabled by mental retardation or psychiatric problems. Life span without treatment is 40-50 years. Many cases are diagnosed post mortum. Sobering. I don’t know why He allowed this into our lives yet. But I do know that He has given them the best possible chances of a good outcome. We suspected nothing with our oldest until getting Joelle’s diagnosis and reading about it. Without God’s perfect work in carefully weaving this together, we could very easily have had a much more awful outcome. Now, would I have liked Him to cure these babies? Absolutely. But that’s because I can’t see the finished work. We are just a strand in it. But He can, and what a blessing is that?!

The Gift In The Concrete

/ bobbiblanchard / 4 Comments

The  last year and a half has been hard. Really hard. Watching your once “normal”, healthy, eight year old decline and helplessly standing by while dozens of tests and specialists tell you they don’t know what’s wrong has a way of slowly turning a parent inside out. You know it’s something serious, and you relentlessly pray for answers, but when you get them, you’re still grossly unprepared for the reality of it.

We now have TWO answers and I don’t like either one. The first is called Spinocerebellar Ataxia Type 8. Rare, genetic, degenerative, and would slowly rob her of her mobility over about fifteen years. You can see my blogs, The Dark and Alibaster Jar if you’re interested in seeing where that brought me. The second, newest, is Cerebrotendinous Xanthomatosis. I held it together slightly better (growth?) the second time around. See Hope . Also rare, genetic, and progressive, this one explains her cognitive decline, personality changes, leg pain, etc. The good news is that this one has an available treatment. The idea being to replace what her body isn’t making and pray that we can maintain normal numbers and stop the progression. The bad news is that each of our boys has a 25% chance of having this disorder as well and we are waiting on their genetic test results.

I’ve blogged a lot about the pain, loss, and grief over this journey but He has faithfully brought me through and given me so much love, truth, and hope. Everything I need, when I need it most. Thank you Jesus! The last couple weeks I’ve been struggling through something a little less dramatic. Sadness. The kind of sadness that hovers silently in the shadows of my mind while joy, excitement, hope, love, fatigue, frustration and worry bump around the rest of the space in there, jostling for position. It’s heavy presence is always there. Waiting. Just waiting, for worry or frustration to bump up against it, form an alliance, and squeeze hot tears out of unsuspecting eyes. I’m finding this happens most often when I come face to face with our present reality. Without having a chance to brace myself first.

The other day we were tackling 3rd grade homework when frustration and worry ganged up on me with sadness. We spent an hour repeatedly going over which hand was the hour hand and which hand was the minute hand. Something she had mastered in first grade. Abstract concepts are next to impossible with her short term memory impairment. Twenty minutes later, her newfound impulsiveness led to a screaming toddler and crying 8 year old because she had gotten frustrated, pinched him, and immediately felt terrible. At bedtime, she told me she didn’t want to go to Sunday school because she got confused. There was truly less light in my baby girl’s eyes! By the time I went to bed, I was in tears.

Father, PLEASE! Please don’t let us lose the compassionate heart you blessed her with too! Please don’t allow this disorder to rob her of the ability to understand the huge faith you’ve given her! This heart, this faith, that have been such a source of hope and comfort. Such a gift of grace to us!

Sadness dogged me the next morning and followed me through her occupational therapy session which left her tremor worse, her body sweating and exhausted, and her complaining of the pain in her legs. And as I broke out the Motrin:

“Mom, I’m sad.”

She has a few things to be sad about. “Why are you sad, baby?”

“I’m sad for all of the people that lived before God gave us Jesus.”

Her compassionate heart! But that’s a pretty abstract concept to grasp. Does she really get it?

“I wish He could have helped them get to Heaven too. But I’m sure happy that we were born after Jesus!”

Smiling through tears. “Me too baby girl, me too.”

Tear filled eyes closed and lifted to a bitterly cold Midwest winter sun, being covered in His grace and love, my heart cried out my thanks for a gift so beautiful!

I have little difficulty with the abstract. I’ve been blessed with an exceptional memory. I have no physical challenges. I’m pretty sure I aced third grade word problems involving reading a clock. But, I didn’t know the Gospel until I was in my thirties, and I struggled to understand and accept the love of my Savior for longer than I care to admit. (It really is a kind of illogical love, isn’t it?!) And I’m too embarrassed to disclose how long it took my heart to bleed for those that were, and are, perishing. Her existence in the concrete, the present, has apparently not hindered her faith, or her compassionate heart in the slightest. It begs the question, which one of us truly has a greater challenge?!  He will make clear to her all she truly needs to know, just as He will for me.

Baby girl, you bring that beautiful heart and concrete faith, I will bring the abstract, and we will grow in Christ together!

 

1 Corinthians 12:4-11New International Version (NIV)

4 There are different kinds of gifts, but the same Spirit distributes them. 5 There are different kinds of service, but the same Lord. 6 There are different kinds of working, but in all of them and in everyone it is the same God at work.

7 Now to each one the manifestation of the Spirit is given for the common good. 8 To one there is given through the Spirit a message of wisdom, to another a message of knowledge by means of the same Spirit, 9 to another faith by the same Spirit, to another gifts of healing by that one Spirit, 10 to another miraculous powers, to another prophecy, to another distinguishing between spirits, to another speaking in different kinds of tongues,[a] and to still another the interpretation of tongues.[b] 11 All these are the work of one and the same Spirit, and he distributes them to each one, just as he determines.

 

Prayer

/ bobbiblanchard / 2 Comments

At our Pray First breakfast at church I received a welcome message from our well traveled pastor on prayer. He spoke of the differences in the way people pray around the world. Some pray with abandon, some are reserved, some very solemnly, some structured, some eloquent, and yet others who break into songs of worship and in unison return to prayer as if on some unspoken schedule. As prayer is not something that has come easily to me, I am encouraged to know that so many, pray so very differently.

You see, learning to pray in my thirties was intimidating and supremely uncomfortable. This may sound strange to those of you raised in the church, or in a family of believers. I assure you though, that a person can make it well into adulthood without having ever opened a Bible, or spoken purposely and thoughtfully to the One who made them.

Although I’d had my first glimpse  of faith in my great grandmother as a preteen, and I truly believe she was a woman of great faith, she was not particularly evangelical. Though at the time I knew there was a special peace about her and I saw her faith poured out into her life, I never heard her pray. No help there. So, with no experience to draw from, I was left to try to figure this thing out on my own.

I had been attending our church regularly and I was so often blown away by the prayers of some of our elders and pastors. Literally moved to tears by the obvious praise, love, and worship they seemed to so effortlessly pour out of their hearts, into words dripping with sincerity, and soaring to the One who made them. Prayers that touched me so deeply I was positive they had to be pleasing to His ears as well. In hindsight, I realize this gave me some preconceived notions about what my prayers should/would look like. In reality, it went something like this.

Kneeling. Has our bed always been this high? Maybe I can just sit on the bed. Or is posture important? Better just stay put.

Fold Hands. Okay, but now they’re above my head. That feels weird. Maybe if I kneel on a pillow? A little better. Am I stalling?

Pray. How do I start? Like a letter, with a greeting and a body, closing and maybe a postscript? That doesn’t seem right.

Throat Clearing.

Squeaking. Ahhh!!! This isn’t going well! Okay, hang in there. We will just pray silently.

Pray. Praise! I think I start with praise! Then thanksgiving? Then what I want? That just seems greedy. Gee, thanks for…EVERYTHING, now can I have more? Maybe I need to do some more research. Yes. I will get a book. Okay. I tried, right?

I realize now I may have set the bar a little high. I truly did want to pray but I’m pretty sure I thought it would come naturally. It didn’t. And, discouraged, I didn’t try again for awhile. That was exhausting! But, like so many things (i.e. Fifth grade math), I was pressed to learn so that I could teach my children. After all, if they didn’t see me do it, or if I didn’t teach them, chances are they may have that same awkward encounter.

So, like fifth grade math, I did a little reading so they wouldn’t catch on to the fact I didn’t know what I was doing. I came up with a plan. I memorized the Lord’s Prayer. images (2)Then, I taught it to them. After awhile, I started asking them if there was anything or anyone they wanted to ask God to help or if there was anything they wanted to thank Him for. Oh, the things they came up with! I was so touched by their thoughtfulness, but mostly by their genuineness. Wait, what?! No, my children were not eloquent. Their prayers were not well organized or brilliant. But they were beautiful for their heartfelt honesty.

Okay, God, I get it.

So, I tried again. And again. And again. And what I discovered is that when I step out in obedience, He takes me the rest of the way. Like a toddler learning to walk, there were first awkward steps (accompanied by a small sense of triumph), a few cushioned falls (habits are hard to learn too), and a couple of bumps along the way. But He has held my hand and led me through. There were several bumps when I’d get caught up in those preconceived notions. Really, I was kind of hoping I’d be a little more organized in my prayers than my children are.

But, I have realized that when the valley I’m in is hard, when my prayers are tangled and chaotic, or worse, when I just don’t even know what to pray for, He already knows. Thank you Jesus! He knows my Valley, He made my mind and He already knows what I need. The most important part is that I bring my heart.

images (1)

The Pursuit

/ bobbiblanchard / 5 Comments

I know God was with me for the first half of my life because, frankly, I survived. But when I look back to see when He started to pursue my heart, I am brought back to the tender age of 18.

I was very sure that the one who loved me the most, was myself. And that was the only person I could trust to do what was right for me and take care of me. The fortress I had built around my heart not only led me to seek people who required no commitment from me, it caused me to be controlling, anxious, and fearful. After all, protecting yourself is a lot to take on. But, overall, for my plans, it worked. I was a straight A student, preparing for college and success. However, protecting yourself almost always causes you to hurt other people. I will not share the details because I believe that they will not bless you, or glorify Him in any way. I will say that once in possession of my soft, squishy heart, I spent plenty of time confessing and repenting those sins and left them at the foot of the cross. I would have continued on with my “plan” had God not intervened. And boy did He!

He was six feet tall, covered in dirt and a smile. Fresh from a mosh pit, his clothes didn’t match and his collar bone was swollen. He was a cross between Pig Pen and the kid goofing off in the back of class. He offered to show me the back seat of his car, or my car, whichever was closer. I was not impressed. I’d had plenty of similar offers that night. And this is not a reflection of my vanity, but of the hormones of a 20 something male. Oh, physically speaking he was right up my alley. Solidly built with wide (although one swollen) shoulders, blonde and blue eyed and though dirty, legs that should really be in a magazine. And he made me laugh. Future Hubby was not at all what I was looking for. Thank God!!

It would be three more encounters before Future Hubby took me on a date. By the third week I knew I was in trouble. He was so very far from what I was looking for, yet I knew we fit better than I was comfortable with. We were polar opposites. Exactly what we needed. He breathes sports, I tolerate them and never play them. I love to read, he falls asleep after the third page. I like to dress up, he prefers nothing more than comfort. Matching is not on his list of priorities. He is messy, messes make me nervous. I like to plan, he flies by the seat of his (mismatched) pants. You get the picture. But he made me laugh. And right from the start it was obvious that this man was either the worlds best actor, or there wasn’t a shred of pretense about him. It was the latter. He is completely incapable of lying. The genuine article. You see, he possesses no filter. Thoughts travel directly from his brain, out his mouth. He is uncomfortable with anything resembling untruth. Seventeen years later, and I can not think of a single instance in which he has been deliberately mean or hurt someone’s feelings on purpose. What he lacks in social skills, he makes up for in loyalty, sincerity, and dependability. Much like a Labrador retriever, but less hair.

He was exactly what my untrusting, fearful, guarded heart needed. He brought me out of my “safe” box, made me laugh at myself, and stop living five years in the future. He brought me laughter, joy, and relief from the path I had set myself on. He was the chink in my armor. How could I not trust someone so genuine and true to who he was?

There are plenty of times that I am certain our differences will drive me crazy. (Think basketball player that cannot manage to hit the hamper with his underwear.) And then, I will be in full panic mode about something that isn’t going according to my plan, and he will laugh at me, hug me, and tell me everything will be okay. I will be about ready to throttle him while he’s watching some sport and not hearing a word I’m saying and there will be a commercial break and he will have our toddler laughing so hard he’d pee himself if he was potty trained.

I know that God’s plan included Hubby. I am so very grateful that in His pursuit of my heart He gave me someone who slowly, carefully, made his way past that fortress and helped me to trust, love, and find joy. Hubby was the first step in a new plan. One not of my own making, but so much better than I could have imagined. And it all started with the tearing down of walls and the careful exposing of my heart. For His glory, and my good.

Many are the plans in a person’s heart, but it is the Lord’s purpose that prevails.

  • -Proverbs 19:21

Alibaster Jar

/ bobbiblanchard / 9 Comments

For six weeks I had struggled out of The Dark. Mercifully, I had emerged, battered, exhausted, on the shores of grief. Though waves of despair still licked at my feet, I was no longer immersed in the cold, dark, pain of my loss. My mind, body, and heart, bore the effects of the experience but I had started to sleep, keep food down, and my brain had started to function past survival, past my next breath.

While in The Dark, I had experienced whispers of thoughts that had drug me back under. But, my fatigued, desperate, mind could only focus on my next breath. Now that I had a little breathing room, literally, occasionally these whispers became thoughts and I became aware of a new battle. One being waged within my soul.

I was after putting the kids to bed. Still struggling somewhat with focus and getting to a new “normal”, I was standing once again in the kitchen. When, in a panic, I couldn’t remember if I’d given our daughter her new medication more than once! I knew this meant I would be sleeping once again on the trundle bed in her room awake and worrying all night. I was overwhelmed. This is what it’s going to be like. Medications, appointments, specialists, and worry. I backed up to the refrigerator and slid to the ground. Down to the beautiful hard wood floors Hubby had reclaimed off of an old job site, hauled home, installed, sanded and refinished for me. I sat there in a daze, looking at all of the perfect imperfections in that floor, and I saw it. My heart, shattered into a million, razor sharp pieces scattered throughout my kitchen. The same heart He had so gently and faithfully removed the barriers to, until it was soft, trusting, pliable, and vulnerable. And then He broke it! Silently sobbing on that floor, feeling betrayed, alone, and bone soul weary, I felt as if there should be crime scene tape and maybe a chalk outline of where my heart had been.

image7.jpeg
Why?!

He doesn’t love you.

No, He has been with me through it all, helping me through! I’ve seen Him in this! He died for me!

He’s punishing you. For those sins. Punishing her for your sins. It’s your fault.

No! I have been redeemed! He set me free!

You don’t look like you’ve been set free. You look broken. And your daughter looks sick.

He doesn’t love you.…

I grabbed my cell phone to take comfort from my “light” photos. I had quite a collection by now. And I had an event reminder. Come, Abide, Beloved.

Months prior I had been blessed with the opportunity to attend a Retreat through the Women’s Ministry at our church. At the time, worn down in both body and mind, I rejoiced at the thought of time to remove myself from the distractions of home and focus wholly on His word. However, at just six weeks “post diagnosis” I was literally surviving my days moment by moment, hour by hour. And at this particular moment I was sure I couldn’t manage to go. That I just didn’t have it in me. I was so incredibly raw and now keenly aware that I had some major things to work through.

And then He met me where I was. With encouraging texts from friends privy to my private struggle. With a ride from another sister in Christ. With a Hubby that reminded me that they would all be okay without me. And I put one foot in front of the other and decided to go as I was, where I was. I slept fitfully that night after scattered prayers for guidance and energy and courage to do something that even at my best was so very out of my comfort zone.

He met me in the car on the way up, with the generosity of the beautiful woman who came bearing coffee and a necklace inscribed with the word “courage”. I can’t even make this up!

He met me in the conference center with one of my favorite fragrances in the diffuser. Where these women had worked tirelessly to create an atmosphere so womb like and comforting that I couldn’t even be upset that they made me do 30 minutes of “speed dating” to meet the other attendees.

He met me with the most amazing cabin mates who filled my night with genuine laughter (some of my first in a while) until I forgot my discomfort with all the new faces and names, with an unfamiliar bed, with worries about home, medications and the struggle deep inside.

So I rested. In fact, I slept all night. One of only a handful of nights I’d gotten more than a four hour stretch. And I know He was preparing me for the day ahead. The cold sun rise brought with it the glaring clarity that light often brings. And when I stepped into the conference center again and started to worship I knew there was work to be done here today.

My mind was clearer, but my emotions were no less raw, no further from the surface. I cried through beautiful songs of praise and worship, speaking of God’s love for me and His pursuit of my heart. And as our gifted speaker spoke of Luke 7:37-38,
image23she painted a picture with words of a desperate woman, living a sinful life, risking rejection, glares and PAIN, to get to Jesus, and break her most prized possession, an alabaster jar of expensive perfume to anoint Jesus’s feet. She wept openly, wetting his feet with her tears and wiping them with her hair. She came as she was, where she was, with her brokenness and her sin, and weeping, left them at His merciful feet. I could almost see her desperation and pain! But she let nothing stop her. What was stopping me?

With desperation and pain my soul cried out to Him for Truth! Slowly over the last year He had stretched me and helped me to trust. Not just Hubby and the kids, the ones that initially broke the barriers on my heart, but over time a whole community of believers that had helped bring His truth and love and light into my life. And with each layer removed, each anxious step, He had made it good. I trusted Him! But how was I supposed to start all over again and trust Him again? Because this hurt too much. And the temptation to listen to those evil whispers, to return to the “safety” of a hardened heart was at times, at my weakest moments, so very strong! I felt everything but strong.

We broke for our personal devotion time and I went into the crisp autumn air thankful for the cold. Hoping it would numb some of the torment. And I opened my packet and started to work through it. Years of counseling and a remarkable therapist had helped me gain insight into my sins, the motivation behind them, and the detrimental effect they’d had on my life. I had confessed these sins, wept over them for the pain they’d caused me and others, and the barrier they’d placed between me and Christ. So, I fairly flew through half my packet when I was blindsided by number 16.

16. What do you desire more than Christ?

My earthly family. Whole, healthy, and happy. My daughter not sick.

They are my alabaster jar!

We were instructed to take our pieces of alabaster and write on them what we had been holding onto as more precious than Christ, image24then bring them to the cross and lay them at the feet of Jesus.

Could I do it? Could I trust Him with my family? With my heart? To be perfectly honest, I faltered. I sat holding that stone, hot in my hands, mind and heart racing and realized….I was still praying! I was desperate, broken, and looked for Him in everything, every person I came across, every piece of scripture He gave me. And I knew. I knew that I would walk to that house of the Pharisees, past ridicule and shame, and bring Him my most prized possession, my alibaster jar and all of my brokenness. Every sharp, painful, ugly shard. And I did.

Oh, there was so much pain in the offering!!! But as I laid my piece of alibaster at His feet and cried desperate, broken tears, I saw Him pick up those awful broken pieces and knew image11He made them new. That I was nowhere near complete, but He would make it good. I went to the safety of the prayer tent but instead of ridicule and shame was met again with His grace and love through another sister in Christ who once again gave me the words to pray when all I had left were tears.

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The Retreat was part of His plan, His perfect timing. And though I left exhausted, I left with renewed faith and trust in Him. I left strengthened in Him to battle the doubts and fears that still sometimes work their way into my head. Though they surface in my weakness, His strength lights my way and they no longer pull me down, broken, onto my kitchen floor.

I keep a piece of that alibaster jar amidst the chaos of my purse, my life, to continually remind me who I’d given it to.

DSC_0166~3.jpgMy alibaster jar

 

 

From the other side of the podium, the same side of the cross, please visit:

Invisible Love, Sisterhood

Aroma

/ bobbiblanchard / 2 Comments

Whew! After writing The Dark, my witty, sarcastic self can only take so much soul bearing, heart wrenching, seriousness. So, here is a little levity.

Recently, during a message at church, our pastor was reflecting on the lingering aroma of a lost loved one. After which, I was pondering the very powerful impact our earthly sense of smell has. A single smell has the power to instantly transport us back in time to a place, good or bad, with all of the memories and emotions attached. Often complete with our other senses, bringing sight, sounds, and touch with it.

For instance, I will never again be able to eat Cool Ranch Doritos. In fact, the very sight of the bag makes me inherently queasy. When my oldest was three he spiked a fever that, in a panic over the inability to get it below 104 degrees, I raced him to the emergency room. While pulling his fevered, lethargic, little body out of the car in the carport of the emergency entrance he immediately lost the contents of his stomach. Into my hair. Those contents consisted of, you guessed it, Cool Ranch Doritos. Sympathetic, merciful, nurses found me some scrubs to change into, but there is only so much you can do “washing” your hair in a sink the size of a mixing bowl with no decent shampoo. Then, I smelled of wet cool ranch Doritos. And it was bad. So bad that, two hours later, when Hubby had to bring our six week old daughter to me so that I could feed her, not even she wanted to be near me! Luckily, her aversion to bottles was stronger than that of her aversion to my smell. My now almost twelve year old delights in asking for this bag of anxiety and nauseousness every time we’re in a grocery store.

As a young child, separated from my mother, I wore a pair of pajamas for two weeks, wringing every molecule of my mother’s scent from them until, in tears, I could no longer smell her in the fabric of those tired jammies. I forfeited them to the laundry hamper but then had difficulty conjuring her image and touch without the scent of her skin.

When each of my children were infants, the smell of their sweet heads was like ambrosia to me. No matter when their last bath was. Over time, that smell has changed from the sweet smell of infant, to the sweaty, earthy, cracker filled scent of toddler, to my daughter’s favorite strawberry shampoo, and the very different sweaty, adolescent, hormone filled smell of twelve year old boy. Every scent touches a place in my heart and makes me smile and I know those precious scents will be forever locked into my subconscious.

Yes, scent is a powerful thing. And if we look at it in the context of 2 Corinthians 2:15 it takes on much greater meaning to me.

 

2 Corinthians 2:15
For we are to God the pleasing aroma of Christ among those who are being saved and those who are perishing.

 

What aroma am I giving off? What scent do I leave behind in the rooms, hallways, or elevators I’ve inhabited? I long to be the scent of Christ. Not just when I leave a room, but while I’m still present in it. An aroma so strong, so powerful, so beautiful, that it not only pleases Him, but attracts those who are perishing! That it leaves them longing for that eternal aroma that no amount of Downy can wash out. The kind of aroma that the smell of strawberry rhubarb pie and cow manure brings me to (If that sounds strange, see my First Glimpse ) of faith. The kind of aroma that brings people to the foot of the cross, wrapped in love, covered in Christ’s blood, seeking more of Him. Too often, I fear though that the smell I’m leaving behind is that of, well, wet Cool Ranch Doritos.

The Dark

/ bobbiblanchard / 18 Comments

It had been over a year. Over a year since I’d noticed the tremor in our seven year old daughter’s hands. Over a year of testing, waiting, worrying, doctors, appointments and watching her develop more symptoms. Over a year of praying for answers while He faithfully placed me in a position to receive them.

I was in my kitchen, twenty pounds lighter, bruised heart and body, too much hair lost in the bristles of my hair brush, clutching my cell phone in one hand and my budding faith in the other when the lights went out. It was a genetic disorder, degenerative, untreatable and incurable. My stomach turned over and I struggled for breath as my mind struggled to process the words pouring through the phone. I knew from countless hours of research what the sympathetic, clinical, voice was trying to explain. This was not life threatening. There were 29 other types of this repeat disorder and this was not the worst. It was considered “slowly progressing”. We wanted answers, and we now had them. But I knew our now eight year old daughter had approximately 15 years of mobility. That we would slowly watch her lose coordination, and the ability to walk. That the prognosis includes vision problems, swallowing and speech loss, tremors and cognitive problems. I couldn’t move. My feet rooted to that kitchen floor I somehow ended that call and stood, dazed, and listened through roaring ears to my three children playing downstairs. I honestly don’t know how long I stood there before the front door opened and Hubby walked in. The door closing somehow opened the flood gates of my eyes and as sobs and words came pouring out he held me until my tears wet his shirt and air started to fill my lungs again. I could hear the rain pelting the front door and recognized the sounds of a squabble downstairs and knew our privacy was at an end. As our tear filled, red rimmed eyes met, we both knew I had to go. So he stayed, and I ran. I knew it wasn’t fair but I also knew that the kids couldn’t see me like that. That I would take one look at them and fall apart.

So I left, into the rain, still in the dark. Wondering to where I was running. A year ago I would have had nowhere to go. But over the last year God had been faithfully positioning me for this moment. Slowly breaking down the last of the walls on my heart, stretching me and forging new relationships with wonderful, Christ following, beautiful women and a newfound church family that at the drop of a text, dropped the project they were working on and held me, cried with me, and prayed with me. I caught a breath. Long enough to return to my family and my kitchen.

Over the next few weeks I was like a novice swimmer caught in a raging sea. Pulled under by life’s tides I struggled to breathe. The darkness was so all consuming, the water so cold that my mind and body were numb to anything but pain. I searched frantically for a ray of light to break through to find my way up, to the surface. My prayers were more of an SOS than anything. Because I could barely form words, never mind sentences. But over the next few weeks He mercifully answered my cries for help. Slowly, He met me where I was, unable to sleep, eat, or put hands and words together in prayer, with the light I needed to get through. Lungs bursting, I’d catch a glimpse of His light penetrating the darkness and surface long enough to draw breath to sustain me through the next wave of grief.

He met me that first day with the arms of the husband He gave me. He met me in a room across town as two beautiful women breathed Truth and Love into starving lungs.

He met me a week later, in my bathroom, as Hubby, typically short of words and the first to panic at the sight of my tears told me, “She’s going to be okay. He gave her to us for a reason, and I know He made you the perfect mother for her”. Other people had said similar words, but hearing it from him, whose faith was in such a different place than my own, and knowing the pain he feels seeing me cry and unable to “fix” it? Another breath of Truth and Love!

And the next week, after our third appointment with different specialists I was driving home, overwhelmed with conflicting information when truthfully I still struggled to even pour a bowl of cereal without getting distracted, never mind processing statistics and genetic terminology that would make your head spin. But, through exhausted, tear filled eyes, I looked up! And there, breaking through the clouds was a ray of light that broke through the fatigued, scattered thoughts in my mind. With absolute clarity I KNEW that not one of those doctors knew our daughter’s future. He who made her, was still holding her,and her future, in His hands. And He loves her!! I claimed that ray of light as my own and it followed me all the way home.

He met me in my therapist’s cocoon of an office where she had gently encouraged my faith over the past eight years. As my body wracked with soul wrenching sobs in the safety I’d found in that room, she prayed for me, with me. Putting the words together that my tired mind couldn’t connect. And reminded me that He knew my heart and He loved our daughter more than I could comprehend. More Truth, more Love, more Light.

He met me in His church, with His church. As the pastor spoke of resting in He who does not slumber and I sobbed through songs of praise and worship wearing wrinkled clothes that had been sitting in the dryer for two weeks, hair that hadn’t been washed in two days and makeup washed away almost before I walked into the safety of the worship center, I KNEW that He was talking to me, was with me. Even during the darkest hours of the night when, afraid to leave her, I laid awake, heart pounding, mind racing, stomach turning. It was time to rest. In Him.

So He met me in my two year old’s room at nap time. Curled into the fetal position, wrapped around my bundle of energy, watching splayed lashes over sweetly rounded cheeks, chubby hands clutching his favorite blankie,  silent tears wetting his soft hair, I miraculously matched my rapid breathing to his quiet rhythmic breaths, and sent out a silent thank you prayer…and slept.

Countless times He met me in those first few weeks, in the dark, where I was. With Truth, and Love, and Light. Until I was no longer struggling for every breath, but treading water. There were still moments, sometimes days, where the waves would come, or evil would twist my thoughts, even scripture, like living seaweed wrapped around my legs and pull me back under, but He, ever loving, ever merciful, ever faithful, had prepared me for it and blessed me with so many people, pouring out Christ’s love through texts, Facebook messages, food, hugs and prayers, breathing His word into my life’s lungs,  that I KNEW there was hope. There was still light, even if I couldn’t always see it.

The light shines in the darkness, and the darkness has not overcome it.

John 1:5

First Glimpse

/ bobbiblanchard / 5 Comments

Just to give you some of my background, I grew up in a house void of faith. Churches were for weddings, funerals, baptisms and the occasional Christmas Eve service. I loved the stained glass, the “church clothes” (mine and everyone else’s), and the coffee hour or reception afterward but was confused by the (what I thought were) lengthy sermons, sitting and standing every few minutes, and the multitude of books to reference in the (rock hard) pews. But most of all I was confused about the HALF NAKED man, hanging on a cross! No one thought this was strange?! I knew nothing of the trinity and certainly knew nothing of what the blood on that cross meant. And, I didn’t learn for many more years to come.

My first glimpse of faith didn’t come until I was a preteen. I used to spend six weeks of my summer with my Mom in the Midwest. One year she was living with my great-grandmother at the time. This woman intimidated me and intrigued me in equal measures. She lived on an old farm complete with winding dirt driveway, several dilapidated outbuildings, a dozen or so barn cats and a box of a house added onto over the years to accommodate more children and the modern convenience of indoor plumbing. It smelled of the farm animals and since my great-grandmother wasn’t especially domestic, it sometimes looked like they may have bedded down there on occasion as well. Okay, that last may have been a slight exaggeration.

My great-grandmother was a reflection of the farm itself. Old, sturdy and well-built. They both unashamedly screamed honesty and hard work from the chipping of the floor boards, to the bare light bulbs with strings in the upstairs “bedrooms”. They were a haven for anyone who needed somewhere to go. And many wayward family members found refuge under the sagging roof over the years. As far as I know, she welcomed them all, loved them all, and forgave them anything. That being said, she was also blunt, sarcastic, and loud. Not accustomed to her brand of “realness”, I was more than a little afraid of her. But like the several dozen June bugs that made their way in through baseball sized holes in her screens, I was drawn to her just the same.

That summer, I also learned that she was a woman of great faith. She loved God, His church, and her “stories” i.e., “The Young And The Restless”. In that order. It was hard to keep track of her. Although she seemed to like such advances as plumbing, the telephone was not her favorite. After all, it was on the wall, on a cord and she was even worse with phone etiquette than she was in person. If she answered the phone, the conversations were brief, and when she was through talking she often just hung up. So, if you wanted to visit, you took your chances with the winding driveway, parked by the shed, and looked for her little blue car. If it was there, you got out and listened. If you heard “singing” you had only to follow the noise to the massive garden, or to the kitchen. (If you heard nothing, she was sleeping on the couch after watching her soaps.) Now, I use the term singing pretty loosely here. She was not blessed with a singing voice. Really. It was awful. But this did not deter her from singing her favorite hymns, terribly off key, sometimes at the top of her lungs. Someone once told me that when confronted with her less than stellar singing voice she replied, “If He didn’t want to hear me worship, He’d have made me mute! “. Since this sounds like something she’d say, I tend to believe it. She was almost always barefoot with dirty feet (whether in the kitchen or garden), decked out in rollers, and wearing a tattered apron that served a plethora of purposes. If she was out, she was caring for kids, helping families with laundry, with her “church ladies”, visiting people in the hospital, or delivering pie. I would have considered a hospital stay for the strawberry rhubarb.

I observed over six weeks that her faith followed her from garden, to kitchen, to church bazaar, to anywhere someone needed her. I learned that though rough around the edges, she radiated peace and love in a way that was hard for me to understand at that age. I recognized it, but could not understand how someone with such a barren looking life in the way of material things could seem so content and giving with everything she had. How someone who had seen so much and endured such hardship could not only weather those storms, but come out on the other side so….well, happy! I could go into all sorts of family stories but frankly, they would probably make your toes curl and I don’t want to be responsible for any nightmares. Suffice it to say, this lady was tough, and happy, and peaceful, and content in a way I had never seen before in people who had plenty of money, possessions, power and prestige. This little spit fire with the dirty bare feet, ratty apron, crazy curlers, belting out songs of worship while she toiled had more than anyone else I knew. And whatever it was, I wanted it! Okay, since I was just a preteen at the time I wanted it for a few weeks and then forgot about it until I saw the next pair of shoes I wanted. BUT, 20 plus years later, during my first bible study I made a timeline of my “faith journey”, and the first stop in my journey? It was on an old farm, with a firecracker of an old woman who practically oozed Christ’s love.  And as I worked my way through the book of James and both my heart and mind simultaneously understood James 2:18 and it spilled into my life, I knew my first victory!

But someone will say, “You have faith; I have deeds.” Show me your faith without deeds, and I will show you my faith by my deeds.

James 2:18

I could almost hear her screeching rendition of “How Great Thou Art”, taste the strawberry rhubarb pie and smell the cow manure! Not bad for a first glimpse.